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Need help with cgms/sensors please

Discussion in 'Parents of Children with Type 1' started by SPS, May 10, 2011.

  1. SPS

    SPS Approved members

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    Mar 10, 2011
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    We are in the UK and have just asked our Doctor to apply for an insulin pump with integrated CGMs for our daughter Georgia age 10 due to her hypo unawareness. We wondered if anyone could help us?

    He has asked us for the following info:-

    Re CGMS ? I had brief discuss with children?s commissioner, Swindon PCT on 4th May when I met her in regional meeting. She has asked me to get more details about this. PCT would like to know the evidence, current or best practise in this field (what other centres are doing) and costs.

    I will have to work on these points before I could submit any request. This does mean extra time to get the relevant information from other centres managing children with diabetes.

    Meanwhile if you have points (parents? own perspective, other family?s experiences, etc) to support CGMS for Georgia then please send all information to me via post (hard copy). This might help us to make a strong case for the CGMS


    If anyone could let us know any positive experiences or have any data to share it would be very much appreciated.

    Email spselley@hotmail.com
     
  2. kiwiliz

    kiwiliz Approved members

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    Some studies showing improved control:

    http://pediatrics.aappublications.org/content/111/5/933.abstract
    http://pediatrics.aappublications.org/content/107/2/222.abstract
    http://www.sciencedirect.com/scienc...b230f57198f36aaa7a2992e4279b9a00&searchtype=a

    Results from the above one were:
    . HbA1c (m ? SD) decreased from 10.3 ? 2.1% to 8.75 ? 1.06%

    http://www.diabetesresearchclinicalpractice.com/article/S0168-8227(99)00113-8/abstract

    On a personal level we were able to safely reduce HbA1c by over a full point.

    I hope you succeed. Please post back how you get on.
     
  3. Darryl

    Darryl Approved members

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    This is not scientific like the studies posted above, but may be helpful:
    http://forums.childrenwithdiabetes.com/showthread.php?t=22047

    From our experience (4+ years), using the CGM is like walking around with your eyes open vs. groping around in the dark. When BG is going high or low, you usually know it in plenty of time to steer it back into range before it gets to be a problem. You make a lot of small adjustments instead of occaisional larger corrections. This is better for the body, and also makes it possible to keep BG in the nondiabetic range on days when basal needs are low. We've maintained A1C's under 6% using the CGM since 2007 without any bad hypos.
     
  4. SPS

    SPS Approved members

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    Thank you both for you responses. Really appreciated :)

    I have printed out the articles.

    If anyone else could help with positive comments/print outs of readings/personal experiences etc... We need as much info as possible to present to the PCT.

    It is very hard to get funding here :(

    Thank you

    Robyn
     
  5. emm142

    emm142 Approved members

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    Just about to send you an email. Hopefully it will be of some help, getting funding over here is tough.
     
  6. SPS

    SPS Approved members

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    Thank you Emma - you are amazing!!!:) x
     

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