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Curious- Has anyone switched back to MDI from the pump?

Discussion in 'Parents of Children with Type 1' started by missmakaliasmomma, Jul 1, 2013.

  1. missmakaliasmomma

    missmakaliasmomma Approved members

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    We're having a lot of issues with the pump right now. It's been really frustrating and I'm thinking about going back to mdi for my dd. Problems are blood in cannula, air bubbles in tubing and reservoir causing her to not get insulin, had to replace pump once already under warranty for not delivering insulin, stuff like that.

    It's only been almost 3 months since she's been pumping but these problems don't seem like the type that would just go away.

    What I want to know is if anyone has been so excited to get the pump, and then be disappointed to the point of going back to syringes. I'm seriously considering it because it's been problem after problem. I'm going to try one last infusion set and if that doesn't correct the blood in cannula, I think that will be it for us.

    I really thought it would make things better for my daughter, but it honestly hasn't seemed to do much, except we can fine tune her basals overnight.

    If you have gone back to mdi, how was the adjustment? Do you regret it? What were the reasons you went back to mdi in the first place?
     
  2. Helenmomofsporty13yearold

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    Many of the issues you are having are common pump issues. They don't usually happen all at once as you are experiencing. If the darn thing weren't so expensive, it would have been thrown out the window many times. But then things calm down and the sites last almost 3 days, the pump does not break down for a year(dd is on her 4th or 5th in 5 yrs), etc. and one can appreciate the benefits.

    I think you should give it a little more time to figure out how to make it work best for your child. Call your pump rep and ask for help. Ask for the name of a CDE at Animas. Call your endo clinic. Then if you are still frustrated, go back to shots and what works best for your child. You need not feel guilty for not pumping.

    DD takes lots of pump breaks, especially during bikini season. She also gets tired of wearing it 24/7. When back on MDI, she divides her basal into 2 doses so she can have less insulin working hard at night.
     
  3. KatieSue

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    We haven't but I know people who have. They usually end up going back to the pump at a later date. With all your problems and frustrations it may be good to go back to MDI for a while then try again later if it seems like a better time. Sometimes when I get frustrated in the moment it's better to go back to what I know for a while then dive in again later.
     
  4. Michelle'sMom

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    Blood in the cannula on a regular basis sounds like either a problem with your insertion technique, the site location, or possibly even the type of site you're using. Your pump rep or endo's office should be able to offer advice for any of these situations.

    Are you sure you're getting the bubbles out of the cartridge before connecting/priming? In 3 1/2 years with the Ping, we've had bubbles in the tubing one time. My hubby filled the cartridge & left a very large bubble.
     
  5. nebby3

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    We did. My dd pumped for 5 years. We took her off it for a beach vacation and she never wanted to go back. It was really all her choice (I still miss temp basals sometimes). My friend's dd also switched back after years on the pump. They had lots of site issues due to her dd's super sensitive skin.

    In some ways I find MDI easier and my dd's A1cs have been better (probably partly due to exiting toddlerhood) so I can't complain if that is what she wants.

    But honestly if you are 3 months in I'd say give it longer before deciding.
     
  6. missmakaliasmomma

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    We use the inset 30s. I can't see how you can really do that wrong. The site location makes a little more sense to me because she's very lean and I'm thinking the 13mm cannula is too long even though its angled. I called the place we get the inset 30s from and requested the regular insets so I will try those and see if it gets any better.

    In regards to the air bubbles- Yes, definitely. I act like it's my job to get those air bubbles out lol. But not only does it happen sometimes in the line, the cartridge itself winds up having a lot of air bubbles once I go to change it. I definitely think if she wasn't 4 and wasn't really insulin sensitive, air bubbles wouldn't be that much of a problem because she'd be getting a lot more insulin at one time anyway.

    I emailed the endo and she forwarded my concerns to the woman she deals with at animas. I'm assuming I'll receive an email/call from her tomorrow.
     
  7. MomofSweetOne

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    Do you use room temperature insulin? Bubbles are a much bigger problem if cold insulin is used.
     
  8. missmakaliasmomma

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    I actually do use cold insulin. I never thought there was a difference if it was warm or cold. I always keep it cold to prolong it's life. Didn't think of that. I will definitely see if it makes a difference on her next site change. Thank you
     
  9. Michelle'sMom

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    We use cold insulin. That's why we let the cartridge sit after filling. As it warms to room temp, the bubbles rise to the top. Much easier to get them out.
     
  10. hawkeyegirl

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    Yes, using cold insulin will make a huge difference with respect to bubbles. And I think the fact that you can't control the angle of insertion with the inset 30s is causing a problem. You probably need to go shallower than it allows.
     
  11. MomofSweetOne

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    We have the larger Medtronic pump with the 300 unit reservoir. I was told at pump start it was fine to fill it to full and change it when it was empty, that it didn't have to match with the site change. I like doing because I'm not fond of estimating insulin usage and also because once I deal with the bubbles with the fill, I don't have to deal with getting bubbles out again for several days.:D
     
  12. Jakethesnakesmom

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    Sorry about all the problems you are experiencing! I found it was a learning curve when we got a pump, and even then, it's not perfect ( I too really had this notion that switching to a pump would somehow make everything easier!). But before switching back so soon, you might want to try out some different sets, and use some of the good suggestions by the OP to get rid of bubbles in the reservoir.

    My son switched back to MDI from pumping after about 2 1/2 years, mostly because he was getting tired of having something "attached" to him all the time. And with his soccer, it seemed like we were always disconnecting for practice or games, and were having trouble with properly bolusing for missed doses (and lots of bad sites!). It was a pretty easy transition going back to MDI after about three or four days, and I don't miss the 400-500 highs from a bad site!

    Good luck, and I hope you can resolve some of these issues before making that decision!

    Stephanie, Mom to Jacob, age 11
    Dx in 2005, MDI (Lantus/Humalog), previously pumping with MM
     
  13. mamateach

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    I understand

    Your frustration with the pump. It was REALLY rough at first. My daughter was 14 months when we started pumping (she's 3 now) and it was scary and frustrating for at least 3-4 months. I would have quit, but my husband helped me to be patient and stick it out. We had a lot of issues with sites when we used the Insets. We switched to the Contact Detach sets and most of our issues resolved. It is a steel canula which seemed scary at first but it really took away the "user error" involved in getting the insets at just the right angle with no kinks. Also, Skin Tac wipes really help them stick better. We did have some issues with them sticking but since we started using Skin Tac she even swims daily and we haven't had any problems. I have to say as frustrated as I was I cannot imagine life without the pump now. I feel like it has given her some semblance of normalcy with eating and activities. I encourage you to seek help, maybe try different sets and try room temp insulin and then if it's still not going well, give yourself grace that you tried and go back to mdi. Hope that helps! :)
    Jessica
     
    Last edited: Jul 1, 2013
  14. caspi

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    Once insulin is opened, whether it's at room temp or cold, the "shelf life" is still the same, usually 28 days.
     
  15. MomofSweetOne

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    There was a poster a while ago that quit pumping. She and her daughter preferred MDI. Her name was LisaP. If you do a search, you could read some of her reasons. Diabetes is not a one-size-fits-all condition. Thank goodness for the choices we do have in helping our kids live their best!
     
  16. Bear

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    Pumps can be challenging at first. It took us a little heartache to get the kinks worked out (a few months) but in the four years since we've had almost no problems whatsoever on an Animas Ping. I'm actually in awe of how well the pump and the infusion sets work. I can measure our "problem" rate on less than one hand full of fingers. I consider it to be an amazing piece of engineering.
     
  17. missmakaliasmomma

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    My husband wants her to stay on the pump because he says it's easier. I do most of everything so I don't get where he comes off telling me it's easier lol.

    We have the contact detach and have used them a couple of times but the places I can put them are so limited (I can't do arms- she feels them. i know she'd feel them in her leg. So we stick to using them in her butt) , plus they suck at sticking. We use the IV prep beforehand and it seems to do nothing with the contact detach. Did you use regular insets before that or the 30s? Since your daughter was I'm sure pretty small, where did you put the contact detach sites?

    My daughter still basically eats and plays the same, it's actually a little more annoying now because she's careful of her pump.
     
  18. missmakaliasmomma

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    See, I was told that insulin will go bad quick being at body temp.
     
  19. Sarah Maddie's Mom

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    8 years of pumping and never had a problem with it. Insulin isn't nearly as temp sensitive as we tend to think.
     
  20. mmgirls

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    what is your basal at???

    I wonder if it is realy low and well, it is normal for the body to try to repair itself and you are getting blood im an attemp to seal off the area.

    Not all blood in the cannula will be an issue, only a clot of blood or other tissues.

    A llot of times with a good bolus it would clear the blood out in our experience.
     

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