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Anyone have the 530G with enlite, do you like it? Need new pump and CGM.

Discussion in 'Parents of Children with Type 1' started by pam_r, Mar 12, 2014.

  1. pam_r

    pam_r Approved members

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    Hi All,

    My 10 year old son is ready for a new pump, right now we have medronic. We have never used a CGM but would like to. Even though Collin isn't old enough for the 530G the doctor said she might be able to do the paperwork. Collin does not feel any lows at night time so I thought this would be a good fit with the automatic shut off. I did hear a lot of really good things about the Dexcom CGM though (even though it isn't integrated with the pump) I can't decide which pump to go with...Help!:confused:

    Thanks, Pam
     
  2. Sarah Maddie's Mom

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    We have a mm pump and briefly used the earlier integrated sensor but switched to the dexcom for a number of reasons. One of the most compelling was how much my kid disliked my asking to see the pump in order to see what the graph looked like. I had always assumed that integrated would be superior, but for us it was not.

    Good luck.
     
  3. Mom264

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    Dd has the 530G and likes it very much. For me the LGS (low glucose suspend) was worth waiting for. My daughter does not feel her lows either.

    It has performed as intended and I notice better accuracy over the previous system. Also the Enlites are easier and faster to insert.

    (However, obviously if the cgm stops reading values the pump will not shut off, so you have to calibrate at least every 12 hours (6 after the first cal in a new sensor)).

    Until a dual-chamber, cgm integrated pump comes out, we will stick with the 530G.
     
  4. TheFormerLantusFiend

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    I have had problems with the pump part of the system, but very few problems with the sensor part. And I like the low suspend.
     
  5. hawkeyegirl

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    The Dexcom is more accurate, less fiddly to use, and the sensors last longer. For us, there's no comparison.
     
  6. pam_r

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    That is my problem. I have read great things about dexcom but the low glucose suspend on the 530G is holding me back, I think that would be so great.
     
  7. Megnyc

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    I think one thing to keep in mind is that the alarms on the dex are a lot louder than on the medtronic. I personally think I am safer with a CGM that is basically guaranteed to wake me if I go under 70 (in my case the dexcom does not miss lows ever) than a CGM/pump that would suspend basal insulin once I am already low but not wake me up to treat it with sugar. It is important to keep in mind that suspending basal insulin will take awhile to result in an increase in glucose. It is a tough decision though.
     
  8. Sarah Maddie's Mom

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    I think with a 10 year old you have to ask yourself which will give you greater peace of mind - the low suspend or having the receiver on your nightstand (or hanging on the door knob in your room - mine doesn't quite reach) where you can see it and hear it. For me, the dexcom wins hands down.
     
  9. dpr

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    I had the same decision to make a few months ago. My daughter has been using a Medtronic pump for 2 years. In December our endo prescribed the 530G for her. After that I did a lot of research on the Medtronic CGM versus the Dexcom. I also talked with one person using the 530G. She had lots of accuracy problems with low alarms waking her up at night all night when she was in the mid 100's. She ended up turning off all the alarms and not using them, defeating the whole purpose of the 530G. I had them cancel the 530G and we're going with the Dexcom and staying with her old pump. The reasons for my decision were:

    1, Lack of accuracy of the Enite compared to the Dexcom. Garbage in = garbage out.
    2, Many people using Dexcom sensors are getting 2-3 weeks+ out of them. The less sensor changes I have to deal with on an 8 year old the better!
    3, The Medtronic My Sentry is very expensive. The Dexcom comes with a receiver that I can put right next to my bed, (our rooms are very close so range is no issue)
    4, Hopefully in the next year Dexcom will have FDA approval on their system that can send glucose reading to a smart phone so I can monitor her at school.

    For those having good results with their 530G, AWSOME! For me I just wasn't willing to try it and be stuck with it for 2-4 years if it didn't work for us. I need a system that works now! And The price for the My Sentry was a real deal killer too. If Medtronic would have got together with Dexcom what a GREAT system we could have had....
     
    Last edited: Mar 13, 2014
  10. hawkeyegirl

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    If my kid was heading off to college, maybe. But I wake to the alarms (and don't trust the LGS not to suspend with a false low). I'd rather catch that low at 80 (which the Dex does, and the alarms are loud enough to hear) than rely on the LGS.
     
  11. mvg

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    We tried 530G with enlite for 10 days and CGM was a joke. Will leave it at that.

    We are now using 530G pump with Dexcom.
     
  12. pam_r

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    Thank you all for your opinions. Looks like I will be going with the Revel pump with Dexcom CGM.
    I don't come onto these boards too often but when I need information everyone is always so helpful!

    Happy Friday!
     
  13. moco89

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    The low glucose suspend is the most amazing thing ever. There is an adjustment period. I have heard you have to use it for a couple of months to make it "work" for you. I am on month 2. The first couple of weeks were rough but now it works great. I have autoimmune autonomic neuropathy, with severe gastroparesis and the low glucose suspend is a great and amazing safety feature.

    Also, how tightly you put on the sensor overtape (looser is better) affects the accuracy of the Enlite sensors.
     
  14. mmgirls

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    I would actually say the same for Dexcom, we do not "over tape" vary often, usually around the perimeter, but if we tape over we have issues.
     
  15. C6H12O6

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    What do you mean about the adjustment period ? I was happy with the low suspend performance from the beginning, so maybe I cannot relate.

    I am happy with the pump's performance when used with both the sof-sensors and the enlites, actually I think the sof- sensors work better.

    Medtronic Canada said that enlites are approved for use with the Veo (the Veo is the same as the 530g, but enlites may not be approved for use with 530g by the FDA.)
    (on a related note the insertion site approval for enlites is different in the US then it is in Canada, in Canada abdomen and buttocks are approved insertion sites in the US only abdomen is approved)
     
    Last edited: Mar 15, 2014
  16. mmgirls

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    It sounds like moco89 has other conditions that play into how the low suspend would work.
     
  17. C6H12O6

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    Yeah, I think she has trouble staying adequately hydrated. I think she was saying the adjustment period is applicable to all people though.

    I am curious what she means.

    I am going to go back and edit my previous post that you quoted, because I meant to say I find the sof- sensors to work better than the enlites.
     
  18. moco89

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    I do have trouble staying adequately hydrated. The Dexcom sensor does not work for me. After around 6 hours, the sensor goes to ???, and occasionally after I drink water, shortly the readings will reappear.

    The adjustment period has to do with the constant alarms and the sometimes false alarms. I guess this does not apply to all individuals. The pump is very "noisy" and so this should be kept in mind when purchasing the 530G/Veo.

    Due to having severe gastroparesis, I have very long and extended lows, and I have to over-treat my lows, with up to 75 g of carbohydrates, so the low glucose suspend helps. I also have hypoglycemia unawareness, so the low glucose suspend is extremely useful.
     

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