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It Is Done, My Participation in the Joslin Medalist Study

Discussion in 'General Discussion' started by Richard157, Dec 3, 2009.

  1. Richard157

    Richard157 Approved members

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    We drove to Boston on Sunday, just 2 days after Thanksgiving. :eek: Traffic was actually not as bad as we were expecting and we had bought a GPS which helped very much. Anita loves the GPS and the lady whose voice has an English accent. She named the lady Lola and we both love Lola. I know, "What ever Lola wants, Lola gets", but this gal does not ask for anything. The perfect mate for an old geezer my age, eh? ;)

    On Sunday evening we met two of my friends from another diabetes site and we had a wonderful evening with them. A great meal too. They live in the Boston area. We went to bed at our hotel early that night. I was required to fast and also skip breakfast on Monday. A shuttle supplied by the hotel (Holiday Inn Brookline) took us to the Joslin Diabetes Center.

    They took blood and used about 10 test tubes. Then they gave me a tall glass of vanilla flavored glucose. They called it a milk shake. :rolleyes: YUKKK! :mad: They drew more blood every 30 minutes after that until two hours had passed. My BG was then 230+ at that time. More blood was drawn every 30 minutes until a total of 4 hours had passed since I drank the glucose. Then my BG was 343 and I felt sick. No way am I used to having highs like that! I was permitted to take some insulin after the last blood draw. I needed 20 units. The fact that my BG kept rising all through the 4 hour period showed that my body produces no insulin. We were told that some of the Medalists showed a lower BG at 4 hours than at 2 hours which meant that they were producing some insulin, even though they had been diabetic for more than 50 years.

    It was believed that the Medalists who produced some of their own insulin would be the ones without complications. So why do I have no complications if I am not producing any insulin? We were told there were a few others just like me though. So there has to be an additional avenue through which a long term diabetic can have no complications (in my case after 64 years of diabetes), other than by producing some insulin. They don't know what that avenue is yet. The Medalist Study continues until 2011, at which time they will have examined 750 diabetics, all of whom have had diabetes for at least 50 years. Did any of you realize there are that many of us long term diabetics in the USA? There are even more because some Medalists did not wish to take part in the study. Approximately 550 Medalists have participated thus far.

    I was examined for neuropathy and sent to their eye center. I had a wonderful eye examination. Dr Shah is a brilliant opthamologist. It was the best eye exam I have ever had. My eyes are in great shape. The results of all the testing will be sent to my home in a week or so.

    The purpose of the study is to see if they can find why some of us Type 1's have lived so long with no serious complications. If the cause(s) can be found then a treatment may be developed that will enable younger Type 1's to avoid complications. I have friends with young children who have Type 1 diabetes. I thought about them several times during our trip.

    I was too sick to drive home. We anticipated that, so we had reserved our hotel room for a second night. Lola guided us home on Tuesday morning. My only souvenir is a bad cold, the first one I have had in several years. Anita is coming down with that cold now.

    It was all very worthwhile, we both feel that way. They really appreciated my participation. They paid for our first night at the hotel and for the gas we used on our trip.

    I am now a member of a wonderful group, the Joslin Medalists. We plan to return to Boston in May, 2010 when there will be a gathering of all the Medalists who choose to attend. I hope I will get the chance to meet William Rounds then. William has had diabetes for 86 years and has joined our group. He is thought to be the person who has lived with diabetes longer than any other person on earth. He is my hero! :)
     
  2. Liongirl4

    Liongirl4 Approved members

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    Thank you Richard for sharing this with us, AND for participating in the study. I think it gives us all hope for our children that they too will live a long and healthy life.
     
  3. Kalebsmom

    Kalebsmom Approved members

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    Wow Richard, what an ordeal. I want to thank you on behalf of all of us that either have children with Type 1 or have it themselves.

    I really can not imagine how much has changed since you were dx'd.

    You are my hero...
     
  4. Beach bum

    Beach bum Approved members

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    Thank you Richard for participating in the study!

    If you go to the Medalist gathering, they usually go to the evening at Pops also, where you get recognized. We always go to this event, so maybe I will see you there!
     
  5. Richard157

    Richard157 Approved members

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    Wendy, that would be great! I hope we can meet you in May.
     
  6. Becky Stevens mom

    Becky Stevens mom Approved members

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    Richard Im so sorry for your feeling sick:( I want to thank you for taking part in this study. The knowledge gained from this study will help children like my son and all the other CWD throughout the world. Im glad to hear that your eyes are so healthy. I wish you many more years of health and happiness:)
     
  7. joy orz

    joy orz Approved members

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    Oh Richard, you have no idea what this post means to me. Thanks for all your wonderful news and for participating in the study.

    I just love looking at my gorgeous girl and thinking that the future is so bright. You made my day!
     
  8. bgallini

    bgallini Approved members

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    Richard,

    I love reading your posts. You have such a way with words! I'm glad Lola was able to get you there and home. And thanks for taking part in this study.:)
     
  9. buggle

    buggle Approved members

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    I'm so interested in this study. Thanks for sharing your experience with us.

    Even though your BG went high, I still wonder what your C-peptide results will be.

    This data benefits everyone. It's great so many medalists are participating.

    Hope you get feeling better soon.
     
  10. Norsewitch

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    Thanks Richard for all that you do!!
     
  11. Barbzzz

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    Richard thank you for updating... I've been thinking about you for the past few days and hoping all is well. Sorry about the cold, though, for both you and the Mrs. You are, and continue to be, an inspiration to us all.
     
  12. Jeff

    Jeff Founder, CWD

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    I'll add my thanks too.

    Research is critical to finding ways to help our kids -- and our grown ups -- live long and healthy lives. Participating in research is not always easy, but without us, the research cannot happen.

    As we all consider how to make a difference in diabetes, please consider asking your diabetes team if there is a study in which you or your child can participate.
     
  13. frizzyrazzy

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    How wonderful Richard! Your post gives me such hope that a healthy future is in store for my child.
     
  14. zimbie45

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    Richard. YOu are such an inspiration and hope... Reading your experiance has brought tears to my eyes... Good ones. YOU give us all hope that our kids will be ok. That they too can live long, happy, and healthy lives. IN my book both you and Williams Rounds are both Hero's. Thank you so much for participating in this study. I know it must have been hard to fight that urge to give you self insulin, knowing it would make you feel better. Hope you and your wife are able to get past this cold ok, Feel better

    BTW.. I have a tom tom GPS.. I love it too... I have MANDY as my voice.. I will have to check out lola. :)
     
  15. ecs1516

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    This is so interesting Richard, thank you for all that you are doing for the study.
     
  16. Richard157

    Richard157 Approved members

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    Thanks

    Thanks Jeff and fellow CWD members. You parents on this site are very special people! :) My wife and I are not having problems with our colds now. My blood sugar control is back to normal with a 97 (USA) average. I am waiting for the report from my examination at Joslin. When it arrives I will post the results.
     
  17. Noel

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    Richard, thank you for participating and sharing! I'm having a rather rough week (my old son who does not have diabetes was just diagnosed with a Chronic Kidney Disease called IgAN (Berger's Disease). Your post brought tears to my eyes. With a husband and a son who both have type 1, and now my older son, it is so wonderful to hear about people like yourself, who not just survive with the disease but actually LIVE with it!!!

    Kudos to you Richard! You should be proud of yourself. Your family here at CWD certainly is!
     
  18. luvehr

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    thanks for not only participating in the study, but for being such an inspiration yourself!!

    i personally go to joslin's for my diabetes care and i think they are great over there. :)
     
  19. slpmom2

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    Richard -
    I just want to thank you for posting your experience and your story, and for participating in this research that will help make our children's lives better. Your story made my cry, and gives me hope for my daughter's future.
    Hope your cold passed quickly and easily!
     
  20. deafmack

    deafmack Approved members

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    Thank you, Richard for all you have done. I want to add my thanks for participating in the Joslin study. You give all of us so much hope for the future. I cannot express how much this hope means to all of us.
     

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