- advertisement -

Prior to dx, how much did you know about D?

Discussion in 'Parents of Children with Type 1' started by sam1nat2, Sep 18, 2008.

  1. twodoor2

    twodoor2 Approved members

    Joined:
    Oct 30, 2007
    Messages:
    6,440
    Good question. I was pretty clueless. Even when she was diagnosed, I didn't grasp fully the seriousness of the situation because I always thought diabetes was easily managable (I was thinking Type 2). I think I would have been one of those annoying people that would drive you all crazy with stupid questions. I'm probaby still annoying regardless (LOL!!)
     
    Last edited: Sep 19, 2008
  2. Jordansmom

    Jordansmom Approved members

    Joined:
    Aug 23, 2008
    Messages:
    2,172
    I knew too much of the bad stuff. I met my husband when we were 17 and his little sister (10 at the time) was type 1. She had a lousy Dr. (NPH and Regular once a day) and despite heroic efforts on her mom's part, had a really hard time especially as a teenager. I knew her mom never slept and I saw alot of low seizures that were burned into my brain. I did see her get one of the first pumps at 20. She had to stay in the hospital for a week. That was when they first introduced carb counting.

    Worse than that, at the time of dx my father in law was REALLY sick in the hospital in kidney failure and loss of his leg from poorly controlled Type 2 (except now we know more we think it is LADA type 1.5). Our family was in the middle of that roller coaster ride when my DD was dxd. We had even been called to the hospital with a cardiac arrest thinking he had died, but when we got there he had been revived.

    So when our DD was dxd, my husband and I held it together, but I knew without a doubt what was on my dd's mind. I had to just address it head on. I brought it up right away. When the endo and the Social worker came in I told them what I thought she was worried about. We spent most of our hospital visit talking about how she didn't need to end up like her grandpa. It was bad.

    I remembered how my DH little sister and family still talked about the day of dx with great detail. The whole day of dx I kept thinking about how we were acting, the words we were saying and telling myself, Jordan will remember this day for the rest of her life. Every word I say will be burned into her memory forever. So all day I chose very carefully what I said and how I reacted.

    When we first had kids and they were little I'd lay awake at night and worry about them getting Diabetes. I'd think someday one of them is going to tell me "No matter what I drink I am so thirsty." Or they'd need to pee all the time. Years went by and I really quit thinking about it. One day Jordan said "Mom I am so thirsty and no matter what I drink I am still thirsty." It was like a bell rang in my head. I knew immediately. My Dh was going to his sisters and he was pulling out of the driveway. I told my DD to run to the truck and tell her dad she needed to come and to have his sister check her blood sugar. I didn't even get a chance to talk to him. I know he thought I was crazy. The meter read HI. I caught it so fast she did not go into DKA. So knowing was both a blessing and a curse.

    People constantly resonded to my DD dx by saying "Oh well it runs in your family though doesn't it?" Like that some how made it less devastating. I HATE THAT PEOPLE THINK THAT.
     
  3. Boo

    Boo Approved members

    Joined:
    Jan 6, 2006
    Messages:
    1,958
    I didn't know squat about it..type 1 or type 2. It was a steep learning curve for me!
     
  4. sarahconnormom

    sarahconnormom Approved members

    Joined:
    Mar 12, 2008
    Messages:
    626
    I knew quite a bit because my dh is T1. But I still had a lot to learn (and so did he). My dh was still on NPH and Regular so carb counting was new to both of us. He is now on Lantus and Novolog and his A1C is much better. We have both been re-educated since Connor's dx.
     
  5. Mom2rh

    Mom2rh Approved members

    Joined:
    Mar 15, 2006
    Messages:
    2,334
    My dad was dx'd with T1D when I was in college...he was 42. So I never lived with it. My mom, who owns an herb and vitamin store and is a health nut, was convinced he got it from a virus (back before they thought that...she had a hunch before the specialists agreed with her LOL) but she also thought his sugar habit (she's very anti sugar) contributed.

    In college I had a friend with T1D...she started acting drunk in class so I took her back to her dorm room...I didn't really know what to do but she recovered by the time we got there. Back then it was NPH and regular and she had eaten a bagel for b'fast and I guess it absorbed slowly.

    I had a friend after college/grad school who had T1D...and we talked about it a bit...there was one time we were leaving the gym and apparently she was having a severe low but she didn't tell me until after the fact...she was waiting for her boy friend to pick her up (rather than ask me for help???).

    So I'd been around it, knew the signs, symptoms...I did NOT know there is a genetic component though...so I didn't worry about my kids. I have learned a TON since, of course.
     
  6. BozziesMom

    BozziesMom Approved members

    Joined:
    Jul 16, 2008
    Messages:
    3,863
    Heck, our pediatrician when she found out he had D because I told her... said she would have tested him if he'd been showing those symptoms and was overweight, but since he was thin, she assumed they were something else, like the heat... she gave him a clean bill of health the month prior to DKA even with the symptoms. Told me to feed him more fat to address the weight loss.
     
  7. zell828

    zell828 Approved members

    Joined:
    Feb 20, 2008
    Messages:
    1,918
    I have a picture of my SD 2 days before she was dx. I beat myself over it, I cry when I see it. I hate that I didn't know more back then as maybe I would have been more aware and recognized the symptoms :(
     
  8. hrtmom3

    hrtmom3 Approved members

    Joined:
    Jun 30, 2007
    Messages:
    1,128
    I knew absolutely nothing about D before Tim was dxd.
     
  9. ianmom

    ianmom Approved members

    Joined:
    Apr 19, 2008
    Messages:
    109
    Jordansmom, the "oh, well it runs in the family" remark reminds me of what a few of my husband's family said to me after my mother died at the age of 48 from a congenital brain aneurysm... "Oh, well she smoked."

    Later, someone explained to me that these people say these things because they are 1.) trying to determine their own risk and 2.) trying to make the world less random. Doesn't make it any less rude, but does give some perspective to it.
     
  10. shekov

    shekov Approved members

    Joined:
    Feb 22, 2008
    Messages:
    2,384
    My dad was D, dxd at 15. He never discussed D and I never saw him test his bg, NOT ONCE. He had a kidney transplant, multiple laser eye surgeries, and a partial foot amputation. His lows were terrifying for me as a kid. I knew how to treat a low with oj and a bad low with sugar stirred into oj. And how to call the ambulance.

    My older brother was dxd at 15 as well. His D was easier to handle since my mom helped keep his D in control. Lows were still scary. I now knew how to treat lows with candy in addition to juice and to never to leave home without it.

    My niece was dxd when she was 2 which was terrifying in a whole new way...it had hit another generation...what we had all feared would happen. I now knew that D involved counting carbs and a tremendous amount of testing and logging. AND that I didn't think I could handle having a child with D, ever.

    Then my 5 year old neighbor was dxd last year. I learned how an insulin pump worked and how awesome technology was.

    When my dd was dxd this year I still didn't know a whole lot about a whole lot, especially how normal life could be with D. All I knew is that this disease took my dad early, affected every choice my brother made, completely took over my SIL's life for a good long time while my niece was littler, and would affect my niece's health and choices for the rest of her life.

    Thank GOD for you guys and for my family and neighbors. You make it all easier and have taught me SOOOOOO much.
     
  11. U of I Mom

    U of I Mom Approved members

    Joined:
    Apr 15, 2008
    Messages:
    111
    I knew T1 was autoimmume and required shots of insulin. I knew T2 was the more common type and could be treated with diet, exercise, and pills. I was pretty sure my son had diabetes when we went to the doctor and was hoping for T2. I didn't know about carb counting and thought his diet would be much more restricted.
     
  12. KeltonsMom

    KeltonsMom Approved members

    Joined:
    Sep 12, 2007
    Messages:
    3,605
    I knew nothing at all..Nada, zip, zilch...Talk about a crash course when Kelton was dx'ed :eek:
     
  13. Wendyb

    Wendyb Approved members

    Joined:
    Nov 6, 2007
    Messages:
    622
    Prior to Alex's dx with diabetes I had a cat that was dx. I had to give him two insulin injections a day----approx. 10 hours apart. I used to prick his outer ear to test his blood throughout the day to do a "curve" from time to time. When Alex was dx I called his daycare provider from the hospital and told her it would be no big deal--that we would give Alex a shot in the am and then one at home in the pm. I HAD NO IDEA that i would have to count carbs and match insulin and do multiple injections. Did not have to do that with the cat!!!! I still remember how shocked I felt at the hospital when they told me that Alex had to order off the "diabetic menu".

    I, too, had seen Steel Magnolias and had been mortified by her low scene. I don't think I could watch it now without becoming hysterical.
     
  14. Daxdog

    Daxdog Approved members

    Joined:
    Aug 23, 2008
    Messages:
    837
    My cousin has it (he is 6) and so my family knew quite a bit about it.

    Good piont though. I don't know about you, but some times I forget what life was like before diabetes and ow clueless i used to be about it.
     
  15. grantsmom

    grantsmom Approved members

    Joined:
    Jul 29, 2008
    Messages:
    1,243
    Boy what a great question. I was so clueless. The scariest part is I now realize EVERYONE my son is in contact with is clueless so I have to do my best to educate a lot of people...
     
  16. deafmack

    deafmack Approved members

    Joined:
    Sep 22, 2006
    Messages:
    3,209
    I probably knew more than most mainly because I took care of a little girl with type 1 before BG meters were out. Used the strips and matched the colors. Treatment has sure changed a lot since then. The other thing made me laugh was when your doctor told you to give your child sugar free juice. I will take the meter over the color matching strip any day.
     
  17. deafmack

    deafmack Approved members

    Joined:
    Sep 22, 2006
    Messages:
    3,209

    My sister tried those detox pads once. They have menthol in them. Made my sister very nauseated. The pads went in the garbage and the probably did the most good there.
     

Share This Page

- advertisement -

  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.
    Dismiss Notice