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Does everyone love thier Endo?

Discussion in 'Parents of Children with Type 1' started by somanybakers, Feb 18, 2011.

  1. somanybakers

    somanybakers Approved members

    Dec 24, 2007
    I am wondering because we have had a run of bad Endo luck and I am at my wits end. I drive 2 hours and we see this Endo and his nurse for a combined 6 minutes (and I am being generous). They charge our insurance 1500.00 for these 6 minutes. I can call with questions after the appointment for 7 days. After that time period it is a 40.00 charge to speak to a nurse.

    I find that the only thing I really get from our meetings are the once a year scripts. I handle his care, I make the adjustments I do the research. They give input based on a a quick review of a few days readings.

    What is your relationship with your ENDO like? Do you consider him/her a partner in your child's care or a means to get supplies?
  2. MamaBear

    MamaBear Approved members

    Jul 20, 2010
    We love our endos (there are 4 but we have only actually visited with 2) and I feel very lucky to have them caring for my son. Part of the reason I feel so lucky is because I have seen others post on here about problems with their endos. So no, not everyone else does love their endo. You're not alone.
  3. Sarah Maddie's Mom

    Sarah Maddie's Mom Approved members

    Sep 23, 2007
    I'd have to look at our insurance statements, but I'm pretty sure that our endo bills insurance about $600 per visit, and I've never seen a statement for any calls or email communications. :confused:

    We're 8 years in, we've switched practices 3 times and we rarely see the endo, but our CDE has been at this for probably 30 years. ;) She's a straight talker who we've known since Maddie's dx (she's moved practices too) and Maddie likes her so.... And our visits run between 1 hour and 90 minutes.

    It sounds like you're not getting the care you want. Perhaps if you post your location others will chime in?
  4. swimmom

    swimmom Approved members

    Feb 23, 2007
    I like our endo and the nurse PA very much. Appointments last 1-2 hours. No charge for calls between visits (the nurse will even email).
  5. buggle

    buggle Approved members

    Mar 24, 2008
    We lucked out so much with our endo. We got the endo on call who was taking new T1 children at Barbara Davis Center the day Brendan was dx'd. She is incredible. We stopped seeing a CDE early on and we only see the endo. She usually spends about 45 minutes with us. Our insurance is billed about $275. I can also contact her any time. Initially, we had her office phone number -- direct. She asked us to call her every day for about the first two weeks to go over Brendan's logs and make adjustments. She is an attending at the Children's Hospital now, but she still sees her patients at BDC one morning a week. I can email her and she usually answers right away. She goes out of her way for her patients.

    I know that in some regions of the country, there are slim pickings for endos. But I think it's worth looking to find someone who fits you and your style of managing your child. Our endo is definitely our partner and she trusts us and we trust her. I hope she keeps her BDC patients until Brendan is 18. I'll be really sad when he has to switch to an adult endo.
  6. swellman

    swellman Approved members

    Jul 30, 2008
    I like our endo just fine but certainly not 1-2 hours drive worth - nope. Not for the 12 minutes we spend with them.
  7. mmgirls

    mmgirls Approved members

    Nov 28, 2008
    I do all my dd's care too, but, I can depend on my endo to return calls at any hour of the day. I even have called her a home, she keeps her number listed.

    I find using her as a sounding board when things are not going well and I am tired, that she can keep better track of the overall picture while I micromanage the situaction.

    I hope you find someone that can better fill your needs.
  8. fredntan2

    fredntan2 Approved members

    Apr 21, 2007
    love our endo

    She just came to our practice, fresh out of endo school.dx at 17, wears same pump as my dd, its closer in age to my dd, or it just seems like,

    At last apt, it was like I wasnt there.she is perfect in every way. Even have seen her twice now.says the right thing s.

    She seemed to spend a long time with us this last time.had to wait a long time in waiting rom, but its wort h it to se e good doc
  9. Amy C.

    Amy C. Approved members

    Oct 22, 2005
    After being diagnosed 13 years 4 months, my son is on his 6th endo. The first practice was the best. He had a finger prick for the BG and A1c test, was weighed and measured, saw a nutritionist, CDE, sometimes a social worker and finally the endo. Visits took hours. I had a good foundation when the endo decided to leave the clinic to figure things out on my own with the next 5 endos.

    The other endos didn't have so many people to see per visit, usually folks to take the blood and the doctor visits for about 20 minutes. I always had lots of questions. All except one looked at my son's log book. One was rather hard to reach on the phone, but I didn't really need to ask many questions in-between visits. The current one has the CDEs answer questions via e-mail, which is great.

    If you are unsatisfied with the service you are getting, there is no reason to stay, unless he is the only endo you could see.
  10. Gracie'sMom

    Gracie'sMom Approved members

    Aug 26, 2009
    We are on our 3rd endo. I loved the first endo herself, but we couldn't see her every time and usually we were seen by attending physicians who weren't even endo's. We moved on to a practice about 2 hours away. We liked them but it was just too far. The practice we have been with is very good, reasonable office charges (couldn't tell you what, though), spend about 20 minutes with us which is ample for us, and no charge for calls although I have never called in between appointments. They work for us, they are professional and timely (the first practice we waited an hour each time, this one it's more like 10-15 minutes), so we are happy.
  11. mom24grlz

    mom24grlz Approved members

    Mar 30, 2010
    Honestly we've only seen our endocrinologist once. Every other appointment has been with the CNP. She is really nice, and Ashleigh likes her a lot. She seems to be very knowledgeable about diabetes and is supportive in how we're handling things thus far. The CNP writes out all of our scripts for us.

    So overall we are satisfied. We drive a little over an hour to get to Ashleigh's appointments. We tried going to a satellite office that was closer (20 min drive), but Ashleigh didn't like it there so we're going back to the main office. It's a longer drive, but we really like the staff better there.
  12. dragonfly

    dragonfly Approved members

    Jun 28, 2008
    I think we have a great relationship with the endo. We spend 15 minutes together during a quick update, quick exam, and then going over the changes they recommend and why they recommend them.

    We email the diabetic educator when we download the pump information. She then calls us to tell us if they want to make any changes.

    They are great when we call about sick day care as well. Those days are few and far between, but its nice to be able to talk to them and see what else they want to do.
  13. Flutterby

    Flutterby Approved members

    Nov 11, 2006
    I use to love Kaylee's endo, now, not so much. I do love the people in the office, and her CDE is why I stay there. The nurses are a bit dense (I always talk to the cde when I have a question). I think the office visit is $300.. we get 90min. although we don't use all that. And every other visit we see the CDE, so it makes the appointments a bit longer. If I had my way, I'd just see the CDE each time.. They are about an hour away. Never, ever, ever been charged for a phone call or an email.
  14. Tigerlilly's mom

    Tigerlilly's mom Approved members

    Dec 3, 2007
    Love our endo!! We see endo every other visit. We have had two CDE's and have loved both of them. I think our appointments are around an hour, but we never feel rushed, I think if we needed more time we would receive it.

    We do not get charged for phone calls, during hours I ask to speak with CDE after hours we get a return call from on call endo.

    We travel approximately 1 hour (can be less, but is often more)

    ETA - We had a lapse in insurance coverage so we had to pay for a visit with CDE $323.00
    Last edited: Feb 19, 2011
  15. Beach bum

    Beach bum Approved members

    Nov 17, 2005
    We love, love, love our endo and nurse! They both are great with Abby, include her in on part of the appointment, ask her questions etc. We will be going on 6 years of using this team, and I see no need to switch as they work really well with us. Geographically, we live an hour away, but being that we travel to Boston, you never know what you're going ot get! Hmmm, do you think we go to the same practice as Tigerlilly? :)

    Our appointment schedule is 2x's a year endo, 2x's a year nurse. Appointments are scheduled in 1 hour blocks, we generally use about 45min worth. We go over pump readings, any changes, update basals, ratios etc. Pretty detailed appointment.

    If I need help I generally email the nurse first, if she's out I will bounce it off our doc or if it's an emergency call. We have never been charged.

    There's no reason for you to have to stay with a doc (obviously location and insurance play a role), many here have played the musical endo game!

    Where are you located? Maybe others can chime in and give their 2 cents.
  16. momof2greatkids

    momof2greatkids Approved members

    Jan 4, 2011
    We've only had one office appointment with Audrey's endo, but so far, we love her and her CDE. Luckily, a couple of friends had some knowledge of the endos in that group, and who we should avoid, otherwise, my response might be very different! We only pay our specialist co-pay for visits. When we call during hours, a CDE returns our calls; after hours and on weekends, the endo on call calls back. We aren't charged for these calls.
  17. lotsoftots

    lotsoftots Approved members

    Sep 11, 2007
    LOVE our Endo..sitting here at the hospital admitted for a BAD case of the flu and..after dealing with er drs and the dr here on the floor I know remember even more why I LOVE our endo:D....he even told me to do what I think is best for Samantha that we parents know more the most Drs..we are living it 24/7
  18. 5kids4me

    5kids4me Approved members

    Sep 28, 2010
    :/that is how I feel about our endo. She is just OK. They are not helpful with any changes with his treatment and we have been completely on our own since starting the pod. But, with that said, we have done really well and it has made me (more) confident in the decision making we have. I rarely get a call back the same day and have to call again. We travel 2 hrs to see her and she does spend a lot of time with us, but she doesnt tell us anything useful...it is frustrating. In this part of TX, our choices are limited and other parents of cwd see a pediatrician here locally. I am NOT comfortable with that.

    There is an endo about 4 hrs from us who has t1. My husband and i are seriously thinking about taking Josh to him after our apt with our current endo next month.
  19. nanhsot

    nanhsot Approved members

    Feb 20, 2010
    The endo isn't as important to me as the team of people, and the feel of the office. I'm just "eh" about the actual MD, but we don't see her that often, at least once per year actually. Some times she comes off as gruff and other times she's been really good.

    We drive an hour and a half, give or take. But where we live that's the closest with a medical center, so we don't go out of our way or anything.

    I love the CDE's, and the different nurse practitioners, who are there for every appointment if the MD is not. We are there at least an hour every visit and at this last visit they went through his numbers carefully and made some pretty big changes, really heard what I was telling her and reinforced what I needed my son to hear.

    Email contact is as often as I need, I almost never call, but I feel like i have a good connection when I need it. The one time I did call after hours a partner returned the call within minutes and I got good advice.

    So, bottom line, the ENDO is a means to an end, but the team in the office is valueable and I feel confident all in all in all of them. At the moment I even like the endo, but that quite frankly fluctuates with each visit!
  20. virgo39

    virgo39 Approved members

    Jan 8, 2010
    I started out liking our endo, now, not so much. In retrospect, I see that we got little to no guidance regarding making changes on MDI (with the result that I was using a very aggressive correction factor with DD, resulting in lows). I'm also a little frustrated because at our last visit, DH asked for some advice on DD's swim lesson highs. Endo's suggestion was do nothing. She does not seem concerned about variability at all, which I find frustrating.

    The CDE in that office is great on nutrition, not so much on management of diabetes, and she speaks in an imprecise way that drives me crazy.

    I really liked the CDEs at the hospital where we did our pump start and wish I had been working with them from the start. We've followed up with them, but I don't like the fact that the endo and CDE are at different locations and not part of the same office.

    I've recently considered changing endos, but wish doctors were more like other professionals. The nurse seemed appalled that I would actually want to meet with the endo before deciding to transfer to that practice!

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