Discussion in 'Parents of Children with Type 1' started by Mcweedy, Mar 8, 2012.
Ugh...very frustrating. I am so sorry!
That seems a bit rubbish! I know nothing about toddlers with D and not much about D to be honest - my daughter was diagnosed on 15th Feb, but leaving your daughter to run that high doesn't seem right to me. Have you got a dedicated diabetes pediatric nurse that you can contact? In our area we have one specific nurse and if she's off duty there is a team of nurses who specialise in pediatric conditions who we can contact. All of them are happy to advise on insulin adjustments. We also have a really nice consultant. Perhaps if you aren't happy you should push for a consultant/clinic appointment sooner rather than later.
I really feel for you, Jasmine is 7 and that's hard enough - I can't imagine how hard it must be to manage a newly diagnosed toddler and all the other toddler problems. Keep going - I'm sure you'll get there.
The only advantage to NPH is you only do a couple of shots a day. Most call it an intermediate insulin as it doesn't last 24 hours.
It takes 3-4 hours to become fully active when a snack and a meal are needed.
I would ask about other insulins -- like Lantus or Levemir for the long acting which has a much reduced peak for the basal and Humalog or Novalog for meals. This insulin regime is easier to determine when you can figure out when it kicks in.
I agree with Amy! We were on NPH for 6 months and hated it. with lantus, I could feed my daughter instead of feeding the insulin. With that kind of regimen, you don't have to worry as much about what or when she eats. Lantus and levemir have little to no peak, and lasts 24 hours for most people. The long acting is given once a day, then you count the carbs she eats and give her a shot of a short acting like novalog to cover the food. The short acting is also used to correct highs.
I hope you can have a convo with your CDE/endo soon about trying a different regimen.
Until my son got on the pump, we used diluted insulin (novolog, the short acting insulin). He needed so little insulin and was very sensitive to it, that it really helped. His was diluted 10:1. So when we needed to give him .3 units we would draw up 3 units on the syringe.
He was only on diluted insulin for a couple of months til we got a pump. The main reason we went to the pump was the ability to give small boluses and corrections. Now on the pump we can give corrections of 0.05 units.
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