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...unique diabetic condition

Discussion in 'Parents of Children with Type 1' started by Ellen, Nov 19, 2009.

  1. Ellen

    Ellen Senior Member

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  2. Becky Stevens mom

    Becky Stevens mom Approved members

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    What an amazing young lady:cwds: Reading stories like this make me ashamed of myself for complaining about Stevens diabetes.
     
  3. liasmommy2000

    liasmommy2000 Approved members

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    Wow. :eek: Sounds like she is dealing well with it. How frightening though.
     
  4. Lee

    Lee Approved members

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    OH wow - poor girl!
     
  5. Kalebsmom

    Kalebsmom Approved members

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    What a beautiful young lady. I can not imagine how scary that really has to be.
     
  6. AlisonKS

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    :eek: wow!poor girl!
     
  7. LizinTX

    LizinTX Approved members

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    Wow, she has such a positive outlook on things.
     
  8. selketine

    selketine Approved members

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    I still don't quite understand what is happening. Her antibodies "bind" the insulin so it is .... stored and dumped all at once at random times or ?

    Why would she need to be careful around people that someone would "knock over" her pump? Are they talking about a regular pump or some other device she is also carrying with her?

    It is certainly a fascinating story - I wish they explained it better.
     
  9. Brideyful

    Brideyful Approved members

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    Well considering she is needing:eek:85,000:eek: mg of insulin...that must be one hell of a pump!!!!!!
     
  10. Lee

    Lee Approved members

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    There is a picture with her wearing her insulin pump; but carrying a humongous pump.
     
  11. selketine

    selketine Approved members

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    Egads! I didn't realize the thing in her hands was like an insulin reservoir. :eek:
     
  12. Toni

    Toni Banned

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    I feel so bad for this poor girl. Ranks right up there with two young twins, years ago, that had to stay in the hospital on IV insulin 24/7. She is allowed to go out of the hospital most days, or only on occasion?
     
  13. Sarah Maddie's Mom

    Sarah Maddie's Mom Approved members

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    I'm confused by the whole article :confused: I wish they had done a better job explaining what's going on for this kid. Would we even call this "diabetes" ? Or is this something entirely different? Not to belittle her health issues - it sound just awful.:(
     
  14. hypercarmona

    hypercarmona Approved members

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    It's type 1. I've read about this type of thing before, only it was describing it as a complication of people who have had type 1 for many years and who had used animal insulins. Her body recognizes the insulin as foreign and attacks it, creating antibodies. Then those antibodies attach themselves to the insulin she injects, binding them (causing insulin resistance) and/or randomly releasing them. This can cause huge swings, a very high TDD, and random lows. I would imagine it's pretty difficult to live with.
     
  15. Rhonda

    Rhonda Approved members

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    that just break's my heart and yet she still had a smile on her face remarkable young lady
     
  16. heamwdevine

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    what a scary condition!!
     

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