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Do you still think pre/post D?

Discussion in 'Parents of Children with Type 1' started by goochgirl, Oct 23, 2008.

  1. goochgirl

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    I didn't want to hijack Tim's post, but this is along the same lines...

    Last year, at the end of the season, I bought Yossi 3 pair of new pj's for this year. The pre-D pj's that had feet and zipped up aren't practical for his pump or middle of the night diaper changes. Today I had to buy him Post-D pajamas that were 2 pieces. I was wondering how many pre/post moments you think about in a day and what gets you the most? For me, its definitely been the clothes that had belonged to his older brothers as toddlers, but are impractical for him because of D. Yossi has a new wardrobe. I had to give much of his brothers hand me downs away.
     
  2. Jordansmom

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    First Emmasdads post about the photos really got to me today. I wasn't sure how respond in a "Shake it off and go to lunch" sort of way. The photo of my DD that gets to me the most is a picture of her when she was three and she's playing dress up in a little wedding dress. I always thought that would be my favorite photo when she grew up and got married. I know, I know she has all the same opportunities for her future as she did before D. It still is the photo that stabs me in the heart.

    On the PJ note, I had promised Jordan a loftbed with a desk under it for her birthday next month (before dx). She has the smallest bedroom in the house. I have spent the last week trying to convince her she really doesn't want one, because I'm worried about how to test her in the night up there. It makes my stomach hurt every time we talk to her about her birthday now. It probably sounds stupid but it's bothering me.:(

    The one thing that comes up again and again, is how to deal with her wanting to hang out with friends and be a normal preteen and how worried I am when she's gone. I should be happy she's independent and social.
     
  3. goochgirl

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    That's sad! I can see where a loft bed could make it dangerous if she goes low at night and you can't get to her.
     
  4. linda

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    Look, to a certain extent, these are the normal 'growing up issues' we would have anyway...just a little different...There are worse things we could dwell on. Of course we will always have the bad days, but look to their future with the bright anticipation they all deserve!! Imagine the parents just a few short years ago, without such hope that the pump and cgms bring to thier lives.

    It is our job to instill in our kids the independence they crave and deserve!
    (and educate others to do the same!!) if you look around you will see many happy healthy D young men and woman and adults, with wonderful careers, families or whatever they want!!!!:rolleyes:
     
  5. tiffanie1717

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    I didn't read the other post the pp was talking about yet. But it's definitely photos for me. I am a big scrapbooker. I am up to Easter of this year and Kylie was dx in May. I just want to get past her dx because I keep looking at pictures thinking "this was before she had D." It eats me up inside! I'm going to a scrapbooking workshop this weekend and I'm hoping I can get through this without totally losing it! :cwds:

    I also sometimes think pre-D/post-D when I see certain snacks in stores that we would always just get and eat. I know she can eat whatever, but I try to keep her snacks more to free stuff so I can get a good 3 hour bg rdg. I miss just having a treat whenever we want without thinking about it.
     
  6. linda

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    let her have the bed, u can always pile her blankets on the floor if you expect a bad night, or illness, most nights will be fine, how high is it? you cant get to get to her finger?
     
  7. Jordansmom

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    I've been fighting with myself about letting her do it and just dealing with it because she should have what she wants regardless of D. Then I'm testing her in the night realizing it just isn't going to work. She had the flu and I was struggling testing her hourly (+ ketones juggling two meters one drop of blood) like the dr. wanted as it was. She came to me after the flu experience and said she really didn't want a loftbed anyway (I know she does).:(

    I know these are little things in the big perspective. But you asked about the little things.
     
  8. Jacob'sDad

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    There's always going to be things that remind me of pre-D times, such as pictures, but for the most part I don't think about it much. I certainly don't dwell on it. It's not something I think about daily. I actually dwell far more on the fact that I used to be thin. That's something I can actually DO something about.
     
  9. LJS118

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    Well Ryan will turn 12 in just a few weeks and he'll have d for 10 years...so I really don't think back much about his non d years...he's had d for most of his life:(
     
  10. joy orz

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    I have four pairs of adorable pjs hanging on a hanger that I'm going to give to a friend for the same reason. I actually bought them this season because it got cold, then went Do'h!

    Here's something that really got to me the other day, I found this onsie that Ava wore quite alot last year. It's long sleeves and had cupcakes on it. It was in the back of her dresser and I thought it might still fit, so I pulled it out and it smelled like her before she got sick. I don't know if you notice it or not with your kids, but Ava smells different now.

    The onsie had this "clean baby" smell and I just lost it.
     
  11. Flutterby

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    I think its been so long that I think we've done all the 'first' since dx, like the zip up flannel pjs and such.. I don't think about pre D days anymore, not at holidays, birthdays, seasons.. we've been there, done that.. the ONLY time I really think about pre D is photos.. how tiny and sick she was:(
     
  12. Flutterby

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    yup, this is the way I feel too.. although you've been dealing with this much longer than we have we've been through all the first since dx.. Kaylee is only 5.5 but has had D longer in her life than not..
     
  13. bgallini

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    Maybe you can do a low loft bed or some other cool type of bed. Or just redecorate her room with a regular bed and make it fun and different for her. We have a set of bunkbeds in one room and both boys (Alex had the bunks first and Neal has them now) have decided that it's too much of a pain to sleep on the top b/c it's hard to get down and turn off the alarm in the morning. So even for a nonD kid, a loft might not be ideal.
     
  14. BozziesMom

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    I still think in terms of pre and post. No jammy issues due to still being MDI. But I haven't gotten past getting sad every time something "reminds" me. I can't even tell the story of dx right now. At first I could. Now I can't bear to think it through. In a phase of some sort I guess.
     
  15. MamaC

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    Have you seen the "bunk" beds that are perpendicular to each other? Don't know if her room will accommodate those, but you could always slide a desk in there underneath and use the lower bed for challenging nights.

    As an alternative, let her have the loft bed and arrange a sleeping bag or even a cot for the rough nights.

    Just thinking out loud ;)
     
  16. andeefig

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    I know I'm weired with this, but I don't miss the pre-D days at all.

    Max's 1st year was a nightmare. He was in and out of specialists (per order of Pedi.)because he screamed ALL THE TIME. He had a bunch of minor health issues that combined, made for a crappy 1st year. When he was dx, he became a new person.

    The first time I saw Max laugh out loud was in the Hospital. Amazing what a little insulin will do!!

    That said, I can see how those of you who had a child dx later on would miss the pre-D days.
     
  17. sammysmom

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    Pre D was so long ago that it really is just a blur. Sam was dx so young and we were a young married couple with a 3 yr old also. I just do not remember a time that Sam and diabetes did not mix.
     
  18. momtojess

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    Jess had such a short time pre-d (she was diagnosed at 11 mths) and it was so long ago, I dont remember life with her without D, and she definately doesnt remember.

    Funny, I do remember pred celiac.. and we would both rather keep D and get rid of it!
     
  19. ange_mom

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    David was mad at me when I got rid of his footie pj's. But you can't change a pull-up easily in the middle of the night in them. I had to hide them on him and he still asks about them.
    We have talked about getting David a bunk bed because he probably won't be able to have sleepover's like other boys and his friends will have to come here, but when I think about the seizures that I have seen his dad have in the night, I'm not sure I want him up that high...
     
  20. robinseggs

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    Mandy was so young at 10 months and now being 6 yrs...I dont compare much either. When the D years start outweighing the nonD months eventually it became all I've ever known. I think because there was hardly ANY NON D time ...only 10 short months to be exact...but there IS one picture that gets me every time...just a day before she got sick...it was such happy day I thought. We took the kids to a local winery/fall festival....here is the pic..it is VERY blurry as it is pic of a pic...but she is sitting on a hill eating (of all things) a rock candy!! I think our last day of freedom....:(

    http://s358.photobucket.com/albums/oo23/robinseggs1/?action=view&current=100_2486.jpg
     

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