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Unsatisfactory Diabetes Care for my Kindergartener

Discussion in 'School and Daycare' started by 4MYLittleGuy, Sep 11, 2014.

  1. 4MYLittleGuy

    4MYLittleGuy New Member

    Joined:
    Sep 11, 2014
    Messages:
    1
    Hello all,
    My son was diagnosed with T1D at 3 1/2 years old. He began preschool at the age of four and enjoyed a full day of school with the assistance of his God Sent Pre-K Teacher. She did his carb counts, BS checks and injections at lunch time. As well as treated lows and contacted me with any questions or concerns.
    Fast forward to this school year. He's now in a public school for kindergarten. He now wears a CGM and is on the Omnipod. His school houses over 1100 students and has only ONE, I repeat, ONE, person responsible for administering ALL medicine to the entire student body, including MY little guy. They also want my 5 year old to roam the halls of that huge building ALONE, to have his insulin administered before lunch time. He will not be escorted to her office and she will not come to his classroom to get him. There is also a restroom conveniently located INSIDE of his kindergarten class, to keep the small children from having to venture off into the rest of the building. However, my son will be required to walk alone to the main office to receive his insulin, and then to the lunch room to join the rest of his class. They keep trying to reassure me that it has been done before and that he'll know exactly where to go after a while. This is still unacceptable in my opinion. I also have the availability to be present during lunch time so that i can administer his insulin myself. The school does not want parents in the building during the beginning of the year for fear that it would interfere with the teachers ability to bond with the students.
    My question now is; should I place him elsewhere? My only other school option will allow me to be present but does not have anyone trained to handle T1D, which means I will be tethered to the building ALL day until they have someone trained.
    I need advice. Please HELP!
     
  2. kiwikid

    kiwikid Approved members

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    Dec 29, 2005
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    3,010
    Can you also post this in the Parents forum where I am sure you'll get some replies. I don't think this forum page gets much traffic..
     
  3. mmgirls

    mmgirls Approved members

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    where are you in the world, I assume US but not sure?
     
  4. mmgirls

    mmgirls Approved members

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    If you are US based then your kiddo qualifies for "accommodations" that levels the playing field for him to get what is intended out of a free and appropriate public education.
     
  5. Sarah Maddie's Mom

    Sarah Maddie's Mom Approved members

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    Sep 23, 2007
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    12,510
    So, if you are in the US then you should perhaps start by going to the ADA site and exploring the "safe at school" section. Look up your state see if there are any state laws on the books and begin to familiarize yourself with standard 504 accommodations for kids with "disabilities" (and yes, Type 1 is a legally protected disability).

    Then I would sit down and think about your son's school - logistically and in terms of his daily schedule and ask yourself, "what accommodations does this child need in order to be safe at school and have equal access to public education?" Then find the 504 coordinator for your school. It's usually a guidance counselor but not always and in writing, request a 504 planning meeting and begin to put those accommodations into writing.

    Who exactly is telling you that "it will be ok?" If it's the medical aide then call the principal, if it's the principal then call the superintendent, if it's your superintendent then call the ADA for legal support.

    Good luck.
    (and welcome to the tribe)
     

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