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Call on FDA to hold Diabetes Meeting.

Discussion in 'Parents of Children with Type 1' started by badshoe, Sep 2, 2013.

  1. badshoe

    badshoe Approved members

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    diaTribe posted this petition for an FDA Diabetes Meeting:

    The Food and Drug Administration has begun to hold a series of patient meetings to gain a better understanding of specific diseases. Over the next five years, the agency plans to conduct at least 20 such meetings on conditions ranging from Chronic Fatigue Syndrome to Narcolepsy to Irritable Bowel Syndrome.

    But not diabetes.

    That is unacceptable.

    Four ?slots? remain open (view the current list), and we want the FDA to add diabetes to its meeting docket for 2013.

    According to the American Diabetes Association, nearly 26 million Americans have either type 1 or type 2 diabetes, and an additional 79 million have prediabetes. Those numbers are also increasing each year ? the CDC estimates that if current trends continue, one in three US adults will have diabetes by 2050.

    No one disputes that diabetes is one of America?s ? and the world?s ? most serious health epidemics. In 2012, more than one in five total US healthcare dollars was spent on diabetes, totaling $245 billion, and the government covered 62% of those costs, meaning everyone is paying for this epidemic. Despite growing needs, research dollars have also leveled off.

    New therapies need to be investigated, tested, and brought to market, and as part of that process, the FDA must understand the daily challenges that patients face.

    We need to tell our story to the FDA: about the need for accurate strips, more physiologic insulin, a broader range of drugs, and the Artificial Pancreas.

    Our voices need to be heard.

    Please sign this petition to urge the FDA to sponsor a patient meeting focused on diabetes ? and the sooner, the better.

    Thank you very much.

    Sign Here
     
  2. Sarah Maddie's Mom

    Sarah Maddie's Mom Approved members

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    I hope every CWD member signs this. We can't b-tch and moan about the FDA and then not at least TRY to get them to comprehend the reality of life with Type 1.
    It's painless - it's quick - it's in our self-interest to do this little thing.
     
  3. coni

    coni Approved members

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    Done! Quick and painless. Takes less than a minute. Make your voice heard.
     
  4. wearingtaci

    wearingtaci Approved members

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    I signed it and will post a link to the petition to my facebook
     
  5. Tracee

    Tracee Approved members

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    Done! Badshoe, thanks for posting.
     
  6. obtainedmist

    obtainedmist Approved members

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  7. Beach bum

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    Takes only a minute! Everyone please take a minute and sign.
     
  8. badshoe

    badshoe Approved members

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    Thanks all. I too am happy to join this effort.

    I look forward to FDA meeting with our community.
     
  9. virgo39

    virgo39 Approved members

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    The notice in the Federal Register identifies the selection criteria used. Diabetes seems to fit the criteria well.
     
  10. Ali

    Ali Approved members

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    Done. Thank you.
    Ali
     
  11. Sarah Maddie's Mom

    Sarah Maddie's Mom Approved members

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    Bump.

    Still short 1200 or so signatures.

    If we can't make a claim for our right to be represented then we aren't much of a "community"

    It's fast and painless.
     
  12. susanlindstrom16

    susanlindstrom16 Approved members

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    Signed it. Literally took 30 seconds.
     
  13. Nicole N

    Nicole N Approved members

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    Done! Thank you for notifying us.
     
  14. DavidN

    DavidN Approved members

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    I suspect we all have 5 friends, D related or not, that would gladly sign this. Please forward to them.
     
  15. badshoe

    badshoe Approved members

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    Yeah some of may even have 6 friends.

    Possibly diabetes doesn't give enough time to be friends with more than 6, YDMV. LOL
     
  16. deafmack

    deafmack Approved members

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    I already signed it as well.
     

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