Discussion in 'Parents of Children with Type 1' started by Debdebdebby13, Dec 28, 2011.
Ugh, me too
My a1C was 9.6 and BG was 636. I was not in DKA but spilled large ketones. I stayed at the hospital for 4 days, mainly because they didn't want to send me home with ketones and blood sugars in the 300s. My mom thought it was diabetes but the doctor couldn't get me in for another week, luckily I guess, I started throwing up so the ped fit me in. From there I was ambulanced from one hospital to another til I ended up where they had someone could treat me. So I went from the hospital ambulatory clinic to a regional hospital to Walter Reed.
I can't even imagine what those three days were like!
I can't remember the A1c at dx. BGLs were in the mid 900s, though. A full week in the hospital. Went to the local ER and then he was taken by ambulance to the Children's Hospital. Amazing nurses and endos there. I slept there the full week as well.
Dd's A1c at dx was 16. Fasting bg 301 with large ketones, but no DKA. Dd had had symptoms for a month following a stomach virus, and I thought she just hadn't gotten over it yet. One evening she had a soda, which was not something she regularly had, and became lethargic. For some reason, I just knew it was blood sugar related. Started googling. The picture could not be clearer─dd was diabetic. Layed awake all night. Called the pedi as soon as the office opened and asked for a bg check. Bg 301 fasting with +++ketones in her urine. They sent us to the children's hospital in Atlanta, where she was admitted for 3 days/ 2 nights.
I have a tendency to underreact to some kinds of stress. The thing that was bothering me the most during the education in the hospital was how slowly and stupidly they did the math calculations for carb counting and dosing. Even dd, at 9, had the answers way before the plodding CDE. Little did I know that accurately figuring doses was going to be the least of my worries. Did I mention dh was out of town?
Morgan was 14.5 at dx, and her blood sugar was 753. She was in DKA, spent 8 hours in ER waiting on room, then reg room for 2 days. We were sent home after tons of education, but were given option of staying another night. my husband pushed for taking her home because back then, our childrens didn't have private rooms. He slept in a chair for 2 days! I was 9 months pregnant with Zoe, so could't stay. Only one parent could stay : ( it was awful being alone in my house at night!
Zoe was dx'd 8 years later. She was not sick, not in DKA, not eating and peeing...just acting like a brat! I smelled ketones on her breath...checked and she was 474!!!!! I was soooo shocked! I called her nurse, and dear friend, in a panic, and she told me calmly it couldnt bet anything other than d. A few minutes later, morgans endo called from her home, and had us use some of Morgans back-up langue ) she had been on pump for years) in Zoes own bed at home with the whole family there. we went to the clinic the next morning for initial work up...Zoe was 8.3. So happy she wasn't in DKA! But so sad to have another D in the family : (
I have to say that posts like this bother me. It really doesn't matter what another child's A1C was at dx, or how long that child stayed in the hospital. Bottom line is that it doesn't change the fact that we all have children with T1D. It's not a competition and to make the statement that you are wondering if your child "got off pretty easy" upsets me.
I think you are reading far more into it than is necessary. Sorry curious about other people's experiences. I don't think it's a competition at all :cwds:
I do wonder if we were lucky or if ours was a common experience, as I only have one child I have nothing to compare with, and isn't that why we are all here, to compare our experiences and then learn from others what worked and what didn't?
I respectfully disagree that I'm reading too much into this when you chose to reply with the statement "I wonder if we were lucky...." If you choose to think that by having a lower A1C or shorter hospital stay makes you feel "lucky", then by all means go with that and I guess congratulations are in order.
While it is very true, and I am the first one to say it, that I have learned more here than I would have ever learned from my endo, it didn't involve comparing #'s or hospital stays or thinking I was luckier than someone else. I guess I'm just missing something here and I don't understand the reason for your OP.
I asked about the a1c because it seems the higher the a1c the later the diagnosis, thus the sicker a child is at that point, maybe, thus the question about being hospitalized. I never asked how long anyone was hospitalized, but people freely volunteered that info. I went in when my DD was showing signs expecting to be hospitalized, we weren't, I wanted to know if that was normal or if kids usually get hospitalized and for some reason we didn't.
Maybe instead of lucky maybe I should have said early, whoops, user error, I'm only human. Attacking someone for having honest questions, even if you don't understand the nature of the questions, that 40 some odd people previously have not had issue with is a good way to drive a person away.
Your comment above "I asked about the a1c because it seems the higher the a1c the later the diagnosis, thus the sicker a child is at that point, maybe, thus the question about being hospitalized" kind of, for lack of a better phrase, pisses me off. Most of us parents feel enough guilt about not seeing the signs earlier and for you to make this statement is uncalled for. If you feel this need to hear that you were "lucky" and/or your A1C was in the lower range, than so be it. If you think that I'm attacking you by saying this, then again, so be it. You were one of the very fortunate ones that didn't have a child in the PICU, close to death......
I didn't think it was the OP intention to see if her cwd was "lucky" or got off "easy". No, it doesn't really matter what your cwd's a1c was at diagnosis or if your child was in dka or if their bg was super high...none of those details change the fact that we all ended up on the same unexpected life changing path. Sometimes the best way to make sense of your own situation is to learn what other people's stories are. I will say, after reading other posters' replies, I felt a bond to the people on the cwd forum. Diabetes sucks! No matter how our cwd was diagnosed we here to offer support, be supported and share knowledge. :cwds:
I think you just want to be mad about something so you are twisting all of my word to suit your own angry, accusing agenda. If you want to nit pick every phrase go somewhere else. I will be putting you on my ignore list so I don't have to be accused any more.
I unfortunately have to disagree with your take on the OP's intention, when she said this...
To me, quite frankly, it's all entirely pointless. We are all in this same boat together and it doesn't matter how we got here.....
Angry, accusing agenda? Really?? Did you not read what you wrote? You are not understanding what I'm trying to say here so I'll bow out.....
I absolutely agree....but our journey to the boat is part of the knowledge we bring to those on board and those still arriving. :cwds:
Very true, to a certain extent. :cwds: I just personally have always had an issue with people comparing #'s. I don't think it is really of any help as every child and circumstance is different. :cwds:
ETA: I guess what I'm trying to say is that knowing another child's A1C at dx is really not helpful, especially to those of us that had children that were very, very sick and had high A1C's at dx. We feel enough guilt and don't need to know that someone had this # or that # at dx. As I said before, this isn't a competition.
I find diagnosis stories to be interesting. Diabetes presents itself in different ways and medical people and parents all react differently. Someone's diagnosis story makes a huge difference in how they react to diabetes and is helpful for others to know when providing advice.
Yes, we are all in the same boat now, but many arrived in different ways.
I am not sure I was even told what my son's a1c was at diagnosis. His endo left the practice and all the records are stored away. I would have to pay nearly $100 to get these records.
Hi, My 2yr old had a thumb prick test at the docs and the result was 7.1 i was told not to worry but they referred him to the hospital, now we have to wait 5 days for the results. is 7.1 a strong indication of diabetes or am i worrying too much? any feedback will be appreciated thank you
I am sorry that you are worried about your child having diabetes. You are on the right track to have her looked by a specialist who will do further tests. Your question is difficult to answer as we don't know what test was done -- a blood test or an A1c test. (Both could be done with a thumb or finger prick. Also, I can't tell if you are from the Birmingham in the U.S. or the city in England -- that too makes a difference in the response.) Besides, we have been asked by the folks who manage this site not to diagnose, as no one on this site is a medical doctor.
Here are the signs of diabetes: http://childrenwithdiabetes.com/clinic/signs.htm
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