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I want a CGM but CWD does not

Discussion in 'Parents of Children with Type 1' started by FLPeaches, Jun 26, 2017.

  1. FLPeaches

    FLPeaches New Member

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    My son was diagnosed T1D 23 days ago. I would like to get a CGM, at the very least and hopefully a pump at some point. But my 7yr old heard the words "needle insertion" and refuses to try either. I know he is trying to adjust and I don't want to make it harder on him (the IV's during his hospital stay with DKA were miserable). But I know I would sleep better with a CGM and so would he because I wouldn't wake him up to test! Plus, I'm really nervous about sending him to school without a CGM.

    Does anyone have advice to convince him to try it, other than "I'm mom and I'm making you try it"? I'm trying to give him as much control as I can, since he didn't ask for this dx.

    This is such an amazing forum and I've learned so much from reading old posts. I've bought "Think Like A Pancreas" and the Ragnar Hanas book to read while on vacation next week.

    Thank you!
     
  2. MEVsmom

    MEVsmom Approved members

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    Maybe concentrate on the fact that one quick needle insertion and he will avoid much more pricking over a two week span. We change my daughter's Dexcom every two weeks and she only pricks about 3 times a day on a normal day as opposed to at least 6 or 7 without it. She doesn't mind the pricking as far as pain goes, but she does hat the process of having to stop and do it. In most cases, we just dose off of Dexcom at meal times, except at school, where they require her to prick.

    In addition, my daughter knows she has much more freedom with her CGM. I am much less hesistant for her to be out and about without me with Dexcom Share. She has an Apple Watch as well as her phone and I contact her if she isn't handling things on her own. My daughter was also 7 when she was diagnosed and is 11 now. She started the Dexcom about 3 months after diagnosis and has never looked back.
     
  3. StacyMM

    StacyMM Approved members

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    I did a mix of bribery and force. Once we decided to really do it, it was just a rule - you live here, you wear a CGM. I bribed them to get the first ones in, then we just kept going. They can choose their pump (or do MDI), their meters, their test strips (although there are insurance limitations on it, their bags/belts, the food they eat, etc...but the Dexcom is non-optional. I was actually surprised at how quickly they came to love it. We change the sensors every few weeks and they calibrate twice a day so the number of sticks is much, much lower. For us, it's never been an issue. The kids love having Dexcoms. They like getting a good scratch in once the sensor is off, and they might go an hour or two without it ever once in awhile but that's it.

    That said, we've been at this 11 years and only using Dexcom for 4 - we only added it when we realized how overwhelming two kids with diabetes was. We did daycare, nights, play dates, preschool, vacations and everything else without a CGM and we did it for many years. It's just how things were - I had never even heard of a Dexcom until I found this board. If you decide against it, diabetes is completely doable, especially when you have never had one.
     
  4. Christopher

    Christopher Approved members

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    Welcome to the forum but sorry you have to be here.

    This is a tough one. Part of me feels that you are so recently diagnosed and he (and you) are just trying to adjust to everything why force something on him. But part of me knows how much information the CGM will give you and how much it helps. But it doesn't feel right to force him (for me).

    Maybe give everyone some time to adjust to your new life and continue to help him understand the benifits of a CGM. He may come around to it on his own.
    Good luck!
     
  5. kim5798

    kim5798 Approved members

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    I agree with Chris. Give it a little time. You are all dealing with a lot of stuff in such a short time period. Focus on learning how diabetes/insuln works, etc. The cgm is a great tool, and so are pumps, but baby steps. It is not going to just "fix it" & make it easy. Trust me. In the early days, we all look for something that is going to make it normal. Give him(and you) time to accept the disease. Forcing it on him isn't going to be a good outcome. That said, I'm not opposed to bribery...but give it a while. Allow your child time to grieve.
     
  6. sszyszkiewicz

    sszyszkiewicz Approved members

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    EMLA Cream.....it literally makes the insertion painless. You can say that with confidence. After 3.5 years my 15 year old still uses it!

    There will soon be a new auto inserter from Dexcom that does not look as imposing as the current inserter. It will be available sometime this year pending fda approvals.
     
    Last edited: Jun 28, 2017
  7. samson

    samson Approved members

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    I don't have suggestions for convincing your child, but would suggest getting the insurance process started for CGM approval regardless of his thoughts for now. For some it can take 30 to 90 days to gain approval and then another few weeks to set up a training. That's ample time to work on persuasion for your son.
     
  8. MomofSweetOne

    MomofSweetOne Approved members

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    My top recommendation would be to get together with someone else (older? peer? both?) with T1D that wears it and likes it. Another person with T1D carries much more influence than we as parents. I know my daughter would be willing to talk to others about wearing, but we're not anywhere close to you. Like Stacy's kids, she likes a couple hour break between sensors sometimes, but not an overnight. She knows the difference it makes for both highs and lows. She could also verify that it has given her greater independence than she would have had otherwise. It really does improve their quality of life tremendously.

    I would order it (give him his choice of colors!!!). Forcing him to wear it might backfire, especially during the teen years, but I would consider this a very incentive worthy trial. Set the period of time to a couple of sensors to really get a feel for it. I've also discovered over the years that I'll be ready to throw in the towel before my daughter is and order something new. She usually rejects the concept, but within a couple of weeks of whatever being around, she's game and likes the change. If you chart the number of fingersticks per day now and with later cgm so that he can visually see the difference, it might help as well. That one stick every 10+ days reduces the fingersticks by about half in our house.

    My daughter has an instructor this summer who told her that his roommate last year wore the thing to keep his mom off his back. Ours is dubbed "Mom's toy", so even at the young adult stage, they still know the peace it gives us. :tongue:
     
  9. wilf

    wilf Approved members

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    You need to give him time and space. Do things the way you were shown to, and then slowly introduce new things. As parents we are eager to start doing the best we can for our children.

    It is important to think how this looks to them. Go slowly and explain what is happening, and listen to your son.

    :cwds:
     
  10. MomofSweetOne

    MomofSweetOne Approved members

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    Start logging BGs per day now - plus bad symptoms. I just noticed you're going on vacation, and out-of-routine are times when CGM is especially helpful. Extra activity will require lots more finger pokes, stopping his activity to come check. He can't comprehend at this point that just playing at the playground while you can watch his number saves him fingerpokes and your sanity, but they add up quickly. Bounce houses created high stress pre-cgm, hikes produced bad lows that left her miserable for a couple hours. We got cgm at one year, and my daughter has never looked back. (And she started with the Medtronic sof-serter which was truly a torture device.) Her reaction to her first Dexcom insertion was that she didn't even feel it.
     
  11. Dad_in_Canada

    Dad_in_Canada Approved members

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    When I read your title, I thought to myself that if you want it so bad then get it for yourself!

    Joking aside, you could get a CGM, and use it yourself for a week. There's no risk to you. You can show him that insertion is painless (we also use Emla), and he'll see visually how it looks. Downside is, assuming you don't have diabetes, he'll see perfect CGM plots, and if he gives it a try, well, the plots may not look quite the same.

    It's just a suggestion. Others may disagree. Whenever we try a new infusion set, I do an insertion on me first (when DS is not around), to see how smooth & painless the insertion is. I like knowing first hand how the insertion may feel for DS.
     
  12. kail

    kail Approved members

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    I think I agree with most people here that giving it a little time and letting him adjust a little is probably the way to go. If the honeymoon period is reasonably manageable for you right now then the additional stress on him and perhaps info overload on you may not be worth it. On the other hand, my daughter was completely against it also when me, my husband and her endo finally came to a consensus to get one. It just sounded bad and she wasn't interested--she was 4y and that wasn't likely to change with time, at least for quite a while. Finally I had her watch a little girl on youtube who shows it being inserted with a smile on her face. Then I told her we would have to try it and then we could decide. Finally I bribed her--I think with a new ipad game which also kept her completely distracted during the insertion. I still let her get a free ipad game if she wants when we change it although I am always done before she even finds one she wants. Once she had it on her she realized it wasn't a big deal and never cared about having it on or inserting it. She likes being able to see her number. It wouldn't be a bad idea to do EMLA if he is really freaked by needles. It doesn't seem to be that painful for my daughter but you really do want a good experience on the first time to get over the fear of it.
     
  13. hawkeyegirl

    hawkeyegirl Approved members

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    I'll go against the grain here and say that for us, CGM is non-negotiable. If he didn't want to do the finger pokes, and wanted to check his BG with old fashioned urine strips, would you let him? Nope. Because finger pokes are that much better than the old urine strips, right? Well, CGM is that much better than finger pokes alone. I wouldn't require a pump (although my son loves his), but CGM is like sitting in a carseat or wearing a seat belt for us. If he was in his teens, I'd probably try to finesse it more, but at age 7? There are some decisions that he just doesn't get to make at that age. Your decision is based on research and logic. His decision is based on fear.

    Get some EMLA creme, put it under a band-aid for a half hour and let him poke at it with a paperclip. He won't feel a thing, and hopefully it will reassure him about the needle insertion.

    Best of luck to you! It's so hard early on in diagnosis. But getting a CGM will be a game-changer for you and him in so many ways.
     
  14. sariana

    sariana Approved members

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    Give it some time. My T1D was against it until she actually tried the inserts for it this past year. They both hurt less than the ones that she used previously. She has been on a CGMS for a few months now and loves it! He might feel better about it once he knows more about the Medtronic 670G or any new updates that come out as time passes. It will be a while before he is eligible for a pump.
     
  15. DavidN

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