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Possible ADD diagnosis in our future.. like next week.

Discussion in 'Parents of Children with Type 1' started by MommaRetta, Mar 11, 2011.

  1. MommaRetta

    MommaRetta Approved members

    May 28, 2008
    We already know what to tell the doctor as far as the telltale signs of his attention problem, lack of focus, hurried handwriting and etc.

    However, if any of you have children with ADD, what other questions do I need to ask the dr when we go and how does it 'play' along with his insulin?

    I need to update my signature.
    He is pumping with a minimed and his insulin is Novolog.

    Any advice, encouragement, ideas will be most appreciated..

  2. DsMom

    DsMom Approved members

    Nov 9, 2010
    Daniel was just diagnosed in December--although I suspected as much for years. The Drs. kind of poo-poohed me because Daniel tended to behave himself in the examining room--but they certainly had no idea of what living with him was like.:p It was not until he started 1st grade and--by chance has a teacher who is the mom of a child with ADHD--that we made progress. His class behavior and schoolwork were awful. We filled out a questionnaire (that has an official name I've forgotten already): the teacher fills one out and so do you. It was scored by the guidance counselor--and of course Daniel scored high. If you haven't already--you might want to ask your guidance counselor or child's teacher about this. It gives you some "proof" when you go into the docs that your child is indeed struggling with this. They will probably also ask about grades and what interventions your child might already have in school. (Daniel is seeing an OT for pencil grip issues and the reading specialist. His teacher also pulls him out for small group work as much as possible.)

    As far as it affecting insulin--do you mean the meds? Daniel is now on a methyphenidate (i.e. Ritalin) patch. He was also on Adderall until a few weeks ago when we switched to the patch. The meds have not affected his BGs at all. I did read of one mom whose son's insulin needs really decreased after medication. The stress of the ADHD had really inflated his BGs--once he was calmer after the meds, his insulin needs went back to what he would have been "normally." However, like I said, that has not been the case for us.

    If your child is not receiving any special interventions at school, I would talk to the teacher and/or guidance counselor about that. As far as the doctor, I was mostly concerned with the side effects of medication. Whether you decide to medicate will determine if you ask those types of questions. I also wanted to know if he would "grow out of it." (Our doc said many kids learn such good coping mechanisms that meds are eventually not needed. But it sounds as if ADHD is still part of their lives.) If you don't want to medicate, perhaps you may want to talk about nutrition (one mom here said to avoid red dye--and I learned that caffeine can be GOOD for kids with ADHD), exercise, or other interventions you can do at home.

    A few very nice people on this forum have helped me out. I hope they'll respond to your post as well. Since Daniel's dx and his starting the meds, his behavior at school has improved dramatically--and he just brought home a math test with an 87% on it!! Woohooo!! The med dosages can take some time to figure out--much like insulin!;) But we've been generally really happy with how Daniel is doing. Best of luck for a calmer household!:)
  3. MommaRetta

    MommaRetta Approved members

    May 28, 2008
    Thank for your help....Very informational!

    His is teacher PHENOMENAL!!! At the parent/teacher conference, she mentioned that form but I can't remember what it is called either. She is going to fill out her portion and then the counselor fills out her portion.
    Stephen isn't a hyper kid so I don't think we're dealing with ADHD as much as we are with ADD. He goes from one thought process to another without blinking an eye. And he has less than desirable grades. And he is a brilliant kiddo. When he takes his time and focuses, he soars through with A's.
    We've known about this for a little while now and have tried to cope with just not having a Dr visit or any medical intervention but it is clearly not working. :(

    I'm anxious to see what other parents have to say.
  4. bibrahim

    bibrahim Approved members

    Jan 31, 2011
    I have and "older sister" to my D child who has adhd. I agree with the other post. The form is called a Conner's form, I think. The school can also do other testing and if you run into difficulty you can say that your child is not getting a free and appropriate education, and they will probably comply. Unfortunately, I had to go that route. My DD was started on meds at age 11 but needed them much sooner. Caffeine does help, and if we forget meds at home or something like that, I let her get a coffee.

    With ADHD/ADD kids also have anxiety due to trying to keep all their thoughts straight (think of many things at once), and dealing with the disorganization, and other social things that are associated. The meds can also make them irritable so some docs treat with an anti-anxiety or anti-depressant at the same time.

    Exercise is also a great help, as is helping your child focus on a hobby or something that the excel at rather than trying to get them to be good at what you want them to be good at.

    Example: DD is a cheerleader, loves it, excels at it. I would prefer she be a good student, but she struggles. She does great at social things, but has a hard time accomplishing dull, boring tasks. I see her working in a field where she interacts with people a lot, not in a task oriented field like accounting. She is also a great public speaker and not afraid to get in front of a crowd. She sang the National Anthem at the last BB game and did awesome. Something I could never do!
  5. mmc51264

    mmc51264 Approved members

    May 2, 2006
    Zach had attention issues before he had D. We knew there were problems at15-18 months (yes, we knew it-it was more not being able to express himself when angry) When he was diagnosed sensory-seeking/low impulse control-a pre ADHD dx, they can't really be dx until 6. He has been on Ritalin for over year and it has made a huge difference. We had to play with dosage, that is the toughest part. Before that he was on Tenex, a non-stimulating attention drug (originally a blood pressure drug), but he started having episodes of low blood pressure, which made him want to "rev" himself up, like he gets when he is low.
    We are having HUGE issues with the school doing the behavior part of the 504 correctly. had to involve the lawyer again this year. You learn to live with the ADHD just like you learn to live with D. We just make sure we give meds after meals because Zach is on the small size, too. We have avoid high fructose corn syrup, red dye, processed food as much as we can, but real life gets in the way sometimes.
    BTW, older brother is on Ritalin (and Prozac for anxiety), most of DH's family has attention issues. Dh's "ritalin" is his Coca-Cola :
    Good Luck!!!!!!
  6. VinceysMom

    VinceysMom Approved members

    Mar 3, 2010
    My son is ADD as well, diagnosed shortly before diabetes dx, but I've always known he was a bit ADD and then when I knew we could possibly have a D dx (long story) I had him evaluated. He has been on meds for over a year, the first one made him "tired" and he started to throw away the pill and didnt tell us! He finally "got caught" and told us why he didnt want to take it and we changed it. It has absolutely no affect on his BGs (YDMV). Based on his ADD and his Diabetes, he qualified for an IEP ( went thru all the testing, etc. ) no "learning disabilities" but based on his health.

    I believe coupled with the medication and the extra help that his wonderful teachers are giving him, he is finally doing better in school. I can definitely see a difference when he doesnt take his meds.... His medication has not altered his personality at all, he is still the same, happy, wonderful, silly kid he was prior to D and ADD meds!

    Good luck to you... sometimes we just had to do what is best for our children, and if its meds, then it's meds... (I tried diet, herbs, etc., and that did not help.)

    Best wishes,
  7. sammysmom

    sammysmom Approved members

    Oct 30, 2005
    My son has a very severe attention deficit but we do not medicate. I do find though that if blood sugars are running wonky, his deficit is more pronounced. Good luck, I hope everything works out for you.

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