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Solution for our dexcom adhesive allergy!

Discussion in 'Parents of Children with Type 1' started by Lovemyboys, Nov 22, 2011.

  1. Lovemyboys

    Lovemyboys Approved members

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    After seven days we pulled his sensor on his arm and his skin looks beautiful!

    We've been dealing with his adhesive allergy for a few months now and I think we've found a solution. We put a spray barrier down (Silesse, made by Trio Healthcare products) that was made of 100% silicone before putting the dexcom sensor on. It's a product that's made for ostomy appliances. I tried to not spray where the needle was going to be inserted, but I'm not sure if I avoided that part or not. I also used their Niltac (adhesive remover) to remove the sensor - it just fell off after a few minutes of spraying it. His skin looks so good, I sure hope that it continues.

    Just a little plug for the company: I e-mailed them, told them our problem and asked for samples. I got a quick reply back and the samples were in the mail the next day!

    I'll have to go through a few more sensors to know for sure the problem is truly resolved, but for now I'm very hopeful!
     
  2. ecs1516

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    Wow that is great I will have to try that! How long did he wear the sensor?

    What was the name of the company you got this from? Was it a supply company?
     
  3. Lovemyboys

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    We pulled it after seven days. This one we just put on we will try to leave longer.
    I got them straight from the company, Trio Healthcare. If you go to www.Silesse.com I think you'll find a link to contact them. Now I need to see if we can get a prescription and have our insurance cover them. Because I got samples, I have no idea how much they will cost.
     
  4. selketine

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    This is something new - not sure I've heard of anyone trying it.

    I hope it works for others who are having a problem with adhesives. I'm curious for more reports back.

    The "underbandage" worked for us on the Navigator but I always like to hear of good solutions like this in case we need it.
     
  5. Lovemyboys

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    We used iv3000 as an under bandage and it worked pretty well for him. If this didn't work we were going to go back to it. The main problem with the iv3000 for us was it peeling up.

    I'll try to remember to give a report after we pull this current sensor a week or so.
     
  6. Chippy28

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    Thanks so much for posting this!:) I have contacted the company to see if I can get a few samples. I hope this will be the answer to my infusion set allergy.
     
  7. Beach bum

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    I'm currently looking for a new remover, Unisolve is good, but not great.
    I didn't realize they are a UK co, which means a hefty shipping cost:(
     
  8. iluvmhp

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    I will follow this thread to see if it continues to work. We still are having good luck using the Johnson and Johnson tough pad under her sensor. She was allergic to all other underbandages. We did try some barrier wipes and they didn't work.

    The hard part of the tough pad is taking it off. It is a bear after wearing it for 2 weeks at a time.

    Thanks for posting this!
     
  9. swellman

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    To the OP we don't have a problem with the adhesive but I have a suggestion for not spraying the part where the sensor is inserted. What if you put a small round band-aid where you want the sensor to be inserted and spray over that? Unless there's an allergy there as well. Then you can mark the perimeter of the band-aid with, say a pen, with 4 dots then peel the band-aid off and there would be a perfect, round spot where the sensor can go. You could use just about anything really like poke holes in the sticky portion of a post-it note with a hole punch or just use scissors to make a template of the part you want no spray.

    Just a thought.
     
  10. Lovemyboys

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    Great suggestion! I just used a folded up alcohol pad to try to protect that spot. I think I'll use this method. Thanks.
     
  11. Lovemyboys

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    I remember the guy asked if I was in the US, but the samples came pretty fast, I'm sure they didn't some over seas. Maybe they have a US branch?

    I just looked at the package and the samples came from Georgia, so you might try to contact them and see what the shipping would be.
     
  12. dqmomof3

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    I asked for samples, but they very nicely told me that there are no more samples. We'll have to order it. It will be worth it for Jayden if it works!
     
  13. Chippy28

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    Yep, that was what I was told as well. Do you (or does anyone) know if they have distributors throughout the US or only in Atlanta? I would love to purchase some, but I have a hard time paying $14 for shipping on a $16 item that might not even work for me.
     
  14. Lovemyboys

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    That sure is a lot for shipping! I see that they are having a free shipping if you spend 50 dollars, but that's a lot to spend, especially if you are wanting to just try it.

    I wonder if they are out of samples, or discontinuing that service? They did have a button that said "free samples" on their website, but now it's gone. :(
     
  15. Chippy28

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    The email they sent to me said that basically they have had a ton of request for samples lately and are out of samples at this time unfortunately. They said the will send some when they get some in, but I don't know how long that will take.
     
  16. Lovemyboys

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    Well, we pulled the sensor after 13 days and it looks pretty good, but there is a red scaly patch where the sensor tape was. It's sort of weird, it's only on the top portion, about the size of a nickel. The rest of it looks pretty good. I'm a little disappointed that he still showed a little sign of reaction, but we did leave it I place for almost two weeks. Anyone else having success?

    ETA: it just came to me that maybe the round circle of irritation was where I tried to avoid spraying for the insertion.
     
    Last edited: Dec 7, 2011

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