My son is 22 months old, with a developmental/speech delay, and has just been diagnosed as Type 1. He was in DKA, and I knew something wasn’t right, because he looked sicker than I’ve ever seen. But he can’t talk, so he couldn’t tell me what was wrong. I didn’t recognize polyuria for what it was, I spent over 24 hours thinking he was still hydrated because of all the output. When he couldn’t stay asleep because of how restless he was, we took him to the ER, where we waited a few hours for fluids and they were floored when they got his labs back. He was life flighted to the nearest children’s hospital, glucose about 900. I am pretty frazzled right now. I have some really severe, awful, life-limiting and lethal diagnoses in my family that my son doesn’t have, so I’m not exactly shaken or afraid of the diabetes, just frustrated. My son can’t drink from a cup, he refuses to eat puree or solids, we have about five types of cracker that he will eat (which in no way or form add up to the 30g of carbs on his plan!! But when he’s had enough carbs and wants a snack, staying under 8g is impossible because he only eats carbs). So I’m trying to handle occupational therapy trying to force foods on him while also not freaking him out so bad he won’t eat after being dosed, and trying to get him to gain weight. He is the size of his seven month old brother, roughly, though my other children have always been in the 90s percentile-wise. The hospital discharged us after treating his DKA, knowing he caught a stomach virus in the hospital. He had been vomiting all day, to dry heaves. He drank less than eight ounces for an entire day and refused any formula at 6pm, at d/c, but they still dosed him with Humalog and sent us home. I had to force a mix of sugar and apple juice on my son through a syringe as his BG was in the 30s when we got there and still he wouldn’t drink. I thought I was going to have to give him glucagon the first night!!! I got no paperwork that mentioned any of his labs or stats on admittance or discharge and got kind of raked over the coals at the pedi office at the one week follow up for not knowing any of that. We test every 4 hours roughly, but our insurance only covers 100 strips a month and we’re already out, so I bought an adult use meter – we typically use the freestyle insulinx – because I can use generic strips we can afford… it’s awful because the timer is so short compared to the freestyle, and he fights me! And he’s 22 pounds so getting enough blood sometimes requires a couple of sticks for the one touch. His fingers are small, I can’t accurately tell where he will bleed from and sometimes wipe away the blood when trying to squeeze enough to be able to see it. Trying to get insurance to approve a pump. At first, we were looking at an Animas… ping? Maybe? Because of how little insulin he needed and what our insurance would cover. But because he now gets 3 units of lantus and 3 units of novolog, we are looking at an omnipod instead. My son immediately ripped the “trial” site out in the hospital, actually as they were installing it. I figure the compactness of the pod will help, hopefully he can kind of forget it’s there. If my son put his hands fingertip to fingertip, the animas pump was bigger. Imagine how well you’d adapt to wearing something bigger than the span of both your hands. If anyone can speak from experience with an infant or toddler, about any of these issues or any I may not see coming, I could really use the encouragement. I feel like I was really let down by Texas Children's. I expect to have to advocate for my son a lot. This got a bit longer than I intended, but this is all new and I’m in a place where I can speak and be understood. I am very glad to be here and receptive to anything the more experienced have to offer.