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Not happy with CGM

Discussion in 'Continuous Glucose Sensing' started by somanybakers, Feb 22, 2008.

  1. somanybakers

    somanybakers Approved members

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    My son was approved (tricare standard) for a mini link in January. We have been using it ever since. I have had 1 sensor last for 9 days and was pretty pleased with how it performed during that period.

    Every other time other than that there have been problems. So many i don't care to list them. I have seen all the same problems listed in many posts on this board.

    Honestly, im a little mad about the whole thing. It seemed like such a great Hopeful thing and now iam more discouraged then ever. I feel like this is just one big test. They were in too big of a hurry to get it out there that some major issues had not been thought out. The fact that i now have to sleep with a baby monitor next to my bed to hear the thing irks me to no end.

    Now I am hearing that the transmitter is not suposed t really last more than a year, and the warrenty is a year as well!?!?! That seems like a crime! I can't afford to pay for another transmitter if i had known that i would not have gotten it. I already pay 200.00 for pump supplies and 200.00 for sensors every 3 months. i know many people pay more, I just didnt know i was signing up to replace the transmitter so im mad.

    The worst part is that i really thought it was a great thing and im feeling like an idiot for not being a bit more critical and then passing that hope on to my boy. i feel like a fool.

    Sorry to be a downer. I needed to vent. Nancy :cwds:
     
  2. Nancy in VA

    Nancy in VA Approved members

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    Hi Nancy.

    We only did a 1 week trial of the CGMS but I have to tell you, the baby monitor was a big deal for me too. I heard so many sounds that I wasn't used to hearing - I hardly got any sleep during that time.

    Sorry its so tough!

    PS I homeschool too!
     
  3. rickst29

    rickst29 Approved members

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    Minilink Transmitter ventage.

    Although it's HEAVEN compared to the old MM wired Transmitter, Minilink is still a management nightmare when compared to the Dexcom Transmitters (old and new). I agree with your ventage! And it costs way too much $$$$ when replacement becomes necessary. But, if you want it to last longer, you can porbably double it's life by recharging it more often. The batteries in these machines (and the batteries in laptop PCs, too) die young if you run them down too far too often. Make sure that it's FULLY charged up if you wait until after day 6. If you wnat to really make it last, charge it even more often (like, fully re-charged after ever 3rd day.)

    But I also imagine that Tricare will cover a necessary replacement; CMS did create an HCPSC code for it, and MM documents that it does have a limited lifespan. Even better, I imagine that before two years has passed and it really dies, MM will have a superior replacement available.

    BTW, my last "6 month" $250 Dexcom Transmitter lasted for 19 months 24x7, and they don't get recharged. Ever.
     
  4. somanybakers

    somanybakers Approved members

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    Thanks for the tip

    Thanks for the battery tip. This morning we have decided to give it one more try. I will try the sensor in his ab. instead of his arm. Maybe we will reduce the bleeding and ot go through 2 or 3 sensors before we get a good one. If it doesn't work this time I'm bagging it. The stress of having one more thing to deal with isn't worth the little data it provides-- IMO. SHould we get it to function in a manner that is worth the effort, I will be sure to charge every 3 days or so.

    I just looked at Dex com. Looks nice, I'm glad you are having good luck with it! :)
     
  5. somanybakers

    somanybakers Approved members

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    Not for us

    After thinking longer we decided to bag it. Maybe in half a year or so we will try again. N
     
  6. PixieStix

    PixieStix Approved members

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    Hi Nancy,

    I am wondering if you might get some assistance from your Minimed rep/product trainer to troubleshoot what is not working well for you? You can also call the MM helpline and request assistance from a sensor specialist, of course it is in MM's interest to have successful and satisfied clients so they really can be helpful if you get the right person on the line.

    There is a bit of a learning curve to really get the most out of the CGMS, but I have found the benefits of my son wearing the CGMS to far outweigh the cons and have managed to keep his BG levels very tight w/ the added help of the sensors to catch the lows earlier. While the transmitter's warranty is relatively short, I have always found MM's customer service to be very supportive and have received a few replacement transmitters just on the outside chance it was the actual device vs "user error". We got the first device back in Oct 06, have had a few replacements during the warranty period and even beyond w/o charge and have worn 24/7 since day 1...so have gotten more than the projected lifespan out of it.
     
  7. funnygrl

    funnygrl Approved members

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    Yeah, I regret ever bothering with it too.
     
  8. rickst29

    rickst29 Approved members

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    I know a couple of other people...

    who have tried EVERYTHING, and are quite capable of handling DME (heck, one of 'em's a nurse :eek:) and never got good results.

    This seems to happen more often with MM than Dex, I was never able to get even 3 days from a MM Sensor before they failed. (I tried about a week). But some people just can't get could results, and it's NOT because they're doing something wrong. And so, I applaud your hard-nosed decision. It takes guts in the face of so many "fans" such as myself, you've done good! :)
     
  9. jendean

    jendean Approved members

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    There are all sorts of problems with all sorts of products. I applaud you too. None of these products are perfect. I think we tend to lean toward "newest treatment is best" sometimes, and forget that lots of people do perfectly well and are doing it the old fashioned way.
    Good for you too, And there is no shame in having tried something and decided it is not for you!

    Though we are still fighting insurance for cbgm, I do see it as a stepping stone. There will be newer, and smaller, and better ones to come! Someday we will all look back and think of how rudimentary our methods now were, and how BIG the cbgms were. :D
     
  10. hrermgr

    hrermgr Approved members

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    Overall, we've been very pleased with the minilink. I will admit, though, that the first couple of months were a bit rough and we did talk about not using it anymore. We found the pump was easier to learn. But the more we use the minilink, the better we feel about it and less issues that come up. When they do, we call our Medtronic rep and she helps us out.

    We view it as another tool in our D toolbox--not the absolute answer. Good luck with your decision!
     
  11. thebestnest5

    thebestnest5 Approved members

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    I am so sorry that you had such a frustrating experience.

    We started the Minilink for Liv in June '07. It has been awesome! I can't imagine management without it. Her basals have been so much easier to set and we can "see" what certain foods actually do to her BG. It has given her much more freedom to go places and do things that she would normally do--I should say that it's made it easier for her.

    I am so thankful that she has the Minilink, even though it's not perfect and it has frustrating times. I just think of my brother who was dx'd in the early 70's with no BG meter! Then when the Endo sent him home with his first meter in the 80's (my parents could not afford strips for it) and the "lancet" was a tiny razor blade- it was a *slice* and not a *poke*. A blood-letting device!:eek: Then you had to get a large hanging drop of blood and put in the strip, wait, wipe of the blood, and then compare the colors to the bottle and see what *range* your BG was in. It makes the Minilink sound heavenly to be able to see a trend...even with the honking needle. I bet the Minilink is more accurate then the machine my brother used.:cwds:
     

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