- advertisement -

Just wanted to share our amazing day

Discussion in 'Parents of Children with Type 1' started by rdhead, Apr 13, 2011.

  1. rdhead

    rdhead Approved members

    Joined:
    Oct 15, 2010
    Messages:
    99
    As of yesterday we are officially pumping. Just wanted to share our first day experience.

    This is copied and pasted (most of it anyway) from Connor's blog.

    Yesterday we went to Cardon Children's Hospital for our second and last pump training class. Connor and I were both so excited. It was the day that ended his Multiple Daily Injections or MDI in the diabetic world. We went in and met once again with Martha our instructor for the day. We went over the procedures for the next few days and then proceeded to get out all of Connor's pump supplies. This last week Connor has been connected to his pump but no insulin was put in it only saline. This allowed us to be able to learn how to use the pump with out fear of "messing something up." Yesterday was different. Yesterday we went "live." All insulin all the time.

    As of 10:15 yesterday morning Connor's external pancreas (his insulin pump) was fully functional. The next several minutes were spent on showing me how to do different functions using the pump. Things to watch out for procedures to to follow. We talked about our kids. Martha has a 16 year old son who is also a type 1 diabetic and is currently using an insulin pump. As we chatted Connor sat across the room coloring a picture. When the time came I gathered all of my paper work and his supplies. Connor finished up his drawing and handed it to Martha. It was a picture of Cardon Childrens Hospital and very well done I might add. The best part was the neatly printed words on the top of Connor's creation. Written in his best hand writing were the words "Never Give Up."

    As we drove away the reminder on his pump went off telling Connor to check his blood sugar. 176. Slightly out of his range Connor was able to give a correction dose (a dose of insulin to help bring down blood sugar levels) using his pump. This level of control was not available to us using MDI. Using an insulin pen we dealt in doses using whole units. With the pump we can give Connor a dose of insulin as small as 0.025 of a unit allowing him better control.

    As we headed home I needed to stop at Costco so we decided that we would eat lunch there. Connor got a hot dog and a drink. Entered the carbs into his pump. The pump calculated his insulin dosage. Connor hit the ACT button and started eating. No alcohol swabs. No pen needle. No flicking air bubbles out of the pen. No people staring at me strangely as I inject my child. Holy cow this is AWESOME!

    After Connor was done inhaling his hot dog he quickly informed me that he was still hungry and wanted another one. We proceeded to repeat the above mentioned process still with the same amount of awesomeness.

    So if you're keeping score that's Ol' Blue (the pump) 3 - Injections 0

    and that was only in the first 2 hours.

    Later in the afternoon once my other 2 children were home from school they all wanted a snack. This time Connor didn't flinch one bit about having a snack. Before his decision was based on whether or not he was willing to take another shot and not on whether or not he was hungry. This time he didn't even have to think about it. He was hungry so he ate. This process was repeated as he ate dinner and again with a snack before bed.

    8:00pm came and we got excited all over again when we remembered that Connor no longer had to take his long acting insulin (given everyday at 8:00pm to help maintain his levels all day) This process has now been taken over by Ol' Blue. Ol' Blue gives Connor small doses of insulin throughout the day to maintain his blood sugar, no longer requiring him to take his daily dose of Levimer.

    When I checked his blood sugar at 3 am (I do this almost daily at midnight and 3 am to prevent lows/highs to keep him safe) the meter read 242. Too high. I grabbed his pump which had already calculated the correction dose and pressed ACT. His pump was quickly at work lowering his blood sugar while Connor was sound asleep. Once again I was deeply thankful for Ol' Blue because I didn't have to give a shot to my sleeping child.

    Total score for the first day?

    Ol' Blue 8 - Injections 0

    I would call that a huge success!

    Ol' Blue is not a cure it's just another way to manage the disease that is with Connor 24/7/365. What Ol' Blue is, is the freedom to be a kid. To be able to push a button and go. It's less painful and can keep him healthier because of tighter control. It is also a visual reminder of everyone that helped us get to where we are right now. We wouldn't have had a day like today with out your help. It's a blessing. It's a miracle. It's hope. It's also a reminder to, in the words of Connor, "Never Give Up!"
    -------------------------------------------------------------------------
    :D That was our day yesterday. I think I might need to go to a pumping anonymous group. Hello my name is Amy and I'm in love in an inanimate object!

    If you want to see the full post or the pictures with it feel free to visit his blog http://connorscommandos.blogspot.com/2011/04/ol-blue-in-action.html?spref=fb
     
  2. Traci

    Traci Approved members

    Joined:
    Aug 10, 2006
    Messages:
    857
    Love it! Thanks for sharing.
     
  3. Denise

    Denise Approved members

    Joined:
    Jun 24, 2008
    Messages:
    2,534
    I'm so glad you are happy with the decision. I remember we went to the McD's inside the hospital and how relieved she was that she could "just" give herself insulin by pressing a button. For some, this is such a relief to be able to do the pump. We are in that club too!
     
  4. rdhead

    rdhead Approved members

    Joined:
    Oct 15, 2010
    Messages:
    99
    I can totally relate. Connor just got home from school and the first thing he said was, "Mom I feel free"

    That just makes my heart happy
     
  5. obtainedmist

    obtainedmist Approved members

    Joined:
    Aug 3, 2010
    Messages:
    1,538
    Congrats on a fabulous start! It really is a liberating feeling! So happy for you!:)
     
  6. Cassidi's mom

    Cassidi's mom Approved members

    Joined:
    Nov 13, 2010
    Messages:
    21
    This made me cry! It has to be so liberating to be able to do that! And for him to say what he felt is just so amazing! We just began the process of getting a pump and I cant wait for her "freedom" from shots and stares as well! Good job! :)
     
  7. rdhead

    rdhead Approved members

    Joined:
    Oct 15, 2010
    Messages:
    99
    I was teary eyed/crying several times yesterday. It was such a great day. I know it won't always be that easy but for those days when it is, it is totally worth it. Granted we are only a day and a half in so I can't speak for long term experience :)

    Good luck with your pump process. I hope your little one loves it as much as we do so far.
     
  8. annaluvspink

    annaluvspink Approved members

    Joined:
    May 20, 2007
    Messages:
    338
    Thanks for sharing. It brought back fond memories of DD's first day going "live" with her pump...I was able to kiss her goodnight w/o giving her a shot (Lantus). That just brought me to tears, it had been soooooo long since I had been able to do that. WE LOVE pumping!!!!
     
  9. monkeyschool

    monkeyschool Approved members

    Joined:
    Mar 2, 2011
    Messages:
    526

    So cool! Congratulations! My DD can't wait to get there :)
     
  10. 5kids4me

    5kids4me Approved members

    Joined:
    Sep 28, 2010
    Messages:
    727
    I love this:) so happy for your boy!
     
  11. Stacey Nagel

    Stacey Nagel Approved members

    Joined:
    Oct 23, 2005
    Messages:
    581
    glad he and you are both enjoying the pump !:p
     
  12. rdhead

    rdhead Approved members

    Joined:
    Oct 15, 2010
    Messages:
    99
    Thank you so much. Liberating is exactly the right word!

    I am totally feeling the LOVE! It's border line obsessive :D

    Good luck to you and your dd. It was a long road for us to get here but so worth all of the hard work.

    Than you so much!

    It's funny you say that because when we first started the process for him I never thought about how much I would love it. Who knew I could enjoy the perks as much as he does? :)
     
  13. quiltinmom

    quiltinmom Approved members

    Joined:
    Jun 24, 2010
    Messages:
    1,189
    Wish I had time to read all the responses, but I wanted to chime in...

    I loved reading your story. I picked up our pump today!!!! and I'm totally giddy. :) DS was at school, so our CDE gave me all the initial training and sent me home wearing it. She told me to wear it for a day or two, to understand what it's like, etc. Interesting experience. In a few days I'll do a saline start with DS, and because of a few things we're waiting a little longer to start with insulin, but we're set to start May 9!!

    So it was a lot of fun reading the story from someone who is just a step or two ahead of us in this process. I can't wait to be where you are. :) My son is the same age as yours, too.
     
  14. gerry speirs

    gerry speirs Approved members

    Joined:
    Dec 18, 2010
    Messages:
    149
    Thats awesome news and welcome to pump utopia...Can I ask though when you guys ate at Costco did he test first before bolusing or am I reading it wrong?
     
  15. rdhead

    rdhead Approved members

    Joined:
    Oct 15, 2010
    Messages:
    99
    How exciting for you. Interesting process having you wear the pump. I hope it's everything you imagine it to be. So far for us it exceeds all expectations. Being the same age maybe they'd be interested in being pen pals?

    I don't think you read it wrong, I don't think I put that in there. Yes he tested before he bolused. :)
     
  16. tandjjt

    tandjjt Approved members

    Joined:
    Sep 14, 2006
    Messages:
    685
    GREAT POST! Glad you shared. This is a great story to show people who are debating about pumping... It really shows the advantages.:)
     

Share This Page

- advertisement -

  1. This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
    By continuing to use this site, you are consenting to our use of cookies.
    Dismiss Notice