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Need advice convincing Endo Team on Pump

Discussion in 'Parents of Children with Type 1' started by Abbysmom, Jan 13, 2010.

  1. Abbysmom

    Abbysmom Approved members

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    Here's the background.

    We are in Indianapolis and love Riley Hospital. I fully believe they saved my daughters life when we arrived by ambulance in DKA. However, they have
    this rule that families wait 1 year from dx for a pump.

    I am no longer willing to do that. I have been Abby's human pump now for 6 months and am exhausted but I refuse to feed her only 3 meals a day and deny her snacks. We have tried snacking on MDI and she is simply to small to tolerate any food between meals without insulin. The only way I can control her sugar is to give sometimes 8 or more shots a day. Some as small as a 1/4u.

    We have a follow up visit next week and I need advice on how to convince the Endo Team on the pump.

    What I know is I will have to get an authorization from the doctor for my insurance and that will require convincing the doctor who oversees the endo fellow who works with us. I have only met him once.

    I did contact minimed and am hoping to find a local salesman so my husband can feel and touch a pump and then be a better advocate. He is really hands on that way.

    I am just unsure who to work with. Do I shop on my own or wait for the doctor to come around?
     
    Last edited: Jan 13, 2010
  2. tiffanie1717

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    It's your child. Apart from insurance not paying for a pump, I don't think that anyone should decide for you when you are ready to pump. (Not that insurance should, but they do and won't pay so it's harder to argue with them.) I say that if they won't accommodate you, that you should find an endo who will. There are many other great endos out there.
     
  3. TripleThreat

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    I think that 1 year rule is stupid. there are 2 here who started the pump on day of diagnosis, and 2 here that started years after diagnosis(wish it was sooner) I think the endo works for you, and if you go in there educated about pumps pros and cons then you should be able to get one. insurance companies sometimes have a 6months wait.
    good luck hope to hear that you are starting a pump soon
     
  4. Gracie'sMom

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    Our endo had a 6 month rule, we were at 4 months and so ready for a pump and I asked them why they had the rule. It was just so you could be comfortable with the carb counting and the MDI first, in the event that the pump stopped working, which we were. So they approved it. I think 1 year is a long time and you are sticking so many needles into your child right now, it would be a blessing. I would push it, or change endo's if you have to. They need to look at what is best for your child, not what silly rule they have decided on . . .
     
  5. Michelle (IL)

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    I know some insurances have a 6 month rule. I don't know about yours.

    I do know you need an Endo that will work with you. We go to St. Vincent/Peyton Manning in Indy. Our Endo was very pro pump and was a tremendous help in the whole process. My son started pumping just before his 6mo. had passed. We love it!

    Just be persistant in your wishes. I would also ask if there are ever exceptions to this 1 yr. rule. I wish you Good Luck ;).
     
  6. denise3099

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    You're expecting a fight, but it might go easier than you think. You simply walk in a say, "We've decided that we want a pump and have decided against waiting a year. Do you have any we can see?" And then take it from there. If they say, No you have to wait a year, you say, "Thanks, but no. we are ready now and would like to get started as soon as possible." Be nice but firm. If they are still like no, then ask to speak with the head doctor. Don't ask for "approval," just say you want it now and what do they need you to do.
     
  7. Abbysmom

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    Thank You Everyone

    I appreciate the boost of confidence and am loving talking to people who know what we go though everyday.

    I heard back form Animas as well and hopefully we will be able to meet up with a salesperson very soon.

    I'm going to contact the doctor who handles Abby's care and let her know that whoever needs to make the final decision needs to be available at our follow up visit next week or we'd like to reschedule. We will see what happens.

    I know St. Vincents is very pump friendly but we have gotten rather attached to Riley, Abby really likes going there, and they have spent extensive time helping us get and keep insurance coverage. This is honestly
    the only issue I have had. However, I am not beyond switching. Not allowing
    me to choose how my child is cared for is a HUGE deal.
     
  8. StillMamamia

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    http://www.childrenwithdiabetes.com/pumps/links.htm

    If you scroll on the above link, all the way down, there are numerous studies about pumping. Maybe you can print out a few to show your endo?? Not that you should have to.;)

    Ultimately, it's your decision.
     
  9. Mom2rh

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    Our endo's office has a list of things that have to be accomplished before a pump is prescribed...I got that list and had it completed and got Ryan a pump before a year. I would ask what the protocol is...to see if they have established a consistent plan for every patient. If they don't have that I would arm myself with log books of BG, read the book Pumping Insulin, set up a saline trial of the pump, and go in and advocate for my child. If they will not allow it, I'd find another doctor.
     
  10. Denise

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    Sent you a pm...
     
  11. Michelle (IL)

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    I in no way meant to imply that you needed to switch. I just mentioned our practice because they are in the same city. I wish you and Abby luck in getting started on a pump. Stick to your "guns" and convince your Endo. You won't be sorry :).
     
  12. RosemaryCinNJ

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    You are ready for a pump and so is your child..find an endo willing to respect your wishes and work with you...thats what I had to do...and we are now pumping with MiniMed and I love it and so does my daughter (whos almost 4...dx at 13 mos)
     
  13. Abbysmom

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    Thanks

    This makes a lot of sense. Thanks for the advice.
     
  14. Abbysmom

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    I didn't take it that way.

    I know you weren't saying I need to switch. I have just been thinking alot about weather or not it would be worth it. There are times of the day it is and times it isn't.
     
  15. sam1nat2

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    Ask the rep for help, they will most likely help you in working with the drs.

    As for switching, no reason you can't switch and if you don't like it switch back:cool: Really, drs are just too busy to worry about why a certain patient hasn't been in or why they left.
    We were very hesitant to leave our practice and when we did---no call to "remind" me that is was time for apt---they didn't even notice we left and I'm sure if we made an apt with them, they wouldn't realize how long it had been until they checked the chart.
     

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