Your Thoughts on China's Stem Cell Educator Therapy Clinical Trial

Thanks for clarifying, I did not know that. I guess its not an option for us then. But I really truly hope that it works for bijanrad's little one. I know my daughter will always be my little one, no matter how old she is =).

 

mo779,

If you are willing to travel to China, there is a study for children.....

http://clinicaltrials.gov/ct2/show/NCT01996228

 

thanks I did not realize their was the children's one.

 

Correct . The cost of travel must be added . The total duration of our trip was one week . I also hope this works for all . Best wishes

 

The trip including air time was one week . We flew to Shanghai then flew to Chang Sha about 1.5 hr flight from Shanghai.
Some of the medical staff can speak English . But communication is serious issue
Food is not an issue, Carb counting was not a problem .

Thank you for your kind comments

 

She is very busy with her finals . I will ask her . I think stress is the worst enemy for this illness. Thank you for your kind comments and I hope the best for all of us.

 

so how are her BG's doing?

is her daily average changing at all? how about fasting and post meal spikes?

 

The BG levels have not shown any significant changes since she was treated in March . The fasting BG is about 105 . The post meal spikes are anywhere from 150 to 180 . The intake of insulin has not changed . We will run the Glucose Tolerance test (with C peptide) in about three weeks. We have the base line numbers one day after the treatment .
We will know relative changes and this should hint the prognosis,

 

Bijanrad, how many units of insulin does your child take per day? How much does she weigh?
Thanks again for sharing you and your child's experience.

 

His daughter uses no long acting and only 0.5 of fast acting and has an almost normal A1c. It's like she barely has diabetes at all. She is newly dx and is probably just having a very strong honeymoon.

 

0.5 Units or mL?

 

But if she drops to no insulin, or stays the same for months or years....that would be a point for the good guys.

 

HTML:

Real nice.

"Barely has diabetes at all"

 

Is there any evidence this could work for those who are not newly diagnosed? I do not recall what I read about this. There are many things that work for the newly diagnosed, but not necessarily for others.

 

In their Phase I study there was some evidence that even those with long ago diagnosed diabetes, there was some benefit....

http://www.tianhecell.com/Clinical_Applications_0LX8.html#Case_Report_T1D

So hopefully they are on to something.

 

Well, it's been 24.5 years. I am not holding my breath that this will be "it" for our daughter.

 

24.5 years....holy cow! You are not a "junior" member!!!

I personally don't think any one company/individual will come across "it". I think it is a big enough problem that the solution will ultimately involve a number of different activities that, alone, would not be sufficient to cure our kids, but combined will get it done. I am just hoping these guys have a way to modulate/stop the immune attack. That would be a huge step that benefits all.

 

"I think it is a big enough problem that the solution will ultimately involve a number of different activities that, alone, would not be sufficient to cure our kids, but combined will get it done."

That seems really plausible. The incremental work by multiple parties to figure out the diabetes auto-immune attack may someday coalesce into a viable cure. And this work may help research into other auto-immune diseases (or maybe vice-versa!).

 

YouTube with Pablo De Coupaud who underwent the stem cell educator procedure in Spain. http://www.youtube.com/watch?v=wnxGV9Bt-Uo
He also has a Facebook page.

 

My Spanish is not that good!!!!

might need a Spanish speaker that is familiar with T1D to translate.