This post is long, but please read to the end. I am desperate and I need help and advise what to do. My son is 9 y.o. and has type 1 since 2006 and has pupm since 2009. My ex husband constantly withholding the information about changes he makes to Nick?s insulin intake and how this affects Nick?s daily BG as well as any details about Nick?s diabetes management while he is with my ex.. I am a pediatrician from another country, I had practiced medicine and taught pediatrics, including endocrinology to med students for 8 years and I do feel I have a lot to learn and completed my son?s pump training. My ex didn?t complete his pump training and says he doesn?t need it as he knows everything. I just discovered he doesn?t even know how to administer Glucagon and makes huge mistakes with pump management. My son just has his first seizures this week. It happened first thing in the morning, 3-5 minutes from the time he woke up. He wasn?t given me any sings of being low, nor he complained. I have checked his BG right before it happened and he was 37, I turned around to get his juice box and it is all happened. We have seen lower BG before (even 18) and Nick still was able to walk and talk (he was showing signs of low BG but was responsive). Even with my medical training and experience seeing seizures and doing resuscitations, I am still not OK after reliving this experience. Nick ended up not going to the hospital I was able to bring him back with a Glucagon shot and then with little drips of juice in his mouth until he was able to swallow. When I analyzed what happened and how to prevent it I realize that my ex- is hugely responsible for what happened. The facts: ? On 06/16/2010 Nick had Dr?s appointment at which his Dr. has significantly changed Nick?s basal insulin numbers and asked me to collect the detailed information, including his BG should be checked not less then 8 times/day for next 2 weeks and then report to him how the new basal numbers affected Nick?s BG and if necessary these numbers to be adjusted. ? My ex picked up Nick 2 days later for his half of the summer (I would no be seeing Nick for next 3,5 weeks). I have asked him to collect all this information and give it to me by the end of 2nd week. He refused; he even refused to let Nick to read his BG numbers to me over the phone, saying that if anyone would report those numbers to Nick?s Dr. it would be him. I said OK, please do so. He didn't. ? As I discovered after the seizures he has increased Nick?s basal insulin numbers, he decreased him breakfast and dinner insulin ratio and he decreased BG target. All unauthorized to my knowledge. ? As Nick?s pump shows his BG?s numbers at my ex-s were up and down all the time for 5 weeks, which shows that his basal and/or bolus rations are incorrect and needed to be adjusted. My ex didn?t call to do it. What I have learned additionally after the seizures and follow-up Dr. visit: 1. My ex has told me after the fact that he actually had to lower Nick?s basal insulin to 80% during the day all the time. 2. He also instructed Nick?s camp counselors to give him carb snack during the day without bolusing to prevent Nick from getting low BGs. Apparently Nick was getting carb snacks at the camp without bolusing more then once/ per day and after I seen pump reading from the time with my ex- he still was getting low BGs. According to my ex-, camp counselors called him to discuss it and increase the carb snacks. (at Nick?s pump training I was told ? if child is on the pump he must get bloused (get insulin) for every time he eats anything including snacks. Snacks without a bolus should be given only to correct low BG. 3. My ex- increased Nick?s breakfast carb: insulin ration 4. Nick?s BG numbers at my ex- house are like a rollercoaster, which constant low BGs a lot( few per day) and then getting rebounce all the time. I have not seen my son for 5 weeks, when Nick came to my house I started seeing him getting low BGs at morning and after observing this situation for few days I realized that I need to lower his basal. When I did it, I saw that my ex- increased his basal, so I decreased it to the numbers Nick?s Dr. ordered in June. But I didn?t have a chance to observe Nick on a new basal insulin numbers ordered by his Dr. in June and because my ex- didn?t share any information (1-4 paragraphs) with me I had no idea that even those numbers were too high. Because my ex- always claims that Nick needs less insulin while he is with him, I thought this should do it. My ex- never shared any of it with me or with Nick?s Dr. Well, 2 days after I changed basal numbers Nick had his seizures. If my ex- would share with me (or Nick?s Dr.) all his practices in Cincinnati (see paragraphs 1-4), Nick?s seizures hopefully could be prevented, because I or his Dr. would realize that his basal is too high. After all this even my ex- is still refusing to provide any information or collect any information for Nick?s Dr. and to get a needed training. You need to know the history more here, but to be short, my ex- is a narcissist (per forensic psychological evaluation made for the custody purposes), who likes to play power games with me. He is also very arrogant and doesn?t feel he needs to learn anything. In 2005, during our divorce, he created a spliced audio tape with so called child abuse evidences, where he falsified the events to make me look bad mother. I am worried that his games right now is the same. But even if it is not an attempt to make me look bad, him withholding any information about Nick?s diabetes management and not completeing the training is still bad. He always refused r to share the information about Nick?s diabetes management with me. He has done it in the past (when he was filling prescriptions, not sharing the supplies, when I took it upon myself, moving Nick?s prescription to the pharmacy in Cincinnati (I?m in Columbus) and not letting me know, not taking care of Nick?s flue and high fever while with him, and after Nick self medicated himself, not forthcoming with the truth, etc.), but now when Nick got on the pump it became the madness. Should I call Children?s Services? Would you consider this to be a child enlargement? Would they even listen to me? If you tell me to hire an attorney, I can?t do it. I lost my job 1,5 years ago and can?t find another one, I have applied even for entry retail jobs, but now luck as I my background is out of main stream and my compensation was too high before for an entry jobs. My ex- while making over 100K, doesn?t pay any child support for 3 years, and even after I lost my job, refuses to give a penny. I am on welfare now, thus I am so embarrassed to admit it. Because we have pending custody case in the court, when my ex- moved to Cincinnati in 2007, he filled for custody again, Child Support enforcement agency by law can?t get involved and I have to wait for a Judge?s decision on any child support arrearages. In mean while my son and I financially suffer. I spent any money I had for the custody case which was going for 3 years; we are waiting on Judge?s decision: who gets the custody. I am a primary parent now, Nick sees his dad only every other weekend and during half of the summer, but even with me being on top of his diabetes management this happened, so either way, whoever get?s the custody, I needs to do something about my ex- madness and refusal to complete the training. Because I owe my current attorney so much she doesn?t want to do anything unless I pay and I do not have any money to pay her or to hire a new attorney to help me now and I have no family in US, I am from Ukraine and all my family is there. They can?t help. Legal Aide can?t help either. I already tried. They have to have an open case with children?s services to help. Is JDRF or ADA could help with an attorney? Is anybody knows another source that could help with an attorney? I would appreciate any advice. If someone wants to speak to me directly my email is OKZS2721@gmail.com[/email]. I could also provide my phone number. Please advise what I can do to stop this madness. I feel my son?s life is a toy in my ex- hands. P.S. I can practice any medicine in US due to the laws, I have to go through the multiple steps before I can get my license back, and I can?t even be a nursing assistant due to the laws as well. My experience in US is in medical sales and healthcare recruitment, I have great references from clients such as UPMC and Johns Hopkins but because of the bad economy there are many other looking for medical sales as well and it is very hard to get your foot through the door. So if someone has any leads for the job I would appreciate it as well.