Minimal Impact? Anyone want to write to the researchers? http://onlinelibrary.wiley.com/doi/10.1111/j.1399-5448.2011.00785.x/abstract
Ellen: Really good point. If we define quality of life compared to a diagnosis with cancer, maybe celiac is minimal impact. The long-term implications compared to the implications of type 1 diabetes are certainly lower. But this writer is working off the wrong understanding of quality of life. Managing celiac disease lifestyles day-to-day is much more time consuming and "impactful" than managing type 1 diabetes (in the opinion of both my wife and me). Celiac patients experience vitamin deficiencies which are certainly an impact to health / quality of life. I'm at an Oracle HR/Payroll conference this week and I'm reminded every time I enjoy a lunch or a snack offered between sessions, how different my daughter's life would be if she attends a conference when grown up. She can't eat this stuff. She would have to pack every item of potential food needed for the entire day. Minimal impact to quality of life? I'd love for this writer to spend one day following my wife and daughter and see if that impacts the next article.
I'm speechless. The authors must be utterly clueless. I'm going to give some to considering a rebuttal.
Wish I could see the entire article.. Stuff like this makes me mad! Put the pen and paper away and LIVE with a child that has type 1 diabetes and celiac, for a week, and then come to your conclusion.
