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Getting next years 504 ready...7th grade

Discussion in 'Parents of Children with Type 1' started by Beach bum, Apr 30, 2013.

  1. Beach bum

    Beach bum Approved members

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    :eek:
    I cannot believe my girls are going into 7th grade! When the heck did that happen?

    Our school does the 504 in the spring, so I'm working on getting it cleaned up now.
    Anyway, we have pretty much all the meaty stuff in the 504 now (ie. test anywhere, test before testing etc).

    Is there anything you can offer for this grade level? Anything you felt was no longer relevant for your child since they are older? I'm going to drop the check in with the nurse for snacks, I'm still thinking about a check-in at lunch since she sometimes makes errors in her adding...
     
  2. LucyAmber

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    being able to have a water bottle in class if her number is high, && bathroom breaks?

    texting her blood sugars to you (if she has a phone)
     
  3. Megnyc

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    Is she going to play sports? I know my school started modified sports in 7th grade and you could also play JV or varsity depending on experience. I played varsity tennis and was on the varsity ski team from 7th grade onward. If so there are a bunch of important things you will want to include for that but they depend on your daughter's needs of course.
    I will post what I had:

    1. Even if I missed gym class for a diabetes related reason (under 65 or 400+ with ketones were our cut offs) I was still allowed to practice and compete (NYS or school rule at the time- no gym=no after school sports).

    2. Athletic trainer or RN trained in glucagon attends all competitions and is on the premises during all practices and reachable by walkie talkie at all times.

    3. All coaching staff trained in glucagon.

    4. Parent or adult appointed by parent permitted access to student athlete (me) at all times including during competitions. It is the responsibility of the school to ensure that is always arranged beforehand.

    5. Access to Gatorade and water at all times. Access to glucose gel at all times. Glucose gel, gatorade, and water immediately available on tennis courts at all times.

    I am not sure if you would be able to get all this into a 504 but it is just something to think about, especially as sports get more competitive. I had an individual health plan in middle school that was not technically a 504 (not even sure if it was legally binding). I am actually shocked looking back at everything my parents were able to get the school to provide.
     
  4. McKenna'smom

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    I know exactly what you mean. My DD's going into 8th grade next year! Where has the time gone? Anyway, we just had her 504 meeting last month. Everything that was in her 7th grade 504 carried over including being able to carry and use her cell phone for D needs, checking blood anywhere in school, allowing a parent to go with her on field trips, BG testing before and during tests, etc. We also added that she had to be able to meet with her teachers next year before school started to go over her 504 with them. This has never been a problem, but we put it in writing to get it in next year when we do her 504 for high school! :eek:

    I just wanted to add that DD has been pretty independent her last 2 years in middle school. Only having to go to the nurse when she has a bad inset, runs out of insulin, etc. She takes her lunch so I count her carbs so she knows exactly how many bolus for. She knows to add for anything she might buy, like extra chips. Our school provides carb counts for food purchased. Will your DD buy her lunch? If so, see if the school district can provide the carbs.
     
  5. Sarah Maddie's Mom

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    Absolutely the gym thing Meg mentioned. Our school also has this rule and Maddie missed her first Lax game of the season due to missing PE hours earlier in the day for a site change and super high. I was unaware of the rule and furious. That won't happen again:rolleyes:

    And field trips. We changed her 504 to allow her to go on single day field trips without the nurse, mom or glucagon. She managed fine and in the end the nurse was there for other kids, but she wasn't annoying DD :p
     
  6. momof3sons

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    My son has a computer class after lunch where work could ONLY be done in class. We have had some after lunch issues, a couple of ketone "events" and an endo appt.... suddenly enough zeros to give him an F at progress report time. We need to address issues like that.
     
  7. Beach bum

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    Funny you mention this one. Her class is going to a art museum down in Boston. I am going to meet her there a bit later as we have a endo appt. and my husband works in Cambridge. I said I felt secure with her taking care of herself especially since we have the CGM and only request that she has her cell phone, and that her teacher be aware of this and just keep an eye out for lows. I said I would actually be in the museum, just not with the class (enjoying myself:D), so she could just call me with a problem.
    The nurse said, they were sending a nurse to accompany the class...
    Now, I don't know if it's that the don't trust her, but I think it has more to do with a)large number of kids b)what just happened in Boston c)a kid fainted one year and had to go to the hospital. So, I think it's a matter better safe than sorry.
     
  8. Beach bum

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    LOL, I don't want to go on the field trips:D:eek:

    She too has become very independent and pretty darn responsible with her d care at school. This is due to a fantastic staff that encourages her with out pushing and harping.
    Rarely will she buy lunch, too gross they say, but the school actually has all the carb counts on file, and they are pretty spot on. Though, I know her, she claims to be pretty good at guessing carbs!
     
  9. Momontherun

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    I am not trying to hijack the thread but my son will be in 7th grade and I have some similar questions.
    Do your kids carry their meter with them and then test in class If not feeling well? My son is rotating classrooms and test as needed in the nurses office.

    If your child is running low do they then go to the nurse for treatment or does the child take care of this own their own. At what age do they start managing their diabetes independently for lows or highs.
     
  10. Sarah Maddie's Mom

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    Started testing in the classroom and treating in 3rd grade. Still saw the nurse once a day until Middle School when she took full responsibility for the daily routine, only seeing the nurse if she needed a site or insulin or was having trouble getting a low to come up or feeling super bad from a high, both of which are rare for her.
     
  11. Beach bum

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    My daughter has been checking in the classroom since 3rd grade. There is no way she can miss class every time she needs to test. She started managing highs/lows in 4th with a phone call to nurse, same for 5th. Now she takes care of lows but if she doesn't come up she goes to nurse. For highs she still feels more comfortable checking in with nurse.
     
  12. Joretta

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    I had my daughter at that age with a nurse for field trips if parent was unavailable because she wanted to be like other kids and less parents go by 7th and 8th grade. However I was not ready to not have a trained medical person in my place. In our area teachers cannot be trained.
     
  13. Flutterby

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    Kaylee is going into 5th grade next year but she's going from a very small elementary school to a rather large middle school....I'm so nervous, she's had it very easy in e,me. School. The staff has been so great...the nurse in the middle school said to me that her kit will have to be locked up in the nurses office...umm, I don't think so! She's been testing in the classroom since kindergarten and what about lows and highs? Hello her kit will be with her at all times... I have my meeting in two weeks, I've already mentioned this to the 504 coordinator from the elem. school who will be part of this meeting, she totally agrees that it's not to e locked up but I'm still nervous, I don't want any battles. I get that she'll have to head to the nurse for testing, but her kit is to stay with her at all times.
     
  14. haffgus

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    I had written in our 504 that we were allowed to schedule her classes with the counselor (this was the counselor's idea). We were able to pick the time of day we wanted her to have phy ed and pick her lunch time. This was nice as her lunch time did not change between trimesters. We also selected her math class at a time when she historically had stable numbers.
     
  15. Ali

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    This is a good idea.
    Ali
     
  16. Adinsmom

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    This is a very good idea. Thanks for posting it. :)
     
  17. Sarah Maddie's Mom

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    I'm not sure how our school could make this work. They break out into different level for math, science and literature, also foreign language and two electives per semester. I think it could be that you'd end up missing out on other classes you might want/need in order to get lunch and PE at a fixed time. Perhaps our school isn't large enough to accommodate this plan?
     
  18. Beach bum

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    Nice, but not feasible at our school. Everything is done by grade level. So if the 6th grade is having lunch, the 5th grade is having specials. 7th and 8th mix for certain classes. All core courses are taught at the same time.In our case, the entire school schedule would have to be based on my kid, which I think would be pushing the envelope just a wee bit! So we just work the best we can around it. IMO, it's good for her to learn to adapt to the situation.
    __________________
    Our school is too large (and we really aren't compared to others) to accommodate this type of plan. Too many students and too many variables coming into play.
     
  19. KatieSue

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    My daughter was diagnosed in Middle School. They had a rotating block schedule. So PE was always at a different time. The Endos asked if we could have her in a different PE class so it was at a fixed time which made me laugh. Nope that was how the whole school worked so we just figured it out.

    We didn't have a 504, we had no idea they existed. But the Nurse was great and basically accommodated almost everything we'd have put in a 504. She could test anywhere on campus, the nurse asked her not to in the bathroom though because "they're gross". She only went to the nurse when she felt she needed to and was always escorted by another classmate. The only thing we didn't have was the use of her cell but she was always able to go to the nurses office and either call or text me from there so it wasn't a huge problem.
     

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