The more I have looked at my ds's history and medical records and the more I have learned about neonatal D, the more likely I think that is what is going on. It would be nice to "talk" to someone who has dealt with this. I am really wondering what it was like when the child was a baby/toddler and then how things progressed in later childhood / adolescence with bg readings, symptoms, etc. It looks like it presents more as a type 2 than a type 1. However, I know that it is in fact neither. I am just amazed by what I read, as it sounds just like my son. :cwds: Thankfully we see a Peds Endo the end of May, as my ds's family doc has never even heard of it. I will be sure to ask for the genetic testing then. Will the Endo think I am crazy or presumptuous or reading the internet too much if I mention the possibility? I'm not really interested in ticking off my only option of a Peds Endo. We will be going to Children's in OKC. I am also planning on taking my ds' records to his family doc, who is also his volleyball coach and a family friend. I recently got them from his old dr. out of state. I want to show him that my memory was not faulty, but I did indeed remember A1C's of 9 and 10 and bg readings in the 250 - 400's range when ds was a baby and toddler. I guess I feel a little vindicated by proving I wasn't crazy, a hypochondriac and my memory wasn't faulty. I am so glad that the records were still available over 10 years later. I was told that his birth and hospital records from when he was a newborn are probably destroyed by now, 14 years later. I am going to sign a release and hope they can find them anyway. Thanks for any insight you have.