We were contacted by the Trial Net folks again to tell us they made an error when they told us our DD has the protector gene back in August. For whatever reason they retested her bloodwork three months later and realized this error and want her to start oral insulin right away. We declined the oral insulin and asked to have both our non D children removed from the study. The woman on the phone was very apologetic and said she has never seen this happen before and didn't want to cause us any stress. I'm confused about the oral insulin. If the presence of anti-bodies means the person is at an increased risk for T1D and not guaranteed to get it, then why experiment with oral insulin? I had also heard insulin cannot withstand stomach acids. I'm pretty disappointed on a number of levels.