Sadly Ava is back at Children's. She was admitted Saturday night with a nasty gi bug. It's a doozy. Last October she was admitted for four days so between the two we've learned quite alot. Here are some key tips. 1. Bring your own stuff. Must have items are Precision ketone strips, your own lancing device, pump supplies and meter. Hospitals are still using urine ketones, only checking every three hours even if you want to test more and the hospital lancets are pure evil. 2. Bring food your child will eat. Particularly if they have celiac. Nuff said. 3. MOST IMPORTANTLY, be proactive and talk daily with the endrocrin team and demand that they lead your child's care. If you don't agree with a decision that a doctor or nurse says, stay calm and repeat these words. "Please call the endocrine team, and follow their suggestion, thank you." When we knew we were headed to the ER, I called ahead and had the endocrine doc on call paged and told her we were coming in. This way the doctor leading your childs' care is an experienced endo, not what ever overtired ER doc who happens to be there when you come in. Each day, she and I spoke on the phone, agreed on a plan, then I'd hand the phone to the doctor in charge and the endo would expain what to write in the orders. This made life SO much easier. The first time Ava was in the hospital, I believe doctors who were not as familiar with diabetes made some choices that kept exacerbating the situation. This time, I felt empowered with a plan that the endo and I both agreed to. Still several nurses and doctors had weird unexperienced things to say. (Are you SURE you don't want the sugar free jello? You know it's got carbs in it?) and "If she's over 250, we'll have to correct with a syring." (Yeah, she's sick, you're pouring dextrose through an IV drip, she's going to be over 250, I am NOT going to correct with a sryring.) So I would just say, "I'm sorry, please call the endo." It is my new mantra. When faced with nurses on power trips, simply smile and say "Please call the endo." Lather rinse repeat. Assume that the doctors and nurses if they are not CDE's do not know as much as they think they do. But DO follow the endo's recommendation as they will help you get through what ever evil bug has brought your dear one to the hospital.