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Type I and PCOS in teen

Discussion in 'Parents of Children with Type 1' started by Juliefx, May 19, 2007.

  1. Juliefx

    Juliefx Approved members

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    My almost 17 year old daughter probably also has polycystic ovarian syndrome. We are in the midst of testing, but it is looking like a distinct possibility. Anyone else dealing with this?? As if Type I isn't enough to deal with..........
     
  2. Treysmom

    Treysmom Approved members

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    I am so sorry !!! Poor girl so much to handle. Bless you guys!
     
  3. Flutterby

    Flutterby Approved members

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    Sorry to hear about your daughter.. no advice on the T-1 and PCOS together.. I have delt with them seperate.. I have PCOS and my daughter has type 1.. she could very well end up having PCOS.. it runs in families.. I have it, my sister and I believe.. but no one knew about it until I tried to have kids..

    If you need info on PCOS I can help.. or T 1, I can help.. but how they effect each other.. can't help there.. BUT if she sees a Pedi endo (or at her age a regular endo) they should be able to help with both and how they would interact with each other..
     
  4. Chris

    Chris New Member

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    Pcos

    Dear Julie,

    My daughter developed PCOS when she was a little bit younger than your daughter. We took her to a top endocrinologist who continues to monitor her. She is being treated with metformin and birth control pills. There were emotional issues around the weight gain which we are still dealing with. She is now 19 years old. Many of the side effects which can occur with this condition like excess hair, stretch marks, and acne did occur which caused even more emotional upset. We had a top dermatologist treat the stretch marks and excess hair and that is much less of a problem now. He also gave her creams for the acne, in addition the birth control pill helped clear her complexion. She also needed to talk to someone professional and her doctor, fortunately, is an adolescent specialist. Sometimes she is very moody which is a normal teenage thing but I think it becomes exaggerated and exacerbated by the hormonal changes of PCOS. This is difficult but not impossible. I wish you good luck. Even if you are not in a big city, I am sure there are regional medical centers and particularly university hospitals who have specialists dealing with this condition. Remember when she is angry, try not to take it too personally. She is not angry with you.
    All the Best, Chris
     
  5. HannahB

    HannahB Approved members

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    What does the testing for PCOS involve? We had a daughter that was suspected to have PCOS and the tests have been inconvlusive. She has many of the symptoms, and I would like to have her re-tested.
     
  6. Juliefx

    Juliefx Approved members

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    We just had all of the usual blood work done, plus all of the hormonal - testosterone, LH, FSH, DHEA, prolactin. I speak to the doctor tomorrow, but from what I can tell, the testosterone is a bit high plus they use a ratio of LH to FSH which is also elevated. It is supposed to be 1:1. My daughter's symptoms were no period for 4 months, and some weight gain.
     
  7. Juliefx

    Juliefx Approved members

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    Is she diabetic as well?? Were the symptoms gradual or did they all appear at once??
     

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