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huge problem, can I get some examples of health care directives please

Discussion in 'Parents of Children with Type 1' started by valerie k, Sep 8, 2012.

  1. valerie k

    valerie k Approved members

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    SSSSOOOOOO long story short, saw the dr (JOKE) and well, whatever he sent in was not acceptableish, and God only knows if the school is going to let matt in on tuesday. :mad:

    So can I get some examples of what drs health care orders to the school should look like, so I can fill it in, have Dr dumdum sign them on monday and fight fight fight to get matt into school on tues when it starts please.

    I dont want to write up and miss something important so I would appreciate some help.

    This is the time line, on tues I went to the school to get matts schedual, so I could make up kits for the teachers and think of the best way to tell them how matts day should go. HE ISNT EVEN REGISTERED TO THE SCHOOL!!! and they have no class list for him.:mad: they hand me a stupid paper to have the dr sign, its only a medication form so matt can have perscription drugs in school. OK..... I think the dr will have another form..... WRONG!

    Take matt to dr appt on thursday, the very first I could get becouse of my horrid insurance snaffu in the state of oregon. that was 3 hours of my life I can never ever get back. Its a general practice dr with the most diabetes experience. We must first see him for a referal to an endo. This dr, totally clueless on anything diabetic related as far as I could see. Most of the time was spent with them filling out paperwork, and them trying to get us some supplies through some company becouse of our insurance, family care or something. I walk away with perscriptions for a week, till they get this mail order thing worked out, and go to the pharmacy, and they can fill insulin only, not strips, no retail pharmacy can fill anything but insulin on our insurance, so no strips, no ketone strips and what I thought was the script for glucogon, was for a meter anyways... dr office didnt know what a glucogon kit was apparenly when I said we needed new ones. Not sure where I can go to get strips and ketone for school yet. wait till mail comes?

    Call the referal line to get an appt with endo, becouse the dr did give us one. Guess what, referal line recording says that they will review the dr notes and get back to us with a time, it could be soon, or as much as 4 months out..... I hope we get the soon, I plan on calling back and bugging.

    Go to school on friday, to gets matts schedual, and now they play the IEP card as well as the medical information card and the fact I dont have a good health care directive. Mostly IEP. stating that the iep person will be reviewing matts records and they will devise a plan, and why have matt come in if his schedual will change a few days later.....

    IM BEYOND LIVID PEEPS :mad:

    Matt must attend school on tues come hell or high waters. Its suppose to be an orientation day for all the kids who are now entering middle school for the first time. A fun day, and a day he can start meeting peers and such, as he was excluded from school last year. And they want him to wait???:eek:

    please help with what I should write down for the dr to sign. he is on a pump, so they shouldnt have to have any sliding scale stuff, the pump will always figure out what insulin to give him and when.
     
  2. danismom79

    danismom79 Approved members

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  3. hawkeyegirl

    hawkeyegirl Approved members

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    None of us here have a clue as to what your school wants. They're probably used to a specific form that the endos in the area use.

    Here's what I would do. Call the endo's office on Monday and ask if you can have a BLANK diabetes medical management form that they provide to their patients. Explain that for right now, you're stuck with a GP, and he doesn't know what the school wants. Or better yet, have the GP's office call the endo's office and ask for the blank form. Fill it out with Matt's care info and have the GP sign it.

    If nothing else, use the form from Matt's last endo and just fill in new info for the GP to sign.
     
  4. MamaC

    MamaC Approved members

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    What they said and prepare to find a fax machine and stand by.
     
  5. Sarah Maddie's Mom

    Sarah Maddie's Mom Approved members

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    Perhaps you need to register him?
     
  6. valerie k

    valerie k Approved members

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    I shouldnt have had to register him, he was a "student" of redland and should have automatically went to be a "student" of ogden. As a student of redland, they had all they needed, except that the health care directive was from his endo in MN and we moved to oregon in april. His IEP and his health care directive was sent, they choose not to accept it. BECOUSE, the reality is, nobody wants to be responsible for matt, there is no on site nurse at any of the schools, but one that travels throughout the entire school district.

    none of the neighbors whose kids went to redland had to register for ogden. I have never had to register my other kids to go from elementary to the middle school then to the high school when in the same town and school district, and when my daughter was in ogden last spring, I didnt have to register for her to go to the highschool this year. Its another ploy, like telling me I may have to wait till someone reviews his IEP and then decides what to do with him, he takes regular classes, and gets the special help, why would he need to wait? why shouldnt he have orientation with his peers? why not be able to get his lockers with everybody else, to tour with everybody else? why should he wait? becouse they dont want to deal with him? not good enough.

    thanks for that link danismom, I will print it out, fill it out and have the dr sign and bring in on monday, Im sure they will toss another log onto the road for me to have to drive around. :rolleyes:
     
  7. KatieSue

    KatieSue Approved members

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    Does the district have any forms on their website? Ours has all the forms they want filled out and you can just download them and get them signed.
     
  8. Sarah Maddie's Mom

    Sarah Maddie's Mom Approved members

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    Ok, the school is not doing a great job, but you know that they have been difficult in the past so really it's your responsibility to dot all your "i's" and cross the "t's" . At some point it's your job as his parent to know who your insurer is, to look at the prescriptions before leaving the doctor, to pick up the phone and attempt to preempt the school and anticipate forms, registration, supplies.
     
  9. MamaC

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    I believe that these are all questions that you should address to school administrators, both verbally and in writing, before orientation on Tuesday. Like, Monday at 8AM. And maybe with a witness.
     
  10. ecs1516

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    Well actually mine are on the pump too, but they want the formula on a form , correction formula and ratios, in case of pump failure or a high BG with ketones . I would want them to give a shot in case I can not get there. Our school uses the children healthcare of Atlanta diabetes form. I know public school has their own forms too. The endo office should know all about these forms. Mine just filled it all in and faxed or mailed it to me.
     
  11. hawkeyegirl

    hawkeyegirl Approved members

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    I have to register my kids for school every year, and that's just going from one grade in the same school to the next. Is that unusual?

    I don't understand what you mean about it being a "ploy." What are they making you do to register him? Are you saying that he is the only student in the school who had to do whatever that is? He's never even attended school in this district before, has he? ETA: The school's web page has registration information (forms that appear to need to be filled out every year) and says that new students should contact the school to complete the enrollment process.
     
    Last edited: Sep 8, 2012
  12. anna-bananna

    anna-bananna Approved members

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    As far as I know, the school is legally bound from giving any diabetes care without current school orders from the endo/diabetes dr. At least, that's what DD's school has led me to believe. They are amazing with her D care, but cannot/ will not do anything except what is written in the school orders from the doctor. So, if you don't have current school orders, they may not be excluding your son, per se...they might just not legally be able to care for him.

    I would call the number of the endo you were referred to over the weekend to find out the soonest time you can call. I would call at that time, and tell them that your son is starting school on Tuesday, and doesn't have school orders. Due to a lapse in insurance, you were only recently able to get in to see a gp, who has referred you to them, but who does not know how to write school orders... Would they be willing to confer with him so your son can start school on Tuesday. if they say yes.. Ask who to follow up with and when. If they say no...ask them what they suggest. If you cannot get school orders in time, you might honestly have to go to the school for D- care, until you can get school orders.

    After I got off the phone with them, I would go to the school and ask for a checklist, or something in writing, telling exactly what they need in order for your son to start school.

    I think, at this point, what you have is a perfect storm of events that are excluding your child from school, including changing states, lapsed insurance, immunization delay, and lapsed endo supervision. It sounds like things are finally getting sorted out, so hopefully it will only get easier/better from here.

    If nothing else, he could maybe register for online public school, until everything catches up with itself. I can understand why that would not be your first choice, or his, but at least maybe he could keep up with his education until everything can be worked out for "regular" school. I think 1 is called "k12 academy," and the other is "Oregon connections academy." i think both are free including supplies and materials. I have friends doing k12, and they love it.

    Hope this helps... Sorry for typos, I am typing this on my phone.
     
  13. mmgirls

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    we have to "register" every year, for the same school, this year it was online and last year it was on paper.

    They will not accept care of her unless "Dr.s orders" are received on their forms, filled out by the Dr. not by us. She is too on a pump, for the most part, and if here was a site or pump problem then the nurse needs orders from the Dr on what should happen. Our forms give us a "leeway" so to speak, that I as a parent can change without contact to the Dr.

    I kow this is completly fustrating and you are trying your best, but I do not think it is a a tactic to keep him out. They simply can not get him set up in the system without this information. Is it possible for you to be there and do his care for him? even if he is capable to do it himself? Just so he can participate. Of course after you have him registered.

    I hope that someone from the area can help you navigate the road. have you gone beyond the school and spoken to the district and or at least the principle?
     
  14. caspi

    caspi Approved members

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    OK, so I'm bored tonight and googled your school district, found your middle school and also checked out their Facebook page. Like I said, I'm bored. ;) It says in numerous posts on the Facebook page that registration is required.

    As far as the medical forms are concerned, I would contact the endo and ask if you could stop by to pick up the required form (they should have it). Then fill it out and take it to the GP for their signature.

    A bit of well-intentioned advice.... The more willing you are to work with your school personnel, the farther it will get you. If you start out with a chip on your shoulder and believe that just because you didn't have to do x,y,z at your last school you shouldn't have to do it here, it's not going to get you very far. Every school district is different. Good luck! :cwds:
     
  15. virgo39

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    It sounds like there is a lot going on all at once. I know I deliberately separate our quarterly endo apps. One deals with annual blood work, another with back to school, and another with annual prescriptions. And we still find that sometimes something gets overlooked, I can't imagine what I would do if I had to cover all that with a new, non- specialist M.D. And insurance issues to boot.

    Our district also requires us to register each year, even if we are staying at the same school. We also are required to provide doctor's orders in order for the nurse to have the authority to help DD.

    It may be that the school is not being as helpful as they can be, but some of the things they are requiring seem pretty standard to me.

    Good luck getting it sorted out.
     
    Last edited: Sep 9, 2012
  16. Beach bum

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    Nope, not unusual. What I find unusual is that we don't have to register our kids. Not even last year when they transitioned to middle school. They just want to know if your kid isn't coming to school...IMO strange.

    We don't have to use school forms for IHP or 504, but the school will take the big points (ie. testing, absences) and put them onto their form, which I then sign off on. There's a blurb about for more detailed info see attached forms (which is my 504 I submitted). I agree on getting something in writing from the school so that you have all bases covered.

    We have to have all signed orders for my daughter to be treated by the nurse. I supply a form from the endo that has all the correction factors, sensitivity factors. In 7 years of school we've only had to use it once, but I was glad it was there, the nurse just looked at it and did the math. I would contact the endo (go in person if necessary) and request the school forms they use, then fill out and have GP sign.

    Are there any other families at the school with T1D kids you can contact for guidance?
     
  17. valerie k

    valerie k Approved members

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    well, I never had to register my kids in mn after they were in the school system. When going to elementary to middle, they went on a night before school started to get thier scheduals and to get thier pic taken for the school ID. Same would happen each year at the high school, it was a picture taking event, and getting scheduals. I would hardly call that registering, becouse they were already in the system and just getting information for thier classes. :confused:

    I wish online was an option, but its not, we tried it last year in mn, and two of my three had to return to public brick school, they dont have the drive to do it on thier own and missed the comrodery with thier peers. I was lucky, I got them both into a charter school instead of the middle school they would have gone to in mn. Yes, I went in and filled out paper work to get them into that school, and yes, when we came to oregon, I went in and filled out paperwork. Erika slid from middle to high with just getting her pic taken and getting a schedual on what you must deem "registration day". I didnt have to fill out a lick of paperwork to get her into high school from the middle, why would I have to fill out paperwork to get matt from elementary to middle :confused:

    I will print off the paperwork and go have the dr sign it, I dont know who will be matts endo, I dont even get to know yet what clinic they will let him go to. Public assistant insurance is a totally different ball game then private insurance. I have three pieces of paper, one says keep this its your numbers, one is a paper with thier "cards" on it, its just computer paper, not even laminated plastic or even laminated paper that thier cards are on. and a paper that says whats covered. You must call and get numbers for each and everything you want. call and wait, call and wait, call and wait. I have spent more time on hold then I care to remember. I got the cards and called right away to get my daughter an eye appt. I can see one of two drs, and the soonest appt for public insurance to be taken, is the middle of oct. :rolleyes: it took a week and a half just to get the soonest appt for matt to see the dr on thursday. Of cource, at anytime, I can walk into any emergency room and get help....:rolleyes: and it will be fully paid for.
    Dont get me wrong, Im very gratefull. We havent had insurance since feb when my husbands job went away. He still isnt working and I am only part time. I am desperately trying for full time, however, thats as scarce as hens teeth at my work. I can also try and get them on insurance next go round of open enrollment, however, I dont know if I can afford to have any money taken out of my checks at this point. What really stinks, is I will be able to insure me, and the kids, but not ken since Im only part time, and that insurance will have major co-pays and deductables, another aspect I dont think I can afford at this time. The spot between a rock and a hard spot, is very tight indeed. :( having to ask for public assistance becouse you can no longer afford to care for your family on your own like you always have in the past, is a very bitter pill to swallow.
     
  18. caspi

    caspi Approved members

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    Questioning why you have to register isn't going to get you anywhere - fill it out and move on. :cwds:

    As far as the medical information is concerned, if I remember correctly your child was seen by a GP so they will be able to sign the paperwork. When I suggested going to the endo's office it was just to get the actual form that the school requires. Get the form, fill it out, take it to the GP who last saw your child and have them sign it. Then take it to the school.

    And as for being on public assistance, it's nothing to be ashamed of. You have to do what you have to do for the health and well being of your children. Good luck! :cwds:
     

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