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New T1D

Discussion in 'Introductions' started by AliciaM, Jul 23, 2013.

  1. AliciaM

    AliciaM Approved members

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    Hey all :)

    Somewhat new to Diabetes and obviously new here:)

    Around April I noticed I was tired all the time, I started peeing wayyyyy more than usual, was always thirsty and even when I drank I couldn't satisfy the thirst either. I didn't really lose much weight since I have endometriosis and it makes my weight fluctuate a bit. I was in nursing (didn't finish the program) and knew the signs of diabetes already so was sent for bloodwork and came back not too bad a1c of 5.8 but fbg was high and repeated and high again. Dr thought I may just have a urinary infection but came back negative and she dismissed my high bg's as a fluke. Went to another dr and he said no way took family history and more bloodwork and referred me to an endo and put me on insulin.

    I must say the insulin helped immensely! Omg I wasn't tired anymore, wasn't peeing all the time. It's been great! I do have an issue that I can't really feel lows sometimes so I'm looking into getting the dexcom when it comes out.
    Still waiting to see the endo because we are extremely backlogged in my city for "specialists".

    Anyway glad to be apart of the forums :)
     
  2. Mommy For Life

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    Glad you found CWD....but I am so sorry for your diagnosis. My daughter was super tired before she was diagnosed. She was also HUNGRY! She can usually feel her lows....but sometimes feels low when she's actually high.
    I hope you are able to get into an endo soon!
     
  3. Helenmomofsporty13yearold

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    Sorry about the diagnosis, but glad you are feeling better. I have not heard anything reassuring about Dexcom coming to Canada anytime soon, so if you think you need a CGMS, you might consider the Enlite. It has great accuracy when used properly. The Ped Endos at Mac that were involved in its study thought it was terrific. Often when DD is low, the first thing she feels is hungry, then shaky.

    If you like to be active and are anywhere near the GTA, I recommend you check out www.connectedinmotion.ca Very, very cool group.

    I got a lot of info and support from the Canadian Diabetes Association at the beginning. They are very knowledgeable and have much more time to spend with you than the Endos and CDE's.
     
  4. Sarah Maddie's Mom

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    Hi.
    You're obviously an adult, do you mind if I ask what insulin they put you on with a 5.8 A1c?

    Oh, and the Dex g4, the newest, is long out. Won't be anything new for a while.
     
  5. cdninct

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    Welcome!

    This is a great forum to come to for information and support, especially if you are being medically "underserved" at the moment!

    I'm from Ontario, too, but we are living in the US. We'll be back next year, though!

    It's not out yet in Canada!
     
  6. Sarah Maddie's Mom

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    Ahhh, missed that. Thanks for the correction ;)
     
  7. cdninct

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    It was actually the OP's comment that made me look at where she was from! :D
     
  8. AliciaM

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    Actually the dexcom canada rep emailed me back today actually because I emailed dexcom USA asking and the dexcom G4 well be launched officially in September along with the Animas vibe I'm pretty sure. Dexcom USA guy who emailed said they are partnered with animas and that an animas rep would also email me along with the dexcom canada rep. Canada rep emailed me shortly after but no animas email yet.

    I thought the enlite could only be used with the medtronic pump?

    and thanks for the link!
     
  9. AliciaM

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    Oh yes I had the hunger thing too! I was literally always hungry like an hour after eating which has NEVER happened to me before. I'm usually well satisfied with my meals and am not a huge eater so the constant hunger and snacking didn't make any sense to me. That was one symptom I had not heard of actually.
     
  10. AliciaM

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    Well my dr thinks that my a1c is a false a1c since I work out a lot and am a competitive cheerleader and the fact I don't always feel lows that maybe I get a lot more lows that I catch on my meter and or a combination of me having b12 deficiency. She said she read a study once that said certain vitamin deficiencies (including b12) can skew certain blood tests and a1c was mentioned as one of the blood tests that may not be accurate.

    And since my basals haven't been too bad they are up and down my post meal bg's are really high even like 3-4 hours after eating a lot of the time so for now I'm just on apidra which has been working well for bolus and then if I'm high in b/w meals or snacking like in the morning I just do a correction shot to bring it down or if its before a meal and a high I just add a bit of insulin to cover my food and me being high. I dunno if I worded that right sorry lol This method kind of stinks though because I end up doing a lot of shots which I'm not fond of but I do it anyway cuz I feel pretty crappy when I'm high.

    Also they think its a slow onset type 1. I guess in theory its a type 1.5 but apparently that term isn't really used much and usually just called type 1 I was told.
     
  11. AliciaM

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    Nice! I used to live in maryland and there's something to be said about having to pay for insurance vs "free" health care. I think OHIP is great if you have NO health problems and don't require to see specialists or anything. But with being deaf and someone who does see specialists it really stinks to have these wait times. Even for GP's you end up having to go to a walk in until some clinic starts seeing new patients which doesn't happen very often. I was very fortunate to find a GP that is somewhat close ish to my house. My original endo appt was not until next year but my grandfathers endo which just so happens to be working from my GP's office for awhile since the endo in my office is on sick leave is willing to take me even though she isn't taking new patients in her practice right now. So I will get an appt in a few weeks to a month instead of several months :)
     
  12. Sarah Maddie's Mom

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    I'm confused by much of the above. Not sure what you mean by your "basals" ... are you pumping with apidra? But either way, if you are high a few hours after meals then you should probably be working with your endo - there's got to be a better was to manage a newly dx'd person with an A1c that low, than to have them on MDI and apidra - it just doesn't seem right.

    Hope you get a clearer dx and a better treatment plan.;)
     
    Last edited: Jul 24, 2013
  13. AliciaM

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    I'm in canada and in my city it's a long wait to see an endo. I see her in a few weeks to a month. And my basal i meant background insulin and my bg's not after meals so fasting or random bg checks. Also like I said my dr thinks the a1c is a false a1c. I'm much happier using insulin than watching my carbs and exercising a ridiculous amount of times a day to try and lower my bg with no results what so ever. I obviously still watch my carbs but even when I was cutting down my carbs considerably I was still high no matter what I really tried and I already work out enough as it is.
     
  14. Sarah Maddie's Mom

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    No, I wasn't suggesting that you should not be on insulin, I'm just proposing that the regimen you describe is sort of unusual, but then if you are talking "background" insulin then I obviously don't have the whole picture.

    If it's working, then it's working.
     
  15. C6H12O6

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    I don't think the animas vibe is going to be available in that time frame bc the animas vibe would need health Canada approval as a separate device

    Medtronic has a standalone cgms called the guardian. So you do not need a Medtronic pump to use the sensors
     
  16. AliciaM

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    hmm ya I was searching and couldn't find anything on the health canada website about the vibe. So not sure what the dexcom guy was talking about when he said animas would also contact me.

    And ook I didn't know the cgm from medtronic could be seperate, good to know. I still would rather the dexcom... I'm a competitive cheerleader and I think the dexcom would stick and stay on much better than the medtronic cgm. My friend who's also t1 and a cheerleader said the medtronic was alright but in the end after the trial she gave it back.

    I didn't get any sleep last night so if anything in this post doesn't make sense lol sorry.
     
  17. C6H12O6

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    i think sarah means that starting with only lantus once a day or possibly even levemir once or twice a day might make sense more so than apidra with each meal, and no basal.

    Most people here started on both basal and bolus insulin, but there are a few that were dx'd early through trial net who started with just basal. I think it is more common to start with just basal insulin in those cases

    it might be helpful to post you ratios and insulin types in your signature. are you on basal insulin at all ?
     
    Last edited: Jul 26, 2013
  18. AliciaM

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    I asked about that and she said she wanted the endo to Rx me the basal but the bolus was what she was going to start me on first? I dunno why. I thought the basal would make more sense too though. Have no idea why she started the other way around...and ok I'll update my signature
     
  19. Sarah Maddie's Mom

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    What sort of I:C ratio did they give you? How's that working out? Are you covering all your carbs or just some? Do you wake-up high? Given all the exercise you do how are you managing the bolus peak?

    It sounds rather hard to manage - perhaps not?
     
  20. AliciaM

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    Met with the CDE and she said do 1:20 sometimes I find that it works well sometimes not. I count my carbs and I do wake up high some of the time and sometimes I'm ok but I am high almost always before bed though and I find it very hard to control my bg while at practice (I'm a competitive cheerleader). Also I have no idea on how to find out the "peak time" on insulin. The CDE said peaks at an hour-hour and a half and then gone 5-6 hours max with apidra but most I've talked to said apidra usually peaks within the hour and is gone in 2-3 hours? I find its gone in around 2 ish sometimes a bit more cuz I'll check at 2 hours my bg is fine and then sometimes I do a check at 3-4 hours after meals just to see and I'm high again. I haven't been doing my usual workouts because I dunno if I should? I've had a few times where I've gone low and only have caught it on my meter but didn't feel low which I found pretty unsettling.. So I dunno if I should alter my workout times ..I signed up for a fitness boot camp which is outdoors and plan to check a lot cuz I have no idea what my bg will be like...
     

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