Discussion in 'Parents of Children with Type 1' started by EmmasMom, Aug 4, 2008.
I need a drink.
You deserve one!! Both of you!
YAY!!! You both definitely deserve a drink ... or several. I am really glad to hear this recent news although this part troubles me ...
Is there such a thing?
I'm so happy that you now know what the problem was. I hope you find an alternative medication for her JRA soon:cwds:
Opening the garage keg tap, in honor of you.
That's a relief, I've been thinking about Emma so much.
You and Amy both deserve a drink.
I'm glad you got the news you won't. I hope you find the meds Emma needs soon. I have RA and its bugging me at the moment, so I know what Emma's going through.
I was thinking the same thing! There HAS to be!!!! You guys have been thru way too much!!!!!!!!!!! Big hugs to you all! I'm so glad to hear some good news for Emma.
Awesome. They will find something to treat her without this effect on her kidneys. Such good news.
I am beyond relieved w/ this news. Here's to finding a safe medicine for your daughter to take! :cwds:
So happy it's not something with the kidneys!!! I hope that you can find a better med for her soon so she can be feeling more like herself. So glad to hear your good news!
OMG I so happy to hear good news!! She has been through so much. Good luck with the pottery party, they will love it!
And you deserve one! Or four!
Oh thank god, that makes me soooo happy! YEA! YEA! YEA!
So glad to hear that news, hoping it's not too difficult to find a proper drug to treat her RA..
That is good news...At least its not permanent damage. Now finding another med she can take. Continued Prayers!!
God Bless your family!!!!!!
oh, i'm so so so so happy . . . my thoughts have been with y'all all day long. I'm changing my prayers: will be praying for the perfect JRA med for Emma!!:cwds:
I don't know of anything yet, but we're hoping the rheumy group at the Scottish Rite Hosp can help us find something.
The pedi nephrologist says she will never be able to take NSAIDs again... ever not even over the counter stuff like ibuprofen, and we'll have to be very cautious about any med that filters through the kidneys from now on. We still don't know if she'll recover completely frm this so we cant take any chances.
NSAIDs (non steroidal anti-inflammatory drugs) in all their various forms are THE most common and effective treatment for all forms of arthritis, then steroids, then methotrexate (a chemo drug which hasn't helped her at all), and next are "biologics" like Enbrel and Remicade that weaken your immune system to the point that you have to be very cautious about being around other kids or going any where you may pick up germs and they really affect your ability to heal, not good for a pre-schooler with D. Her rheumy has never had to put a child with D on a biologic before so it's all new and scary to all of us, doctors included.
So, to answer your question... I have no idea what we can give her safely or where we go from here.
I'll have that drink now!
Are the steroids the type that would raise her bgl through the roof? William has taken steroids now and then for asthma. I suppose if it was consistent use maybe the increase in insulin dosage would be consistent as well.
Since you didn't mention she had tried those in your post I thought maybe they had that drawback.
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