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To 504 or Not?

Discussion in 'Parents of Children with Type 1' started by Lindy, Jan 12, 2010.

  1. Lindy

    Lindy Approved members

    Apr 1, 2007
    We have had thru the years so many questions regarding the 504. Whether you need one or not... Some children have great teachers, principals, etc - why get one?

    We fought with our school to get a 504 in place - got one before he entered Kind. Had a great health assistant who gave care for the past 1.5yrs. She was AMAZING!! Due to horrible leadership, she quit. Poof - gone. Now we are battling for proper care of our child in school - and each and every agency we have communicated with has asked if we have a 504! If we didn't, we'd be SOL! We are currently in mediation with the Dept. of ED Office of Civil Rights....

    So bottom line - if you live in the US, your children attend public schools you need to have a 504 Plan in place - even if you have a great nurse, great principal etc. cause, things can and do change. The 504 is our children's safety net!

    Just my 2 cents!:cwds:
  2. Gracie'sMom

    Gracie'sMom Approved members

    Aug 26, 2009
    I appreciate you sharing that. We have a 504 because I was worried about her high BG's with the state standardized testing, but I wouldn't have asked because her school is so great. But, like you, anyone can leave the school. I will keep that in mind over the years. Good luck, keep fighting, your child's health is so worth it! Still, you shouldn't have to . . .
  3. MamaC

    MamaC Approved members

    Dec 9, 2006
    Great post, Nicky.
  4. Flutterby

    Flutterby Approved members

    Nov 11, 2006
    I totally agree.. if you don't have a 504, get one. It protects your child and their rights. Honestly, we do not need one at the school the girls are in.. but she has one, she will continue to have one until 1, she is out of school or 2, there is a cure.
  5. mmgirls

    mmgirls Approved members

    Nov 28, 2008
    Good timiming for me, as my dd will enter school this coming school year and I need to get over to the school to figure things out and ask about the 504 process they have. I do intend on having one for 1st grade but kindergarden with me beeing so near I will push to have one in place during kinder.
  6. Mary Lou

    Mary Lou Approved members

    Aug 17, 2006
    We're at a fantastic school district -- full-time nurse, sub nurse, all are great at D care. We still get a yearly 504 and yearly review, and it just keeps everyone's expectations on the same page.

    If you're lucky enough to be at a great school, then the 504 process is also something that's very smooth and doesn't take much time, so why not?
  7. Beach bum

    Beach bum Approved members

    Nov 17, 2005
    Exactly! Things change, people change. Don't wait until there is a problem to get a 504, have it in place so that if there is a problem, you can refer back to the 504.

    Most school systems are ok with setting up and following a 504. It's all in how you approach it.

    Our nurses are great, our teachers are great, our staff is great. But, we still insist on a 504 and a review every year. Only once since k have we had to refer back to it and remind admin of it.
  8. shekov

    shekov Approved members

    Feb 22, 2008
    Thank you for encouraging me.

    I know it's the right thing to do but people around me seem to think it makes dd a "disabled" child and may affect how kids and teachers treat her.

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