Ok, long story but, my 15mo old DS has Down syndrome and we went to the endocrinologist for routine check up and some blood work indicated that he may have Type 1 diabetes. So, we were sent a Freestyle meter and were told to check his blood sugar one hour after he goes to bed and it should not be above 200. The first night we checked it (October 5th), it was high so we called his doc and he said to check it in the morning before breakfast and two hours after he eats. Both of those reading were fine but then we checked it again before lunch because he was not acting right, and of course it was high. So, then we were sent to the ER and eventually admitted. We spent one night there and while we were there they gave him one dose of insulin. His sugar then went down to 66 so they gave him some juice and it was fine again. Since then his sugar was fine so they sent us home with emergency insulin (without teaching us how to use them yet) and ketone strips. He said that the one dose of insulin can give the body the kick it needs to keep working. So then we were supposed to be checking it nightly and his ketones daily and all has been fine (other than a few that were right above 200 and one that was low). Anyways, last night he was acting strangely snuggly so I took his sugar and it was 308. The doc said it could be caused by stress and to check it when we got home (we were at church). We checked it there and it was 318 so I called again and they just said to keep an eye on him all night and to check it before meals today. All day has been below 200 but it was still higher than usual for him. Tonight, my husband went to check his sugar before we went to bed like usual and it was 345! We are still waiting to check his ketones (his diaper is still dry) but I think his mouth smells a tiny bit like acetone. I of course called the doc again and he said to just do the same as last night. What do you guys think?? I am kind of freaking out (we live an hour from the doc and a good childrens hospital). I know the acetone can be a really bad sign. Do you think my doc is handling this properly? Any advice would be appreciated! Thanks for hanging in there and reading the whole long story!