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Oct 2, 2017
May 17, 2008
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Approved members, from Southern California

22jules was last seen:
Oct 2, 2017
    1. bibrahim
      I use mm for pump stuff...they are willing to bill me. For Dexcom I go through Edgepark. It is convenient also but I had trouble with them when my new insurance denied my refill and after winning the appeal I still had some trouble so I havent changed pump supplies over.
    2. TheFormerLantusFiend
      In Grave's, the receptors in the thyroid are damaged and the thyroid goes into overdrive making thyroid hormone, resulting in unstable hyperthyroidism. Graves does not ever cause hypothyroidism, although its treatments can.

      In Hashimotos disease, the thyroid itself becomes damaged and makes less thyroid hormone. However, since the thyroid also stores thyroid hormone, in a little over 10% of cases, at the beginning stage of the disease, the attack on the thyroid causes the stores to be released, resulting in temporary (a few weeks to a few months) thyrotoxicity, with low TSH. This is called Hashitoxicosis. It goes away by itself, and then usually turns into hypothyroidism.
    3. TheFormerLantusFiend
      Yes, you responded the right way.
      The only tests she's had done are blood tests? If that's the case, an MRI of the pituitary is premature. The most common thing to do at this point would be for her to have an iodine uptake scan. That would definitely tell you if Graves was a possibility.
      I assume the bloodwork she's had includes antibody testing, TSH, T3, fT3, and T4. Other tests sometimes done at this point include erythrocyte sedimentation rate and c-reactive protein, which measure inflammation.
    4. TheFormerLantusFiend
      I also had two low TSH tests, with normal antibodies, T3 and T4. That didn't rule out Grave's or Hashimoto's but made them less likely. The next step should be an iodine uptake scan. If the iodine uptake scan was normal- the thyroid looked normal and uptake was normal and the TSH was still low, then a pituitary test would be indicated.

      Here's why: TSH is a hormone made by the pituitary to signal the thyroid. If it's abnormal, then more than 99% of the time, it's because of thyroid disease. An abnormal TSH is often the first sign of thyroid disease- it is more sensitive than either the T3 or the T4, which are both hormones made by the thyroid itself. In rare cases (and I really mean rare), the pituitary is in trouble. However, if only blood tests have been done so far, I really don't think that testing the pituitary is warranted just yet.
    5. TheFormerLantusFiend
      If the T4 and T3 are normal, Grave's disease is not all that likely but is still possible, and Hashimoto's and other types of subacute thyroiditis are also possibilities. Between 10% and 15% of cases of Grave's and Hashimotos are antibody negative but the uptake scan will show a picture that will tell you if she has either of those diseases. Also, if an inflammation test is done and comes back positive, that would suggest inflammation of the thyroid- not the pituitary.
    6. TheFormerLantusFiend
      Hi. I am just wondering what happened with your older daughter and her thyroid. I hope that by now you have answers to what was going on.
    7. Rukio
      I cried when I lost Sophie, she died at the vet's office. I remember waking up screaming and crying at 4 am, the next day I was at the doctor doing blood work. We were going to leave, and the vet called, they said she had passed away in the night. I was a wreck for months, a few weeks ago I found pictures of her and I when she was younger, I just started crying until I realized, she was in pain, and now shes waiting for me, in perfect health. I agree, not everyone understands. I only made it through losing my Sophie when a friend said "I'm sorry, I can't even begin to understand how you feel." He was the first to say that, everyone else didn't get it, online friends other then him thought she was human, real life friends told me to get over it. So feel free to open up if you need to, we can share stories about our beloved kids if you want.
    8. Rukio
      *hugs* I am so sorry you lost Annie! I'm here if you need someone to talk to. Or even vent at, yell at or anything. I know how it feels to lose not only a family member, but one you feel is your child.
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  • About

    Southern California
    Who has diabetes?:
    One child
    44 year old stay at home mom whose youngest daughter was diagnosed at the age of 8.



    Julie (mom to Jessica 21 dx Hashimotos 12-21-10 and Erin 19 dx 2-9-07 pumping humalog in Medtronic Revel
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