Our son, Alden, was dx'd back on 12/30/08 when admitted to Children's Mercy with DKA. Anyway, while he was in the hospital, we were assigned to the "Red Team" and thus also the doctor who was in charge of this team. During the 3 days our son was in the hospital, we only saw "our" doctor one time-- and this was only when he was with a group of other drs/residents while making rounds. I wasn't impressed, as he never spoke to me or even introduced himself... one of the nurses told me who he was. (Otherwise, we only saw the dr from the PICU, who is not an Endo.) Upon release from the hospital, we were given an appointment in 2 weeks to see a Nurse Practitioner, not the Endo. She was nice, but not particularly informed on Alden's case, as she didn't even have any of the records of his blood work or labs from when he was in the hospital. Otherwise, we've just dealt with our CDE for any bg adjustments (and another on-call doctor when we had a crisis). Finally, (three months after dx), last week, we had an appt with "our" Endo. Prior to his coming in the exam room our CDE came in and looked over Alden's pump history (they didn't have the software to download it, and I don't think she likes the way I log it, as I use a notebook- not the little pre-printed "check register size" logbook we got with the pump... I like to write way more than I can fit in those). She asked us if we had any questions/concerns for our dr, and I mentioned, among other things, that we were interested in the process of getting Alden a CGM. He has had a lot of highs/lows over night, although nothing too drastic (down in the lower 60's), but that's mainly because I've been getting up every 2 hrs throughout the night to check/correct... but it's wearing on me (especially being pregnant again and also having Alden's 2 yr old brother to run after), so a CGM with alarms sounds heavenly. The CDE said that given Alden's young age and the fact he is not aware of lows, it shouldn't be an issue. She gave us some fliers on different CGM's and said the dr would be right in. Well, he came in, and literally, stayed a good 8 foot away from us the entire time. Never checked our our son at all... didn't look at his site, didn't listen to his chest (he has a murmur), didn't do any kind of an exam. Being we've never had an Endo visit before I have no idea if this is normal??? All he did do was look at the paper that the CDE had hand-written down the last 5 days worth of bg #'s, then said, "Well, it looks like he's doing fine. You don't need a CGM at this point. We can maybe talk about it at his next appt in 4 or 5 months." Now, Murphy's Law of course, but Alden's last 5 days *were* good... but if he'd taken the time to look at the past month or two, he'd have seen that we've battled for weeks... and, the very next day (and continuing all this week), we've been back to fighting highs/lows (today he was 410 after breakfast, "EzBg" corrected, and was 64 two hours later!?!). Alden had a good A1c (he was 6.8), but I'm guessing this was more from the highs/lows cancelling each other out (if that's possible???), than from us really being under a good level of control. Anyway, as I tried to ask a few more questions, he was backing towards the door the whole time and giving short answers. I was irritated. I felt like, "Why did I even drive the hour and put up with all of this just to get a brush off and not even have him touch/look at my child?" At the "check-out" desk for making a follow-up appt., we were told that he had NO openings for at least 5 months, and then all they could do was put us on a "wait list" and give us a call if something opened up. Now I understand that he's busy, but seriously??, NOTHING open for almost half a year!??? We ended up just leaving and when I got home we instead made an appt to see the same Nurse Practitioner we'd previously seen, and it is instead for in only 3 months. My dh says that he does not want to use this Endo any more, and I have to agree that he seems to not really care at all about our son/our needs. I assume he's just too overworked to really put in any individual attention, but don't know if this is "normal" for an Endo. What do others usually have done at your Endo appointments? The problem is that we were just "assigned" to this team (we didn't choose this dr), and we really do like the CDE that is also assigned to the "Red Team". When we meet with the Nurse Practitioner in a few more weeks, my dh wants to insist that we get transferred to another doctor and team... course, I don't know how that will go over or even if they will allow it... or if another Endo will do things any differently. Are we expecting too much of our Endo??? Do others actually have more of a relationship with yours? Poor bedside manner aside, I at least expected ours to at least really *look* at our son... I could've left him at home for the amount of attention he got (or should I say, didn't get!).