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need help re:possible celiac

Discussion in 'Parents of Children with Type 1' started by sweetkid4, Feb 24, 2013.

  1. sweetkid4

    sweetkid4 Approved members

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    I am calling DS's endo tomorrow to ask that he be tested for celiac.
    Need pointers on what to ask/request ( in same cases demand, lol) be done.


    Short background~

    For over a year now he has had on and off severe abdominal pain accompanied by low bgs, nausea, loss of appetite. We were told by his ped. ( over a year ago) that it was constipation. He has had issues with that since he was a baby, so I brushed my over-protective tendencies under the rug and followed the dr.'s orders of Miralax. We use Miralax every day, he has no constipation...yet these issues are still here ~ NOW accompanied with fuzzy mindedness ( or cluttered brain as he calls it :rolleyes:) and joint pain.

    I am becoming very worried...
     
  2. joy orz

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  3. sweetkid4

    sweetkid4 Approved members

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    Thank you so much :cwds:
     
  4. champ81

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    Our daughter who is 6 was tested last year for celiac. Her levels were higher then normal from her yearly bloodwork. We were sent to a specialist who then did an endoscopy to see for sure if she had celiac or not. Luckily everything was normal...
     
  5. sweetkid4

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    glad to hear that everything was normal:cwds: We were able to get an appt with a gastro specialist for tomorrow!! Maybe finally get some answers? Wish us luck :)
     
  6. champ81

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    Good luck.. I was actually nervous at first but the procedure was quick and simple for Kacey... They gave her the drug called Versid not sure if you ever heard of it but it relaxes them. It is a miracle drug in my mind.. As soon as she was finished was check her blood sugar often while she slept..

    Once you have the endoscopy then you will have some definite answers...
     
  7. Dad of Daughters

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    Good luck Wendy. A combination of blood tests will be done by your GI. In the right combination these can be very definitive for finding the liklihood of CD. If these are "positive", the endoscopy follows in most cases. Regardless of the outcome, I just hope you get answers. Our DD was asymptomatic before CD dx, so I don't know what it's like to go through what you are right now. However, a blood screen came back positive and endoscopy verified that damage was starting to be done. Since going gluten free, the blood antibody levels have normalized, making us CD free for all intents and purposes, just have to stay gluten free. It's not easy, but none of the reasons for us being a part of the CWD community are. You will get through it either way and will continue taking great care of your child. Take care and let us know if we can help!
     
  8. sweetkid4

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    Thank you so much for this info and sharing :)
    Our visit was pretty basic and the lab tests were ordered...just playing the waitin game now. Like you said, no matter the outcome we will have answers. The first thing the gastro said popped into his mind, esp with the T1 was CD. Will let ya know what I found out......Thank you all for support and wisdom:cwds::cwds:
     

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