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One year dx anniversary....

Discussion in 'Parents of Children with Type 1' started by isaiah268m, Jun 1, 2006.

  1. isaiah268m

    isaiah268m Approved members

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    Next week is our daughter's (14 yrs) one year anniversary of her dx. I would like to recognize it in some way....she's done amazingly well adapting to her new life and we want to honor that in a special way. We also want to celebrate the restoration of good health for her. She was so very very sick at this time last year.

    Has anyone else ever done this? Any ideas?
     
  2. Hollyb

    Hollyb Approved members

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    Hi,

    I'm not sure I have any brilliant suggestions of what to do, but I do think it's a lovely idea. Our son will be coming up to 1 year in September, but because he first felt ill at the cottage the beginning of cottage season has been making me remember, too, how sick he was and how quickly the whole thing blew up.

    And -- just by the way -- Aaron is 14 too so if you ever want to commiserate/celebrate the whole "life with teens" aspect of diabetes, feel free to pm me! I'm finding it quite tricky to figure out what just the right amount of involvement/supervision is.
     
  3. EmmasMom

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    We are also coming up on 1 year. I wanted to celebrate big! Not that she has diabetes, but that we have all survived the hellish year! :)

    We are taking a big family trip, (grandparents, aunts & uncles), to Disney World. We leave Sunday and I can't wait! Her dx's has affected our entire family so much, and we all needed a vacation!

    I hope you come up with a fun way to celebrate!
     
  4. zimbie45

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    I think a special day overall is perfect.. whats one thingn they they like the most and just do it.. Specially if its somethign they havent done since dx or never done and really wnats to..
     
  5. isaiah268m

    isaiah268m Approved members

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    Thanks all! Disney World, wow! I'm impressed. When I asked Laura what she wanted to do to celebrate she said, "Have a slurpee!" .....Hah! Maybe if she goes low that day (she hates the no sugar ones)........

    Holly, I'd love to commiserate/celebrate mothering a Type 1 teen....Laura's done well overall, but I'm totally with you on knowing what the right level of involvment should be. She get's pretty frustrated with my nagging at times....My feeling is that if she's consistant in checking her bg and wise about what she eats and how she manages her dosage, then I won't nag......but she's not all the time. We currently have a rule that she can't get on the computer unless she's checked her bg. :) That seems to help. Anyway, pm me or email me any time!

    Thank you all for your input. I'll try to post back with a report of what we decide to do.
     
  6. fulljef

    fulljef Approved members

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    Celebrate

    Our son has been a diabetic since 2001 and we celebrate every year. He knows why... because we almost lost him!! It makes him forget about being diabetic well atleast until I tell him to check!:D

    He looks forward to it now and actually starts talking about it weeks before the day!

    By the way our children will always screw up on following all the rules... there are just toooooo MANY! but I too limit the Xbox... it helps remind him whats important and he doesn't get mad when it happens he almost makes me feel guilty for getting on to him.

    We let him choose anything well within reason of course and he's not asked for the moon! I think it's good for the who family it helps us remember how important everyone is and what we gone through and what we've overcome... 2002 we experienced 2 seizures and when he woke up january 1 2004 he said 1 year and no seizure!

    We all handle more issues then most people my frustration is that it's impossible to communicate how it is and what it's like but when we get around other diabetic families you just look at each other and can immediatley understand and want to cry with them...

    By all means celebrate LIFE!!!

    Jeff
     
  7. macandfi

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    Aug 20, will also be Fi's 5th anv. We don't do much to mark it except be greatful for these five years. We almost lost her and I see each year as a gift.

    Cheers,

    Jenny
    Mom to Mac 10 & Fi almost 6
     
  8. KarenB

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    July 28th is our 13 year anniversary. Lauren doesn't like it to be acknowledged but I am thankful for everday of the last 13 years. We have come close to losing her twice. I just try to let her be the cranky teenager that she is and love her as much as she will let me. Since she was hospitalized in March with DKA she is doing so much better and working part time. I take it one day at a time now.
     
  9. T_Adelaide

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    Wow Amy! Now THAT'S a celebration!!!
    Libby's first anniversary is this July. I'm thinking we'll go out to dinner & give her a present to celebrate. It won't be anything too over the top because her big sister will be turning 18 the same week!
     
  10. Pammers

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    Not to be a party pooper but I just can't imagine celebrating the anniversary of the day that I screamed at and cried at God to TAKE IT BACK!!!!!

    I have to hand it to all you great people who can look at the brighter side of things. Yes, I am happy to have Joey, rather than losing him, but I would really much rather this had never happened. Maybe someday we'll celebrate the anniversary of his getting the pump. :cwds:
     
  11. bkfkmc

    bkfkmc Approved members

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    Pammers-

    We are almost 6 months from diagnosis. While I do wish this is not something that my son must face, we will probably do something to mark the date as it arrives. It will not be a celebration of the disease or diagnosis, but a celebration of our son's success over the past year. My husband and I discussed that we wish he didn't have it, but no kid could have handled it any better than he has. His perspective and attitude has been a such a great learning experience for us. We do have a strong faith in the Lord and know that all things work for His glory. We have grown so much through this major change in our family, and we do want to celebrate this growth. I would not have chosen this for my son, but we will choose to celebrate the blessings through it.
     
  12. isaiah268m

    isaiah268m Approved members

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    Pammers,

    I know how you feel. Part of me continues to scream at God regarding my daughters diagnosis....especially during various crisis we've been through in the past year (in January Laura went complete blind in her left eye within a 2 week time frame, her vision in her right eye was also rapidly deteriorating - all due to "rapidly progressive diabetic cataracts", unheard of by her endo, opthomologist, and corneal specialist in someone so young and so recently diagnosed with diabetes...two eye surgeries later we're on the mend...).

    BUT, we very nearly lost her last year. I watched her dying before my eyes without a clue as to what was happening with her. I was told by an ER nurse to take her home and get her counseling, that she was surely anorexic....I refused and an hour later when her bloodwork came back, our lives - mostly her life, were changed forever. Not a happy moment, not a happy season. I thought I would never be able to learn all there was to learn - but her life depended on it, so I had to - whether I wanted to, whether I thought I could, or not.

    Laura is alive, so we will celebrate her life. She has wonderful medical care available to her, so we will celebrate that care. And she has done remarkably well at adjusting and adapting to a life full of pokes and needles, so we will celebrate the stubborn will God created her with, her desire for health, her desire to care for her body, and her adaptablility. And our celebration isn't limited to her alone. The lives of our entire family changed that day. We will celebrate that we have survived the past year, and will remember how God has carried us through.

    My eyes tear up in remembering that moment when Laura's bg test came back at 834, and her A1C came back at 27.2. The pain is excruciating still. But I still have my daughter. That is worthy of celebrating.
     
  13. Beach bum

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    We are just a week from our 1 year anniversary or diabetes birthday as my daughter called it. We actually will be vacationing again at the place where it all happened. I hate the fact that my daughter has d, and that her sister has the markers for it, but I know there is so much worse out there that she could have. We have a friend who's daughter isn't expected to live past the age of 20 due to an illness that they don't even have a name for, and her other 2 kids have Crohns. So, I don't see it as celebrating getting diabetes, but as a celebration of life. We won't make a big big deal out of it, but since this has impacted our whole family, we are going to do something special that everyone enjoys and just relish the fact that we are all together, happy and healthy and fighting for a cure!
     
    Last edited: Jun 5, 2006

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