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Tingling in hands

Discussion in 'Parents of Children with Type 1' started by melissajm, May 22, 2013.

  1. melissajm

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    DS has been having tingling in both hands for over a month. He had all his bloodwork done at the endo 2 weeks ago and all but his Vitamin D came back normal. He is now on a high dose for 8 weeks. The endo does not think it is D related. Today he experienced shooting pain through his hands along with the tingling. I called our PCP but he is at a loss. I have an email out to the endo for suggestions from her on where to go from here.
    Aside from the obvious annoyance and pain it is now becoming a distraction in school. Anyone else experience this?
     
  2. Mish

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    Pinched nerve in his neck maybe?
     
  3. LJM

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    I got something like that years ago and it was anxiety related (shallow breathing lead to tingling hands). I doubt that is your child's case--but just throwing that out there....
     
  4. C6H12O6

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    that can be a symptom of low vitamin B12
     
  5. melissajm

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    His B12 level was normal.
     
  6. Lee

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    I would have his PCP send him to an osteopath or a Chiropractor. It is probably a pinched nerve thing.
     
  7. quiltinmom

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    Or skip the chiro. and go straight to a neurologist. It doesn't sound like a "typical" symptom for a child, D or not.
     
  8. Ti'sMom

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    Could it be carpel tunnel? I know he's young, but repetitive motion is repetitive motion. A lot of us are on our hand-held devices all day long, which can be a problem and I'm sure it's going to be the next new wave of issues with the younger population. I learned with my carpel tunnel that Vitamin B6 plays a huge roll. Just because B12 is at a good level, doesn't mean the other B vitamins are. Between hand-held phones, ipods, video game systems etc. I think it's something we should really watch for. Can you get him some wraps to keep his wrists from bending and see if it relieves itself?
     
  9. Megnyc

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    Have his doctors considered carpel tunnel syndrome?

    I had it in one of my wrists when I was 12 or 13. I had the same exact symptoms as your son. My pediatrician referred me to an orthopedic surgeon who specialized in the hand and wrist. He confirmed the diagnosis and had me wear a splint 23 hours a day (only off to shower or swim) for 6 weeks or so. Within a week or so all symptoms were gone. I had to wear the splint for another 6 months at night but I have not had a problem since then. We still have no idea what caused it. I remember how frustrating that tingling was. I hope you get some answers and relief soon!
     
  10. TheFormerLantusFiend

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    Last August I was lying on the floor propped up reading a book when all of a sudden my wrist exploded in pain and fell over. I thought it would get better, but three days later it hadn't stopped hurting and had started tingling and had gotten swollen too. I went to an orthopedic surgeon, who guessed that I had two pinched nerves plus diabetic neuropathy and who prescribed voltaren and a splint. A week later, my hand had shrunk a lot but still was not doing so great. The following week, the other hand did the same thing the first one had.

    The occupational therapist that the orthopedic surgeon sent me to found no sign of carpal tunnel syndrome and wasn't so sure about neuropathy. She said maybe I was putting too much stress on my body overall and suggested that I get a wheelie backpack instead of wearing one on my back, and get better shoes too. My endocrinologist said he doubted it was diabetic neuropathy, because my feet were good, my reflexes are good, and my A1c was 6.2 at the time. I didn't see the neurologist.

    Using voltaren and splints, it took about two months for my hands to feel better, but they stayed better for only another couple months then got worse. That time I used voltaren and splints immediately and it got better faster. It recently got worse again.

    So, I don't know what it is.
     
  11. melissajm

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    Thanks for the suggestions. The endo suggested taking him to neurologist. Hopefully we can get an appointment soon!
     
  12. Ali

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    Agree it is probably not T1 related but a nerve issue from something else.:cwds:See a a Neurologist and see what they suggest. Good luck. Ali
     
  13. deafmack

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    Hi Melisa,
    A lot ot things can be causing the symptoms your son is having. From a pinched nerve to not enough B12. I would ask for further testng. I don't know if your son has celiac disease but that can be another cause as well. There are over 100 types of neuropathy and neuropathy related to diabetes is just one type. There are just as many causes as well. I would ask for a referral to a neurologist that diagnoses and treats neuropathy and then go from there. I wish your son and you the best in solving this mystery that is confronting your son and you.
     
  14. deafmack

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    Melissa,
    I have neuropathy as well and it isn't diabetes related. All I can say it is both frustrating, at times painful, and very annoying. I do get all your son feels. One thing that might be good is also seeing an Occupational Therapist to get ideas that your son can use to cope with these symptoms while he is having them. I know how frustated your son must feel. There are medications to help with the symptoms but they don't always work and the side effects can be just as bad or worse than the symptoms at times. Having your son see a neurologist that specializes in neuropathy is the first steip in the right direction. The thing is to take it one day at a time. There are some good books on neuropathy out in print right now as well. I do hope that a reason for your son's symptoms is found soon. I also hope he doesn't have to deal with this as I hope that a cure is found as well and the sooenr the better. Also there is an organization that deals with neuroapthy. Here is the link.
    http://www.neuropathy.org
     
  15. melissajm

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    Thank you! It so frustrating to him...he wants to get to the Dr ASAP and get this figured out. I am still trying to get him in to see a pediatric neurologist at Childrens but the don't have anything available until July. My next step is to have our PCP call & try to get him in sooner.
     
  16. C6H12O6

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    You might want to see if you can see a physiatrist or a ped physiatrist sooner. I never heard of this speciality before, but I was referred to one and they did nerve conduction studies. It is a specialist MD like a neurologist
     

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