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Brand New OmniPod User

Discussion in 'Insulin Pumps' started by Seans Dad, Jul 25, 2006.

  1. Seans Dad

    Seans Dad Approved members

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    :)
    Yesterday was Sean's big day. He had his OmniPod hooked up after sitting in a box for a week, he was a little excited to say the least.
    We decided on the omnipod for several reasons. First, he is an active kid and does not need to worry about tubing or disconnecting. Second, he loves to swim and although we live in Pennsylvania he swims year round(we have two indoor waterparks nearby). The idea of disconnecting and connecting while swimming with a traditional pump or playing sports was reason enough to choose the omnipod.
    The pod itself is not as small as it appears but it is also not large enough to be uncomfortable.
    Some people have said that a downside to it is that you need to carry the controller (PDA like device) to use the omnipod, that is true. But how is this a downside? You also have to carry the pump unit with a traditional insulin pump as well as your glucose meter. With the omnipod the controller has the glucose meter built into it, so when you take your blood and add your carbs it tells you how much insulin you should take.
    If you should loose the controller the pod connected to your body will continue to deliver background insulin until the pod expires.
    Today was also his first day at Diabetes camp which is free and sponsored by the local hospital and diabetes center and within 10 minutes the hospital staff and volunteers were alreading checking it out and telling him how cool it is. Which is a big deal to a 13 y/o boy concerned about his apperance.
    I'll let you know how it progresses as we use it more. Tonight he is fasting to make sure his background insulin is being delivered at the right levels.
    Feel free to contact me with any questions!
     
  2. rmccully2000

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    Congratulations!! I am so jealous ;) We're in Texas and they can't tell us how long we will have to wait before they are available here. Please keep us updated on how he likes it. I'm sure from all the positive attention he got at camp, he's in heaven!
    Becky
     
  3. Seans Dad

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    Well, we found out a few things the hard way. First pay attention during training and read the manual a few times!!!
    Sean had his pulled off during football yesterday(omnipod said stomach placement isn't the best spot for contact sports)
    We then tried to activate a new pod and it failed, we tried activating another pod and that one failed. Ah-oh, I was thinking we made a bad choice. After a frantic call to the insulet corp, I found out it was user error.
    We didn't deactivate the old pod AND did not fill the pod with at least 85 units of insulin. Omnipod tech support is AWESOME, they even offered to send us replacement pods at no charge.
    Some thoughts about the Pod:
    The controller(PDA device) is almost idiot proof and so simple to use. I love the fact that it has a food diary, but what I love even more is that it has a user food log that you can add foods you eat and the carbs associated with them. We have already added Seans favorite N.Y. Cheesecake slice, his favorite Rita's water ice and his favorite slice of pizza from the local pizza place.
    I am concerned though about the pod coming off during high impact sports. I was advised to wrap the area the pod is in with an ace bandage, so we will see how that goes.
     
  4. Seans Dad

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    One more note, for any of you hesitant about the omnipod because of pricing, etc. They do offer a 30 day trial on the omnipod. Each pod costs 30.00, the first controller is $800.00 additional controllers are $300.00.
    Monthly omnipod cost is 10 pods x 30.00 = $300.00
    They will work with people who have no insurance or limited coverage. Please keep in mind I am in S.E. Pennsylvania and I don't know if they offer the same thing everywhere the omnipod is available.
     
  5. rmccully2000

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    Wow you guys are really going to put it to the test with football! I can't wait to see how it fares. If the pods make it through that test, the first grade playground should no problem. Please keep us updated. Since I can't get my hands on one for a trial anytime soon, I'm living vicariously through others :D

    Thanks for all the great info.
    Becky,
    Mom to Mason, 6
     
  6. hold48398

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    Yet another awesome, motivating and uplifting post! Yay!!! Thanks for posting your experience, please keep it coming!!!
     
  7. rmccully2000

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    How would your son rate the pain associated with the pod insertion? On a scale from 1 to 10 with 10 being "give me some morphine pain" :) Just curiuos as there was mention on another thread of pod pain.
    Thanks!
    Becky
     
  8. Seans Dad

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    Well. the insertion of the cannula he said would be a 3, but it's over in a second. he said it's like someone flicked you with a finger.
    He has a problem with the adhesive irritating his skin. We now use iv pads on his skin and put the pod on top of that.
    We found he likes the pod on the small of his back the best.
     
  9. Seans Dad

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    Quick update - 3 days of swimming and waterslides and the pod is still attached. Time to put on a new pod tonight. So far so good!
     
  10. rmccully2000

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    Great! Thanks for the update. Sounds like you guys are giving it a good try out with football and water slides! We have a fantastic waterpark about an hour from here (Schlitterbahn) and Mason is going to be old enough soon to start the big rides. I can't wait :)
     
  11. RobinKop

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    Thanks!

    Thanks for all the updates - I've been watching OmniPod closely.

    I'm just in the begining stages of pump research for my 4-year old little girl. But you mentioned the pod requires 85 units of insulin to be loaded?

    Kim's only using about 7 units a day right now - can that insulin be transfered to the next pod? Or would we be wasting a lot of insulin if she only goes through 21 units with her 3 days on the pod?

    I'm sure OmniPod probably isn't even approved for little ones yet - but I'm just trying to figure out how all this stuff works. The OmniPods sure do look cool!

    Thanks again for sharing your experiences!
     
  12. Twyla

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    omnipod approval for kids

    Robin,

    At our last visit our nurse educator explained the different pumps to us, including the Omnipod. She said it had been approved for use in kids in May. It's probably only available in certain areas but it does have some approval. We're also watching closely.

    Twyla
     
  13. Seans Dad

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    Hello. Yes, we have been able to remove insulin from pods. I don't know if it's a practice omnipod approves of, but we do try to remove any extra insulin from the old pod.
     
  14. Seans Dad

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    I was talking to another parent who has a son on a mini med. She wants to switch her son to the omnipod. When he sleeps at night he often gets a kink in the tubing because he toss and turns a lot. He also has about 4 feet of tubing, I don't know if this is common or not.
     
  15. kiwikid

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    50cm

    We use 50cm of tubing wrapped around a tube-guard to prevent kinks:cwds:
     
  16. Seans Dad

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    Update

    We had a dead pod last night, it wouldn't insert the canula. Called Omnipod they sent out a replacement. We were able to get out all but 5cc of the insulin out of the dead pod as well.
     
  17. Seans Dad

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    By the way, if you decide to use the omnipod, try using iv3000 pads. They really help cut down on skin irritation.
     
  18. payam7777777

    payam7777777 Approved members

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    Wow!

    Congatulations, Mmmm... from the buttom of my heart,
    So exhilirating. Your good news made my day. I'm jealous too and currently experiencing a sever case of device envy. Nice job, dad, and good choice. I'll knock on wood. Keep us updated. I'm 100% with OmniPod. And have spent quite a time reading about it. This no-tube idea is quite something -beyond doubt. It's so discreet. It's fantabulous. Very cool indeed. You're now surfing on the wave of future pumps.
    I'm Payam. My beloved 3 year old nephew was discovered to be diabetic type 1 aroud 20 days ago. My sorrow is beyond belief. After spending some time on the web we decided that CSII therapy is a must and OmniPod is THE choice. Turns out OmniPod is not yet? distributed outside the States. FDA has approved it just for inside the States. And naturally a prescription is needed. Thing is, we are living in Iran and we are contemplating medical visa to Diabetes Mecca (Joslin clinic in Boston) in search of better care and specifically OmniPod. I'm so down I can barely breathe. Let me know your email (mine is payam7777777@hotmail.com) I'm gonna need to keep in touch with people like you.


    . Here's another mom using OmniGodSend i should say for her litte child:
    http://community.diabetes.org/n/pfx/forum.aspx?nav=messages&tsn=1&tid=4359&webtag=adaparents

    . Upload some photos man.

    . They say the 'embedded' glucometer uses FreeStyle test strips. Does it work with BD's .3uL lancet device With the 33G lancets?

    . Where did you switch to this pump? Which clinic?

    . What type insulin do you use? Lispro or NovoRapid or other?

    . "Diabetes camp which is free and sponsored by the local hospital"
    What hospital exactly?

    . How long did the process take? One week? Two?

    . What's YOUR opinion about using an OmniPod for a 3 year old nephew whose cusin is alive only when he is between 90 and 130?

    . Here's the list of my links on OmniPod.
    Brand New OmniPod User
    http://forums.childrenwithdiabetes.com/showthread.php?t=1065

    New Products: OmniPod(tm)Insulin Management System
    http://www.diabetesincontrol.com/modules.php?name=News&file=article&sid=2664

    A forum thread on OmniPod
    http://community.diabetes.org/n/pfx/forum.aspx?nav=messages&tsn=1&tid=4359&webtag=adaparents

    On OmniPod
    http://www.diabetesincontrol.com/modules.php?name=News&file=article&sid=2680

    Pump Without Tubing Coming Soon
    http://www.diabetesmine.com/2005/07/pump_without_tu.html

    OmniPoding
    http://www.diabetesmine.com/2005/11/omnipoding.html

    Close Encounter: an OmniPod User
    http://www.diabetesmine.com/2005/11/close_encounter.html

    OmniPod is Off and Pumping!
    http://www.thediabetesblog.com/2005/12/06/omnipod-is-off-and-pumping/

    More on the Omnipod
    http://www.kweaver.org/archives/2005/07/more_on_the_omn.html

    Omnipod Specs
    http://www.kweaver.org/archives/2005/05/omnipod_specs.html

    The Allure of "Omnipod"...at least on film
    http://insulinpumpdemystified.blogspot.com/2006/05/allure-of-omnipodat-least-on-film.html

    The Omnipod™ Integrated Insulin Delivery and Glucose Monitoring System
    http://www.medgadget.com/archives/2005/07/the_omnipod_int.html

    Complete Services for a Successful Pump Experience
    http://www.integrateddiabetes.com/pump_c.shtml

    Create an insulin pump alternative that is discrete and easy-to-use
    http://www.reedlink.com/SingleArticle~ContentId~59603~pub~MD.html

    Insulet Corporation
    http://www.lcpartners.com/enews/newsletter/2006-03_newsletter/index_email.html#company_2

    Take care.
     
  19. Seans Dad

    Seans Dad Approved members

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    . They say the 'embedded' glucometer uses FreeStyle test strips. Does it work with BD's .3uL lancet device With the 33G lancets?

    Yes it does!

    . Where did you switch to this pump? Which clinic?

    http://www.lvh.org/services/excellence/diabetes/

    . What type insulin do you use? Lispro or NovoRapid or other?

    Novolog

    . "Diabetes camp which is free and sponsored by the local hospital"
    What hospital exactly?
    Lehigh Valley Hospital (25th in nation for diabetes)
    www.lvh.org

    http://www.lvh.org/cwo/Services__Sp...e/index.php?id=13&id2=23&id3=406&page_id=1002

    . How long did the process take? One week? Two?

    3 weeks

    . What's YOUR opinion about using an OmniPod for a 3 year old nephew whose cusin is alive only when he is between 90 and 130?

    We love the omnipod, it certainly is better for us over a traditional pump with tubing, but I wouldnt want to speculate about it's use on someone so young. the pods are small, but might be too big for a 3 y/o you really need to see one to decide.

    "we are contemplating medical visa to Diabetes Mecca (Joslin clinic in Boston"

    We prefer Naomi Berrie Diabetes Center.

    http://nbdiabetes.org/




     
  20. Nicisan

    Nicisan New Member

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    disposable unit?

    Hi,

    I am living in the Uk and have just seen the site for omnipod and I am very interested. It certainly sounds like your son is enjoying the freedom it gives him :) . I know it is not available in the UK yet but I am hoping that it will be one day and was just curious about the disposable unit. Is it truely disposable or do you have to recycle them? I only ask as I think the rules about disposal of needles and such is different for you than in the Uk.

    Thanks
     

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