My son was born healthy. At 3 months old he appeared to have symptoms of a stomach bug. Two days later we were at the emergency room and he was diagnosed with blood sugars over 900! It was a complete shock. We were quickly shipped to another hospital. This is where our adventure has begun. It has been two months and very little progress has been made since his diagnosis. The first round of genetic tests have come back normal. We just had more genetic tests completed which will take another month for results. Everyday I am in fear. Fear because I cannot control his sugars. Everyday I am giving my son injections of Lantus (which has been giving stable results), diluted Humalog (which is like a gamble each time on the results) and formula (which makes the sugars rapidly spike and drop). On a good day my sons sugars will be less than 300 with an occasional low in the 50's. On a bad day (ex. vaccine or RSV) visiting the ER to try to get the sugars under 600. So far we don't have an exact diagnosis just "neonatal diabetes". I have found that many doctors are not familiar with this form of diabetes. I would love to hear from anyone who has had a similar experience. Thanks!