I'd gotten some handouts from a friend years ago after Steven was dxd, the ones for teachers. At the bottom they said Childrenwithdiabetes so when we finally got internet I checked it out Really wish I'd had it after he was diagnosed. Imagine what it was like for people before there was CWD :cwds:
Looking back, I see I joined 8/14/07, Samantha was diagnosed 8/1. I think I found it by accident..just searching on the web. Thank God I did!! Can't imagine life without CWD.
At the hospital when he was diagnosed he got a blue backpack full of info and stuff and it has the CWD website, one touch and Animas printed on the outside. I'm so glad I found this website. Reading the post on this forum have not only helped educate me to a detailed level you don't get from the doctor but it has saved my sanity more than once.
Willow was dx 2 days I think - I needed someone to talk with and my DH was not working . . .(although he is Type 1) he was not nearly as emotional as I was and I really needed the support. 18 months later I still use this site more than any other D site out there. I have been to almost all of them that I can find with a google search and always end up back here . . .
Google For some reason, this is the only diabetes site I found. I've heard others around here mention other sites, but I've never looked.
We found CWD from our own efforts as well, but I would really love to see more in the category of "from the hospital at the time of dx". As a community, what can we do to rectify this situation?
Googling. Looking back later, I saw there was a pamphlet from the dietician listing this site, but no one ever verbalized it to me.
I agree, it appears the majority has found it on their own.. Having the flyers hand outs at the endo's office, or part of the Bag of hope, or hand outs in the hospital is a good idea. Since we weren't in the hospital at dx having it at the endo's office would have been helpful.
I really don't remember. I think I may have heard about it on the ADA board. But I really didn't post here for a while as it didn't seem very active. Then I had trouble logging into the ADA board at work, I always got an error. So I started posting here instead. I think it was also mentioned in the multitude of information that we brought home from the hospital, but I didn't notice it until after I had already found it.
After diagnosis After our daughter was diagnosed and we brought her home from the hospital, my husband did a lot of searches on the Internet. He found it along with many others. It has been very helpful
I found out from our ADA Advocate for school issues, who also recommended getting in touch with momtojess.