- advertisement -

My daughter may have JRA is this associated with diabetes?

Discussion in 'Parents Off Topic' started by BCmom, Feb 15, 2012.

  1. BCmom

    BCmom Approved members

    Joined:
    Mar 31, 2009
    Messages:
    731
    Help.

    The biopsies are in from her surgeries. They are rhemeutoid arthritis nodules. She has no other symptoms. She is being referred to a rheumatologist.

    I am in shock.:(
     
  2. Arctic Stamp Queen

    Arctic Stamp Queen Approved members

    Joined:
    Jan 18, 2012
    Messages:
    33
    I'm so sorry

    I just wanted to say how sorry I am and that I am thinking of you. I'm glad they found out what it is and I hope and pray for excellent doctors for her treatment. Heartfelt hugs from Alaska.
     
  3. Brenda

    Brenda Junior Member

    Joined:
    Oct 19, 2005
    Messages:
    683
    Only in that it is believed to be an autoimmune illness, like type 1 diabetes.
     
  4. Becky Stevens mom

    Becky Stevens mom Approved members

    Joined:
    Oct 14, 2008
    Messages:
    8,719
    I am so sorry:( Sending many prayers and positive thoughts
     
  5. sisterbeth43

    sisterbeth43 Approved members

    Joined:
    Oct 14, 2007
    Messages:
    2,908
    So sorry to hear this news. Will pray for all of you.
     
  6. Brensdad

    Brensdad Approved members

    Joined:
    Dec 27, 2005
    Messages:
    2,383
    Her rheumatologist will likely order tests to look at her ANA to confirm the diagnosis and try to narrow down the type of JRA your daughter might have. The good news is that one type found in girls often resolves in youth. I don't want to sugarcoat it, but that is a possibility.

    For now, just take a deep breath and prepare to be patient. It's a complicated diagnosis that can take a little time to get figured out, and PM me if you have any questions I can help you with.
     
  7. TheFormerLantusFiend

    TheFormerLantusFiend Approved members

    Joined:
    Sep 10, 2006
    Messages:
    4,925
    First off, I hope if it is JRA, it goes into remission.

    As to your question of association, here's what I found:

    In Finland, over thirty years there were 82 cases of kids having Juvenile Rheumatoid Arthritis and Type 1 Diabetes. That's 82 out of about 17,000 kids with diabetes. Since prevalence of JRA is supposed to be roughly 6 per 10,000, diabetes is very likely a risk factor, although obviously it's still rare in diabetic kids. JIA = JRA.
    http://www.ncbi.nlm.nih.gov/pubmed/22174196
    There are two members on here that I am aware of who have previously posted about a child with both T1 and JRA- emmasmom and brensdad,

    Regular rheumatoid arthritis occurs at a higher rate in family members of kids with diabetes, and probably in the diabetics themselves- the risk ratio is between 2 and 5. And rheumatoid arthritis can present in teenagers; according to my mother's medical books (which are way out of date) 5% of cases of rheumatoid arthritis are diagnosed in people under age 18.
    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2768389
     
  8. BCmom

    BCmom Approved members

    Joined:
    Mar 31, 2009
    Messages:
    731
    Thank-you, Jonah for the info.
    Thank-you everyone .

    Brensdad, I am PMing you.
     
  9. denise3099

    denise3099 Approved members

    Joined:
    Jul 31, 2009
    Messages:
    1,757
    Good grief!! What next?! Haven't these poor kids been through enough. Just like I hate to hear about another kid being dx with D, I just hate it when our D family is hit with yet another illness. I am so sorry you are going through this.

    My daughter has been dealing with different health issues and I know how that sucks. I kept thinking, "But she can't have a suspicious spot on her MRI--she already has D." Like illness and misery and crises are supposed to be spread out and we already got our share. :rolleyes:

    Good luck to you and your baby. Deep breath. We can do this too. :cwds:
     
  10. Flutterby

    Flutterby Approved members

    Joined:
    Nov 11, 2006
    Messages:
    14,623
    So sorry to hear this.. what did they look like?
     
  11. Connie(BC)Type 1

    Connie(BC)Type 1 Approved members

    Joined:
    Nov 11, 2005
    Messages:
    3,388
    So sorry to read this!
     
  12. BCmom

    BCmom Approved members

    Joined:
    Mar 31, 2009
    Messages:
    731
    Flutterby, do you mean her lumps?

    She had one on the top of her foot and the other on the other foot below her ankle. And they were growing. Which was alarming itself. So she had a MRI, and they couldn't figure out what it was they were looking at (or maybe they suspected but wanted it confirmed...) but they knew it wasn't cancer. So they wanted them removed so they could tell what they were...

    So i just figured it was some benign something or other.
     
  13. Flutterby

    Flutterby Approved members

    Joined:
    Nov 11, 2006
    Messages:
    14,623

    I was curious because my DD has lumps on her foot, but they are tiny. She dropped her pump on her foot about 2 years ago, these appeared after that, but they haven't gone away, they want her to see a specialist now.
     
  14. DsMom

    DsMom Approved members

    Joined:
    Nov 9, 2010
    Messages:
    1,700
    Wishing strength and love for you and your family in the days ahead. How is your daughter feeling (physically)?
     
  15. denise3099

    denise3099 Approved members

    Joined:
    Jul 31, 2009
    Messages:
    1,757
    Btw, don't forget to be a pest when it comes to your kid! I'm talking to everybody reading this. when you aren't sure what's wrong and your doc wants a test and the ins denies it, keep calling, keep appeallin, keep sending more info and more test results.

    DD was denies like 6 times for an MR Spectroscopy. I kept appealling and having other test--Pet scan, MRI, MR perfusion. I kept calling then back and they'd say, "Yeah, that was denied." I'd say, "Yeah that's why I'm calling--to appeal." Like 6 times. Eventually when they asked for more info, I faxed about 35 pages of test results along with my own timeline of events. FINALLY, they approved it.

    You have nothing to lose so you may as well appeal. If you don't get the answer you want, ask somebody else. Don't take no for an answer when it comes to your kids. Ppl dealing with chronic illness have to keep this in mind b/c eventaully the ins will want to stop shelling out bucks. Keep at it.
     
  16. BCmom

    BCmom Approved members

    Joined:
    Mar 31, 2009
    Messages:
    731
    Is there more than one lump?

    Emmas two lumps started out small and then started growing. Of course thats when I thought.. OHno.:( So had it checked out by her pediatric orthopedic specialist.. she has had foot braces because of bunions.
    He wanted it checked out right away, so it was obviously nothing to do with the bunions. The ultrasound was inconclusive. So was the MIR.

    He did ask her if she had any other lumps... so maybe he was making an educated guess? He did say it wasn't cancer but wanted them removed to find out what exactly they were... and the rest you know.

    She isn't doing great.

    She is upset. She knows a girl a bit older than her in 4H that has a severe form of JRA, and she sees how she walks, and the pain she has to deal with.. so of course she is worried.

    I am trying to reassure her not everone has it that bad.
     
  17. redheadmom

    redheadmom Approved members

    Joined:
    Mar 26, 2010
    Messages:
    104
    I actually got the JRA first (diagnosed at age 3), and then the diabetes (type 1) as an adult. The doctors explained that the autoimmune process that attacks my joints also was attacking my pancreas. So they are related as far as autoimmunity goes.

    But I want to reassure you that if it is JRA, they have wonderful disease modifying drugs now that may even put her into remission. When I was diagnosed, they pretty much just had aspirin. And even with persistent disease (I never went into remission) and joint damage, I have still gone on to get a masters degree, to marry, and to have three healthy children whom I homeschool. Every day is a challenge, certainly, but these diseases have not stopped me from accomplishing my dreams. Hope that encourages you at least a little...
     
  18. BCmom

    BCmom Approved members

    Joined:
    Mar 31, 2009
    Messages:
    731
    It does encourage me.

    Of course, I really hope these nodules are all that is to it and nothing else will happen again.

    Though that is probably not very realistic.

    Can you tell me something, I am too nervous to ask. Would you be able to play violin if you wanted to?

    It is her love....
     
  19. redheadmom

    redheadmom Approved members

    Joined:
    Mar 26, 2010
    Messages:
    104
    I actually managed to play the clarinet from 4th grade all the way until mid-college (and I was always first or second chair)! This was despite the fact that the first joints damaged were my wrists (they were completely fused from preschool on, so I can't even remember ever being able to move them.) So where there's a will, there's a way!

    As for violin, I had never even tried until a few minutes ago. (My three boys have all been playing Suzuki violin since age 5, so my house is filled with violins!) So I just had my son give me a quick lesson on holding and playing the violin, and, I am happy to report, that even with wrists that don't bend, I still managed to strum away at the thing! So, I guess the answer to your question is yes (although I would need LOTS of lessons)! :D

    But do keep in mind that with today's treatments, especially if started early in the course of the disease, your daughter has a good chance of escaping permanent damage to her joints. And yes, there IS a chance that the nodules are all she will have to endure. JRA varies widely in its severity; in some children, it only attacks a very small number of joints. So keep hoping for the best!
     
  20. BCmom

    BCmom Approved members

    Joined:
    Mar 31, 2009
    Messages:
    731
    LOL!!! Thank-you for doing that for me Haha! I could just see your son giving you lessons! My daughter is almost done bk 8 Suzuki. And loves to fiddle.. she is in a celtic fiddle group that does lots of almost rock stuff, which she LOVES!

    Thanks for givng me hope, maybe we will be fortunate and it will only be some feet issues and thats it... stay still my heart.

    I must admit reading about the drug therapies scares me a bit though...
     

Share This Page

- advertisement -

  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.
    Dismiss Notice