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How does a 504 help?

Discussion in 'Parents of Children with Type 1' started by Erika's Mom, Apr 10, 2012.

  1. Erika's Mom

    Erika's Mom Approved members

    Apr 3, 2010
    My daughter has Diabetes and Celiac. I'm wondering why it's a good idea to have a 504 plan. I'm a visual learner, so could you give me example situations where a 504 is beneficial for someone with diabetes and celiac? Thanks for your help.
  2. Butterfly Betty

    Butterfly Betty Approved members

    Dec 8, 2010
    One way is for any type of testing, such as Standardized testing. If my daughter has a low in the middle of the test, she's allowed to treat and wait till she is in an acceptable number before returning to her test without being penalized.
  3. Beach bum

    Beach bum Approved members

    Nov 17, 2005
    The 504 is a written agreement between you and the school to follow a set list of orders above and beyond what your doctor has already ordered.

    We have a detailed list of instructions/protocols from our doctor that the nurse has to follow. Then we have the actual 504 itself. In it are things that the school has to follow, in addition to the nurse having to follow the medical plan. The two different plans work independently of each other for the most part, but at times do converge.

    If you go to the CWD home page, there are some good examples under the school section. There are many parents of kids with Celiac that can chime in on things that you'd want to include.

    Some things on our 504:
    Unlimited use of restroom, access to water
    Protocols for standardized testing (ie. bg's should be in a certain range)
    Field trips
    Blood sugar testing
    Some schools require kids to test at nurse, some don't.
    We have that our child can test anywhere, anytime on campus, and she can treat too. We feel that going to the nurse at this age (11) requires her to miss important information in class.
    Excused absences. We have that our daughter is not to be penalized for diabetes related tardies/absences.

    The 504 is a valuable tool. I always say it's better to have it in place before a problem occurs so that you can just say, "this has happened, please refer to our 504 so it doesn't occur again." Also, by setting up the 504, it sends a clear message to the school that you mean business.
  4. juliesmom

    juliesmom Approved members

    Jan 18, 2009
    Most importantly for us was getting in the 504 that my daughter can test anywhere. It has been an issue even with it in the 504 and being able to refer the school personel to the 504 has helped resolve any problems quickly.
  5. swimmom

    swimmom Approved members

    Feb 23, 2007
    In addition to the examples already posted, my daughter has occasionally needed extra time for homework (or a reduced amount of work). For example, she had a kinked infusion site and her BG was 350 when she came home from school. She felt crummy for most of the afternoon and had a headache. No homework got done. I can email the teachers and let them know that she needs an extra day (or sometimes they might drop the assignment or reduce it). That's in our 504.

    Her teachers have (so far) been lovely people who would probably give her extra time anyway, but in case we run into a meanie, it's in the 504.

    It also allows her to carry her supplies, including tabs, juice, candy, etc., even in "no food allowed" situations.
  6. MommaKat

    MommaKat Approved members

    Sep 2, 2011
    Everything here so far. I like to differentiate between a 504 and and individualized health plan with the following. The IHP lays out doctors orders for school health services to follow. The 504, on the other hand, outlines the responsibilities of the school administration, staff, teachers (including specialists), you, and your child for providing a safe and equitable educational experience in light of her specific care needs. In order to ensure that she benefit from all learning activities with the least amount of interruption possible, and that support measures to ensure her safety are available, everyone has a role and specific responsibilities - you send supplies and snacks, if old enough she agrees to test and inform the appropriate person of her level, or times she is low or not feeling well. The teacher has the responsibility of becoming aware of warning signs, knows not to send her to the health room alone, etc.

    The ADA Safe at School section of their website has a downloadable pdf file of example accommodations. It isn't that you need to choose every single one listed, but rather look over the list and decide what is essential for your child given current grade and independence level. There are also example 504 plans for diabetes that you can use as a starting point and tailor to your needs. ITA with Butterfly Betty, best to have one in place before something comes up.
  7. CAGrandma

    CAGrandma Approved members

    Mar 14, 2006
    Both high and low blood glucose can have significant effects on a child's health, life and ability to function in school. Without a 504 the child must rely on the good will and flexibility of the teachers and school staff. In some schools, there is a huge supply of both and kids are well cared for at school. In some schools, with some teachers, rules and procedures and "we can't do anything different for you than we do for other kids" overrules safety and fairness. A 504 is a legal document that obligates the school to provide what the child needs regardless of the personal preference of any one staff person. It is accepted by the standardized testing services, and once you have one in place it continues from year to year (you can modify it though). It clarifies and standardizes things and helps reduce conflict in the long run.

    There are lots of sample 504s to see what kinds of things people put in.

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