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Independence at School

Discussion in 'Parents of Children with Type 1' started by Mouchakkaa, Dec 13, 2012.

  1. Mouchakkaa

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    I was going to post this in the other thread about the nurse strikes again, but I felt I might derail that post.

    We too are having problems at school with allowing independence. The funny thing is a Bill was passed during the summer allowing my child to be do this.

    The school is trying to block us. The doctor has signed off on it and I have as well. However, every time my daughter goes low they make a big deal and make my daughter feel like she does not know what to do.

    I was actually very proud of my daughter the other day. She ended up having a BG of 35, which she treated in class with a juice box. About 15 minutes later she was still low so she treated again with another 15 g snack. The third time she was still low and went to the nurses office for help. Well, the nurse freaked out on my daughter for not coming to her sooner. The nurse sent off an email to her teachers and cc me about what happened in class. Once I read the email I called the nurse. The nurse did make a good point that the teachers should know about the 35 so they are aware that what was being taught during that time might need to be retaught. This is a good point, however I don't think this was the main reason she was freaking out.

    WE really do love our nurse. She has been with my daughter since K but it is time to let her spread her wings. Mistakes are going to be made. I made a lot when she was first diagnosed and I still do. The nurse, every once in awhile, makes mistake as well. My daughter is going to make them too, but its time to let her do her thing. She is 11 years old has had D since 2, she deals with her d at home and we encourage her to do this. She has started to do her own d care at school on her own, so I'm going to keep fighting to let her do what she needs to do.

    We still have not got the OK from the school for my daughter to be independent at school, but I told my daughter to go ahead and do what she needs to do. The doctor has already signed off, so I really don't care if the school has signed off yet or not. The head nurse contacted me about a month and half ago (a full month after I made the request) saying she is still looking into it. What can the school do? Suspend my daughter for taking care of her diabetes? Possibly. But I think I would have a good claim that the school took to long and just ignored my request.

    The school used the excuse, they need to know what she has done in case of an emergency. They are constantly on her to document everything. The thing is we don't document anymore. She has a CGMS plus a pump. When we need to know what is up we look at these two devices to figure out what happened. There is enough work to keep d under control so I'm really not pushing her to document everything, but the school sure is.

    When the school finally gets around to holding a meeting about my request, I'm sure they are going to bring up all the times my daughter went low or high. I guess I will just have to bring in documentation about all the time my daughter went low or high while the nurse was totally involved.

    I really do hate all the red tape we have to deal with in the school system.

    If you read this far thanks for reading. I really just needed to get my frustration out. If you have any suggestions or opinions please let me know. Sometimes I think I should just let the school do what it wants to do so I can stop fighting with them all the time.
     
  2. Sandy's mom

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    Just curious, how was your dd's bg 35 and her CGMS did not alarm her any sooner?? That would disturb me as a nurse too.
     
  3. LoveMyHounds

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    At least I'm not the only one :rolleyes:
    Does it make me any better? Not really...
    Good luck. We both will need it :D.
     
  4. Sarah Maddie's Mom

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    Personally, I would want my 14 year old to have assistance with a bg of 35 and she's been D for 10 years and independently managing at school since 4th grade.

    If you say that you do not have the "Ok from school for her to be independent" then what do you have in place? Is there a 504 for this school year?
     
  5. ecs1516

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    Public school doing CYA.
    Did her CGM alarm earlier?
     
  6. Mouchakkaa

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    I don't like a 35 either, but we do see them even on the CGMS (not often but we still do see them). My daughter does not hear the alarms on the 7 very well. Not sure why, but she missed quite a few alarms on the old system. We just got the Gen 4 this week and so far she is catching the lows a lot better. She may start to not "hear" these alarms either in a few years, but a least for now she is hearing them again.

    Yes 35 is low, but she was treating the number in class. She could not get it up so she went for help. This is exactly what I told her to do. 35 is scary, but she had the sense to try and correct it and realize that she needed help. If the 35 affected her ability the teachers would hopefully step in and assist her and get her to the nurses office. This should happen if she was independently doing her own d care or if she was getting nurse support. I have no problems that she went to the nurses office after trying to treat the low.

    We have an IEP in place, but as I said in my earlier post, the school is dragging their feet to change the IEP. I brought my request to them, I believe, at the end of September beginning of October. I had the doctor fill out the proper forms that state she can independently care for her d and I put some things in writing as well. The head nurse contacted me at the beginning of November saying she is still looking into it and that she will get back to me. We are now in December and starting break next week. So I have told my daughter to do what she needs to do, that the doctor has already signed off on it.

    Not sure what the school is going to do. She does, however, go to the nurses at lunch and at the end of the day. Other then that I tell her she can do what she wants in class and if she runs into problems head to the nurses office.
     
  7. mmgirls

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    I think you need to put this in a different perspective, and make some seperations of different issues.

    lets just say this happened at home instead of school. Wouldn't you have told your daughter that 35 is too low and that while she did the right thing in treating first that that low of a number she needs to let someone else know asap. This is what I think the nurse is have issue with. you have told your daughter to do what she needs to do in class but have not set in place a plan for when she does need assistance.

    In my mind the teacher should have been alerted with the 35 and yes she should treat immediatly but she should have been escorted to the nurse to wait it out and make sure that she came up and try to figure out what happened. 35 is LOW and scary no matter how long you have been at it.

    While the Dr. has signed off that she can be independant with her care you need to set certain guidlines for everyone to follow, in your case I think with the school resistance and taking their time in getting any communication going you need to have a 504 put in place.

    ETA the guidlines need to include a clear agreed upon bg # that going to the nurse or being monitored in class by the teacher, maybe 55 or 60 definatly below 50.
     
    Last edited: Dec 13, 2012
  8. Mish

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    I think 11 is a good age to spread wings and work out the dynamics of doing her own care. What your daughter did is pretty much what my son now does. Treats the low in the classroom and then if he's not budging or feels really off he will get to the nurse (provided she's even there).

    35 is low, and yeah, maybe on a 35 the teacher could have called the nurse while your daughter was treating, so that should could be on alert and someone would be watching with her. Maybe you could placate the nurse by suggesting a cut off number, like 50, where the class calls down to the nurse while she's treating? But I totally get it. My son doesn't really want to bother the classroom by telling his teachers anything, and he's only seen the nurse once this whole year. And mostly I'm ok with this.

    last year in 6th grade we did have a full time nurse whom we loved, so the situation was a bit different. He felt more comfortable treating and going to hang out with her while he waited. This year he wants to be a big kid. he doesn't want to miss class.
     
  9. Charliesmom

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    I can see the nurses side in this matter. That is a dangerous number and adults need to be informed of the situation.

    I'm sure she does a fine job managing diabetes but as others have pointed out there needs to be a clear outline of how things should be handled. For example, she notifies her teacher if she is below 70 or above 250 or whatever. Does she go that low often?
     
  10. ecs1516

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    Maybe the teacher can just call down to nurse when she is that low. Then the nurse could walk up there to check to see if she is okay. I would not want her walking down to the nurses office at BG of 35. Maybe treat first then go.

    My boys do all their own care, but if they have a low of less than 60 they will always call me from the office to let me know what is going on after they have already treated the low and just sitting there waiting to come back up. The nurse is sometimes there(Tues, Thurs.) but simply sitting there in case of emergency. The other days the staff is there and they are trained to use glucagon.
     
  11. Mouchakkaa

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    These are great suggestions. Thanks for the input.
     
  12. Mouchakkaa

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    We have an IEP and the 504 accommodations are attached to that. We can not have both an IEP and 504, plus the IEP has more pull then a simple 504. I have asked to update the IEP with the independence part, but the school is dragging this out. I think they are hoping to put it off until we have an official meeting and I'm really not going to force the issue unless they start getting onto my daughter about treating herself.

    Thank you for your suggestions :)
     
  13. kim5798

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    When the bs is 35...someone needs to know. Even if it is just the kid sitting next to her. Their brains are not functioning at full capacity with a bs of 35. I know my daughter has said before that sometimes she can be low & know she needs to eat/drink, but ends up just kinda holding the juice box. The brain is just not connecting at that point. She may need someone to tell her, "drink it."

    I'm all for independence...but if she is hitting 35 at school, some changes to the treatment plan need to be made. Let her run a little higher for a bit so she can start to feel the lows again. She is not going to be "independent" if they are calling 911 when she seizes in class or passes out.

    The school is trying to protect themselves. Rightly so.
     
  14. mmgirls

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    It has no pull if what you want to happen is not included in it. I think you need to work the chain of comand here and get your IEP updates you want now, the accomidations can not wait, they need to accomidating her now without you or her worring about getting on her about being independant. Don't you have to have an offical meeting in order to update the IEP, have you requested an official meeting other than saying the IEP need to be updated. Shouldn't the nurse have iniciated something when you provided updated doctors orders?

    I am sorry that you are having to go threw these growing pains with the school, but you need to take charge since they are not.
     

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