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BGs post Celiac Dx

Discussion in 'Parents of Children with Type 1' started by Chippy28, Apr 22, 2013.

  1. Chippy28

    Chippy28 Approved members

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    I have been told and have read in a few places that BGs are supposed to become more stable after being diagnosed with celiac and starting a gluten free diet. In my (limited) experience that has not been the case. Immediately after starting the GF diet, I had terrible lows for 1-2 weeks. Then practically within 24 hours the lows went away and I am now dealing with chronic and stubborn highs. My BGs were WAY more stable prior to celiac. My diet really hasn't changed much other than cutting out a lot of the carbs that I had been eating. I am beyond frustrated. I know YDMV, but what has your experience been with your BGs or your child's BGs after celiac dx? Please tell me that things will settle down soon!:eek:
     
  2. SarahKelly

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    you should contact Wendy at http://www.candyheartsblog.com/ her daughter has celiacs and wasn't diagnosed right away, she might have good insight for you :)
     
  3. kim5798

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    a lot of the gluten free foods are high gylcemic index. You may have to play with the doses to get it right.
     
  4. Darryl

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    We didn't see that, and I can't see any reason why it would make a difference. GF foods are the same as gluten-based foods in terms of carbs and glycemic index, if you're talking about the same type of foods - breads, pastas, etc. If you avoid gluten by avoiding those types of foods and eating only fruits, vegetables, meats, and dairy, then I suppose BG would become more stable, but if eating the same types of GF foods you should see no difference.
     
  5. Chippy28

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    Thanks everyone!

    I actually haven't been eating a lot of processed GF food. I have been trying to stick to food that is naturally gluten free which I have never had any issues dosing for in the past. It isn't so much food spikes that I am dealing with, but an overall chronic high BGs. My dexcom looks like it has flatlined at 300 only to be punctuated with the occasional valley as I head low after some rage bolusing!:eek:

    I thought this might have to do with my gut healing, but it sounds like this might just be a huge coincidence and hopefully things will settle back down. :)
     
  6. Meredithsmom

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    In our experience, the BGs became much more stable. The thinking behind that is that a healed gut absorbs more consistently than a damaged gut. Also, without the "alergic" response from the body, the insulin is used better.

    Meredith went from having 2-3 numbers in range each week (and I'm not kidding) to going 3-4 days with most numbers in range.
     

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