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Discussion in 'Parents of Children with Type 1' started by njswede, Jul 3, 2015.

  1. njswede

    njswede Approved members

    Feb 9, 2015
    We found out that our son had D when we took him to a urologist for a bed wetting issue. That's when they found sugar in his urine and the whole D-train started...

    They didn't find any urological issue with him (other than the D) so we were hoping the bed wetting would get better. Well, it didn't. Maybe for a while, but it's still an issue. He's usually running at around 100 for the most part of the night, but tends to go to bed on the high side (180 on average maybe).

    I too had similar issues as a kid (non-D) and the doctors could never figure out what was wrong. It went away by itself after a few years.

    So you guys still think his D is causing him to wet his bed or should we look for another issue? What's your experience?
  2. quiltinmom

    quiltinmom Approved members

    Jun 24, 2010

    I took my now-11 year kid to the dr. When he was 7 because he still wet the bed. He said some kids just keep wetting the bed until later (a relative of his wet the bed until he was 16!! Eek! Most kids get over it before then.). He recommended a bed wetting alarm.

    I'm not sure at what bg number bet wetting is more likely to occur, but I wouldn't think 180 would cause it. Is guess more like 250 or so. That's just a guess.

    I have two other kids who also have bed wetting. Ironically, it's my d kid who has had the least amt of problem with this.

    There may not be an "issue" to look for. Meaning, it may not be obvious what's causing it, especially since he was checked out before. There are pills you can try, that basically keep them from producing as much urine at night, but they aren't always effective and I have no idea if it would affect d.

    My advice is to try a bedwetting alarm. I bought one for $30 off amazon and it's as good as a $90-100 one we bought a few years ago. (Yes, we need 2 alarms.). The key to effectiveness with alarms is the parent hearing the alarm and waking the child to use the bathroom, because usually they don't hear it, or they do at first, but after a while they tune it out and sleep through it.

    Some people think it's from a kid being a deep sleeper.....some think an slow developing bladder, some say it's caused by a hormone thing, or maybe it's a "habit" they need to break. .... It's probably a combination if things, and individual for each child. Most often they grow out of it without medical intervention.

    But.....that doesn't change how frustrating it is!!! Some people report success with alarms in as little as 2-3 weeks. This has not been my experience despite using it correctly (some parents hook them up and expect it to magically fix everything with no further effort, then complain it didn't work). The alarm, if nothing else, prevents the daily sheet washing and bed remaking, which is worth it to me, especially with multiple kids. It's worth a try, since it's only $30.

    Good luck!
  3. susanlindstrom16

    susanlindstrom16 Approved members

    Nov 29, 2012
    We have the same issue with my 7 year old daughter. I don't think its caused by D but it can be exacerbated by it when she is running high. I would say it gets worse if she gets into the 200s. When she gets high like that we can be sure there will be an accident.

    We aren't yet at the point where we are concerned enough to try to correct it beyond trying to limit fluids before bed. The alarm thing mentioned by quiltinmom above makes sense and would probably be our first step when we start to feel like we need to do something more. I have non-D family members that wet the bed until age 9 or so part of me feels like we'd be dealing with this anyway, regardless of D.
  4. Just Jen

    Just Jen Approved members

    Jun 9, 2014
    My eldest non-d daughter struggled with nighttime wetting until she was about 12. She stopped shortly before puberty hit in full force. We tried several things to no avail. My mom tells me I had issues as a child as well, until they took me off of dairy for about three months. Then they slowly reintroduced dairy and I was fine. Both my daughter and myself are extremely deep sleepers - fire alarms might not wake us. We were told that until the age of 11, it really wasn't seen as out of the ordinary. When she turned 11, we did see a specialist who found nothing wrong. Doesn't really give you any answers, I know, but at least these days the nighttime pull-ups are available.
  5. KatieSue

    KatieSue Approved members

    Oct 5, 2010
    We went through this till she was about 11 or 12. Man their little bodies can hold a lot of liquid. We did take her in and the doc said basically they grow out of it, which is what happened. They do have meds they can try but they're not very effective usually. At the end we did do the alarm, but it was when she asked for it. I'm not sure I'd do it unless the kid was cooperating. She finally was so embarrassed going to sleepovers etc that she asked for help.

    She did start having them again a few weeks before she was diagnosed. And I have a friend who's going through this with her non-D son right now. It just seems to really take time.

    I do have to say her sheets were super clean though after being washed so many times daily :).
  6. forHisglory

    forHisglory Approved members

    Jan 26, 2015
    We have the same issue with our 4 yo (non-D) and 6 yo (D). We have the pills and bed alarms. Honestly, limiting water 1 hour before bed has worked best to control the volume. However, if we have to treat a low in the middle of the night with juice/choc milk we can count on a flood the next morning. Our son is 130 range all night (just what we're comfortable with according to our endo's orders) and I don't think that makes a difference between wetter and drier nights.

    They won't go to college wetting the bed right?! In the meantime, soaker pads help decrease sheet changes. Huggies nighttime pull-ups are not doing the job as they get older.....and they are pricey for two boys!
  7. kiwikid

    kiwikid Approved members

    Dec 29, 2005
    I have had 3 bedwetters until about age 10-12 - including the D child, and one who never wet the bed at all. I don't think its D related...
  8. Sprocket

    Sprocket Approved members

    Mar 6, 2014
    I agree. I have one who did and one who didn't. One is D and one isn't. One day at about age 11, it just stopped and never returned. That's the way our doctor said it would happen. It's a pain, but I don't think anyone can do much about it until the little switch in their brain matures and turns off.
  9. coni

    coni Approved members

    Mar 23, 2006
    My non-D child wet the bed until she was about 11 years old. The doctor said it occurs in at least 10% of the child population and has a genetic component. Most will outgrow it by the age of 12. It has something to do with a hormone.

    The best thing I did for my daughter was to not make a big deal out of it. I just put a waterproof pad on the bed and was prepared to do laundry. I didn't think it was necessary to compound a physical issue by adding psychological problems. Believe me, she didn't want to wet the bed either. And then, it just went away.

    Unless you have reason to suspect something else, you probably have a kid in the 10%.

    My DD used to wet the bed when she was high when she was little, but it was clearly BG related because she wasn't a bed wetter prior to diagnosis and we could clearly tie the incidents to being high.

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