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I am up and running with the CGM in the cloud!!!

Discussion in 'Parents of Children with Type 1' started by mmgirls, Jul 10, 2014.

  1. Adrian

    Adrian Approved members

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    ISeisometer might be a good quick hack, indeed. I might use it when I'm away and don't have my laptop with me (the alarm software also runs on this.) Before that I tried something with a similar idea: An alarmclock for hearing impaired that has a microphone and vibration sensor.

    As I don't use cloud/Internet features, but do everything on the system directly, I believe it is much more reliable. It also alarms me on the three ??? - something the receiver itself doesn't do. Compared to the ISeisometer, I'm not sure what is more reliable. I didn't have any problems so far. I don't count the dexcom being off as the receiver alone would have had the same problems.

    The best alarm system of course are the adrenal glands. It's very good if you still can rely on them. So far, CGM without the Cloud helps me a lot to keep this system functioning by avoiding most lows. :)

    Adrian
     
  2. mmgirls

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    My girls are 9.5years and 6years, my oldest I am hoping will become independent this year but I will have "oversight via the cloud" and my youngest is newly Dx and we are not sure if she is hypo aware yet.

    I want my daughters to start to be more proactive about looking at their numbers and not just waiting for an alarm. Being able to see her numbers while she is away from me and at school, I could see the up or down trend and let her know to test and treat/correct before an alarm goes off. I especially love the idea of being better able to Prebolus before lunch when numbers are starting off higher.

    There is a big difference between testing at set times and finding out your 199 and the high alarm has not been triggered. Compared to testing before the set time because you can "see" that your kiddo has been stuck at 199 for 2hours now its a 1/2hr till lunch, this gives great opportunity to test and correct and possible pre-bolus. Or when a surprise treat comes up in class, I know what BG's have been doing. Or on special days like a field trip or a jog a thon, or a field day. Or a scheduled test day.

    To me the usefulness of this system is endless and worth it.
     
  3. StacyMM

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    Mine are 10 and 12. For us, it's primarily for school, sports and sleepovers. They can respond to their own alarms but they like this because it gives them a backup and takes some of the responsibility and worry away. And they love the freedom - being able to stay at a friend's house, being able to go through an entire baseball game without getting the "what's your BG?" gesture from us, being able to get help from us without leaving the classroom or interrupting class to be escorted to the nurse's office.

    As a specific example - they both had really low lows while swimming at my mom's house and wanted to set temp basals after bringing up their numbers. They could connect (we don't conenct 24/7), and I could see their patterns and help them determine how much to drop basal and for how long. And, even better, I could tell them that I'd keep an eye on them and call them if it looked like they needed to do more. Not only were they happy, but my mom was thrilled.

    That said, this isn't a necessity. Just like pumps or CGMs, it's a nice tool for the people that can see a benefit for their family :) I think I saw a stat on there today that there are only a few hundred families up and running. It's a very, very, very small portion of the T1D population.
     
  4. StacyMM

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    I think I had the exact same response! I thought, "THIS is step-by-step?!?" I need an Idiot's Guide to CGM in the Cloud. And then an Idiot's Guide to that guide!
     
  5. KatieSue

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    I so wish my kiddo would go for this. But she's 18 and refusing at this point to wear her dex at all. She did a clinical trial a few months back and wore two on her tummy (she prefers her love handles) and she's refused to wear hers since. She at the point where she doesn't want me butting into her privacy and for her this includes BG. Honest so far she's doing fine at taking care of it on her own. I am nosey and poke through the meter when I randomly find it laying about.

    I think it's a wonderful tool especially for younger kids.
     
  6. mmgirls

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    Yes I am working thru the "preconditions", Hell I wasn't even sure what my computer was running as an OS nor if I had Java or not! I stopped when I got to the part that you are quoting!
     
  7. mamattorney

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    Feel free to pm me with set up questions on the guide. Some of it is "belt and suspenders," including the part you are quoting. It's just that a lot of people got tripped up at the same place and the troubleshooters were finding that some people didn't have ADB working, so they added that section to make sure that your computer/phone is doing what it supposed to be doing. It's not really part of the installation, it's more of a trouble shooting before any trouble happens kind of thing.
     
  8. Adrian

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    I've written some android apps myself and adb never was a problem. It just worked. Like mamattorney I think this won't even be necessary.

    Even though I haven't used a windows or dos system in almost 10 years I understood what was written. I could help via skype.
    But as I haven't done the cloud part yet, better ask mamattorney. She also seems to have better people skills (Is this the correct English paraphrase for "she's nicer"? ;))
    But couldn't we do this in the forum - or later transcript it. This way others can learn as well.
    I as a tech-guy sometimes don't see the problem as I live in my own world - like when I was in a restaurant in Taipei and my Taiwanese friend told me how to eat a certain food: "Just open it on the top and eat it from the inside out" and I was like "Well, that's the obvious part when I watch how you do it - but how do you hold your chop stick that you can actually open and not just grab something???".

    As the community is really nice and will support anyone who tries, I think, anyone who can post in a web forum will manage to get a working system when he uses hardware that is already tested.

    Adrian
     
  9. DavidN

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    My son is 11 and I would absolutely trust him to respond to alarms, except for the fact that despite perfect hearing, he has an auditory disorder that makes it impossible for him to hear Dex alarms and his parents voices. :)

    He's on the golf course now with buddies. BG is 211 slant down. Boom!
     
  10. rgcainmd

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    Wut indeed! This is waaay beyond anything I could do without a bonafide hired geek!
     
    Last edited: Jul 11, 2014
  11. packmule

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    I setup CGM In the Cloud a few weeks ago and it's been another great tool in the diabetes management toolbox. It's not perfect, but it's definitely miles beyond what's available from FDA approved sources.
     
  12. cococay

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    LOL!!!!!! I think my son has that too!!!!!! not formally dx'd though... Oh and his included MiniMed Alarms also!
     
  13. mmgirls

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    I had my first real "test drive of this system" today, dropped off my oldes with grandma and had my youngest to go and get pool supplies across town. My phone started to make a melody and it was the cloud high alarm, turned off the alarm and I knew that she was edging up instead of a downward trend from across town! Called grammy and told her to test correct and cover but hold off on the snack until she was on her way down. felt so weird but so helpful!
     
  14. Ali

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    Yeah for anything that makes life easier for everyone. Way to go.:):)
    Ali
     
  15. jlh0920

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    This is so exciting! A quick question for you all- I read that you have to have an Android phone, is this correct? Has anyone managed to make this work on an iPhone?
    Thanks!
     
  16. Adrian

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    No, Apple doesn't want this. It just allows hardware of paying and certified partners to connect to their devices.
    And dexcom doesn't seem to be interested in becoming apple "partner".

    Some android phones works - and any real PC system works with some adaptions.

    For viewing the remote screen, any system with a modern browser works, even an iPhone should do.

    Adrian
     
  17. hawkeyegirl

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    You can get readings on your iPhone, but the phone that plugs into the Dex must be an Android.
     
  18. Darryl

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    I've been a way for a while and just catching up on this. Is there a link to the instructions how to implement this? What is the Rajat app?
     
  19. caspi

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    There's a FB group called CGM in the Cloud. Also http://nightscout.github.io/posts/01-quickstart/
     
  20. mamattorney

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    Rajat is a person. He's a graduate student who will set you up with the system in no time flat once you have the hardware. He does all the work on the back end for you setting things up and then emails you the app and the website name - you click on the file, connect a couple cords and - boom - bg numbers in the cloud!
     

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