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Hello Everyone..

Discussion in 'Introductions' started by mommytoalyssa, Feb 1, 2011.

  1. mommytoalyssa

    mommytoalyssa Approved members

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    I just found out yesterday that my daughter has diabetes. She is 4 years old. We have to wait until the 25th to see the specialist to find out what type and whether she will be on insulin or not.

    My mother was born with diabetes. My aunt developed it when she was 6, and I myself had gestational diabetes.

    I am pretty informed about the disease, but it does not make it any easier finding out my child has it. It's scary and I'm going through a million emotions.

    I came here because I know she can live a great life and I know it's going to be okay, but it'd be nice to have support and understanding from other parents.

    -Amber
     
  2. obtainedmist

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    Welcome Amber! So sorry for the dx. I'm surprised they are making you wait until the 25th for an appointment! I would recommend that you try to move that up. It's a long time to wait (unless they've already set a temporary course of treatment and are waiting to get the results of antibody tests, etc.). We found the "Understanding Diabetes" by Chase to be great...plus it has a pink panther on the cover ;).
     
  3. mommytoalyssa

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    Thank you! You know.. I was thinking it was a long wait as well and was going to see about bumping it up but didn't know if I had the place to say anything. And thanks, I'll have to check it out.
     
  4. Kaylas mom

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    Welcome. We just had our second child dx with d yesterday. He isn't starting on insulin yet because his numbers come back to semi normal range after meals and his fasting numbers are good. What syptoms is your DD having?
     
  5. mommytoalyssa

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    Actually, I took my daughter in because she I thought she had a bladder infection because she was complaining it hurt when she used the rest room, and that's when they took her urine and found the sugar in it and then took her blood.

    But now that I know she has it, I do recall her complaining of her feet tingling/falling asleep lately, a few times a week actually. And also, she has been using the rest room in the middle of the night frequently, but I didn't think too much of it because she drinks water in the evening before bed. Also, her thirst was increased, she's constantly asking for water.


    And on a side note, I just called the doctors and they bumped her appointment up to the 9th, yay!
     
  6. emm142

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    Okay, I'm not trying to scare you, but it really worries me that they are leaving your appointment for so long. Unless your child is severely overweight, it is very likely that they are thinking of type 1, which can escalate to very dangerous very quickly without insulin (I was rushed straight into hospital for several days when I was diagnosed, and that's common for a lot of children).

    Some people have a slower onset, but you make it sound like she recieved this diagnosis purely on the basis of a positive urine glucose test, and then had some other bloodwork taken. Did they actually do a fingerprick blood glucose level at any point, or check for ketones?

    I'm really sorry to hear of your daughter's diagnosis.

    ETA: If your daughter has any of these symptoms

    Vomiting
    Heavy, laboured breathing
    Smell of nail polish remover / pear drops on her breath or urine
    Rapid pulse
    Rapid breathing
    Abdominal pain
    Drowsiness or confusion

    then you want to get her to a hospital.

    Sorry again for being scary, it's just that there are a lot of horror stories about doctors missing the diabetes diagnosis, or treating it as less serious than it actually is. I really hope your doctor is right in saying that your daughter can wait this many days, but I just wanted to make sure you are aware of these symptoms in case things are getting dangerous faster than he thought...
     
  7. mommytoalyssa

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    Thank you, I appreciate your honesty. Yes, they did a finger prick. And yes I just got her appointment bumped up to the 9th thank you. :)
     
  8. emm142

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    Okay, hopefully that means her blood glucose was only mildly elevated and you caught it early. Best of luck for your appointment. :)
     
  9. mommytoalyssa

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    Yes, her sugar was only 200, i mean not great, but could be much worst! And thank you :)
     
  10. MyBoys'Mom

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    I'm glad your appointment got moved up, but please, please watch for any of the signs Emma posted and don't hesitate to take her to the ER if you see those symptoms - even if you think you may, but you're not sure.

    Thank you!
     
  11. MamaC

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    Emma's post is right on point. Glad you had the app't changed to the 9th, but I'd suggest you call back and ask to be put on a waiting list should anything become available before that.
     
  12. obtainedmist

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    Good for you! Be a squeaky wheel all you want with this stuff...you have to be the advocate from now on. I try to be as polite as I can be...but I had to learn to be assertive when it came to Molly's care.
     
  13. mommytoalyssa

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    Yeah, I was definitely thrown off when they called today with the "25th" because my pediatrician told me I'd probably see the diabetic doctor the very next day. I knew waiting til the end of the month was definitely not okay though.

    Thanks for all you guys' advice and I will definitely be keeping an eye on my little one!
     
  14. Flutterby

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    Sorry to hear about your daughter's diagnosis.. Like Emma said, keep the signs in mind and if she gets sick, take her to the ER.. Also, since D runs in your family, if you can get a hold of some strips and a meter, test her to make sure she isn't going to high.
     
  15. mommytoalyssa

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    My mother has a meter and strips and I attempted to test her today, but she was extremely scared and refused to do it. That's gonna be tough to get her use to.. I don't want to FORCE it because it's something she is going to have to do, but I'm not quite sure how to get her willing to do it. Of course. I did it to myself and showed her how it worked and let her press the button and see the needle move, but she still refused to have it done to her.
     
  16. VinceysMom

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    Amber,

    I hear you on the emotions, even though you know all about this disease, it is your child. It took me many many weeks to accept my child has diabetes. We must be advocates and a loud voice for our kids, always speak up, that is your right as a mother. If you want to bump up the appointment even more, call your pediatrician and ask that he/she call and see if they can get you in tomorrow. My sister is a Type 1 and boy, I knew NOTHING about Type 1 until my son was diagnosed. Ugh.

    So, with all this said, I wish the best to you and your child. Come back here often to post questions, to vent, to get advice. There are so many wonderful wonderful people here who have been doing this a very long time!!

    Good luck to you,

    Kathy
     
  17. mommytoalyssa

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    Thank you very much. Yes, that's exactly it, I've lived around it and know about it, but it's definitely a different story when it is my child. I'm not sure where I stand and what I can do/say, you know? I appreciate the support, and it's nice to come where people understand. I get a lot of "well my friend's nephew has it, she'll be fine." Yeah.. that doesn't help any with the emotions and the adjustments. I know people are trying to be kind, but they just don't get it.
     
  18. Flutterby

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    Honestly, I'd approach the finger poking as its something that HAS to be done to keep her safe.. get a multiclix poker.. you don't see the lancet and it doesn't hurt much at all.. start with the lowest setting.

    I remember those emotions.. and unless you live it, you don't 'get it'.
     
  19. mommytoalyssa

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    Thanks.

    And very true, tomorrow she's going to do it either way, kicking or screaming... I already told her that..
     
  20. lakevictoria

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    The Delica fingerpoker and lancets are our fav!
     

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