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Pump Choices. Any Positive Feedback on the Omnipod?

Discussion in 'Parents of Children with Type 1' started by andiej, Feb 27, 2014.

  1. andiej

    andiej Approved members

    Dec 30, 2013
    My son is now choosing his pump. He can choose between the Omnipod, Accu Check Combo, Medtronic and Animas Vibe.

    We have discounted the Combo as it has no distinguishing features. The Animas Vibe I like the fact that it is waterproof but wish it had a handset, the medtronic i like the CGM option though sensors would be self funded but it isn't waterproof, we love the concept of the Omnipod, he is worried about a tube, it's waterproof and the set up looks so fast without him seeing the cannula which for him will be a bonus. He swims 4 times a week during the summer and is in and out of the hot tub.

    I have read the various threads regarding the issues people had with failure batches a couple of times historically. Has this been resolved? On paper for us it's a no brainer but I'm a bit scared regarding some of the negativity. If I hadn't read those threads I would have gone straight for the omnipod, so I guess I'm looking for some reassurance that the Omnipod is a great choice for some people. My son is 10 years old, hates needles and pain.

    Can't wait to hear from you.
  2. Dan

    Dan Approved members

    Nov 8, 2009
    We have used the OmniPod for over 5 years. We love the new smaller pods. For the first 10 months we only had approx. 4 failures which is not bad. However, we did come across one box this past month that had 4 failures. It was more of an annoyance than anything we just put a new pod on and called them into Omnipod who quickly sent us replacements. In addition, they have a process to request replacement insulin if you want to get that reimbursed. If I were to have the choice again I would still go with the OmniPod. My second choice would probably be the T-Slim however, I am not sure how much better off we would be since we use Apidra and the T-Slim is reported to have issues with that. We also go to the Pool and beach a lot living in Florida so the OmniPod was the way to go for us. I will say that long periods of time in a Hot tub will kill your insulin so you may need to change pods sooner. Good Luck.
  3. ksartain

    ksartain Approved members

    Dec 21, 2012
    We have been on OmniPod since October 2013 and love it. We're up to 5 pod failures now, but two were issues with where we put them, so three were actual pod failures. Omnipod replaced all three of the pods that failed that weren't due to placement issues. The only ones that failed before Day 3 were the two that weren't pod failures. The other three had just under 12 hours left.

    We have not used another pump and don't have anything to compare it to, but for my super active 8 year old boy, this has been an excellent choice for us and especially for him.
  4. roo'smom

    roo'smom Approved members

    Jan 5, 2008
    I have a swimmer too, and while the idea of the OP is great, I'm glad that it's not our only pump. My dd started pumping when she was 4 (she's 11 now) with a tubed pump (Cozmo - no longer in business). When Cozmo went out of business OP started the "Cut the Cord" program, where you paid a small start up fee, out of pocket, for the PDM and a box of pods. We decided to give it a shot - her friend wears and OP and loves it. This was quite a few years ago, so we started with the old pods. We never made it through an entire box of pods without at least 2 failures per box, which to me was frustrating. Yes, OP replaces them, but I was always on edge, wondering when/if we were going to hear the scream of death. However, it was nice not having to unhook/hook back up while swimming, or at the beach, or for a shower. It was also nice to not have to fish around her bed for the pump when I needed to do something in the middle of the night. Unfortunately, my dd's skin did NOT like the adhesive on the OP. It didn't stick very well to her, AND gave her an ugly rash. We tried it all - barrier wipes, extra adhesive, tegaderm, hypafix, tough pads, etc. We still continued to use it for a week here and there in the summer, but mainly wore her MM.
    Fast forward to last week when she decided, after over a year, that she wanted to give the OP another shot - we now have the new, smaller pods. So far, we're 4 for 4 with pod failures. Not a single one has lasted over 48 hours. The first lasted about 16 hours, then shrieked. The second was about 24 hours. The third shrieked before I even got it on her (but of course after I put the insulin in!). And the fourth got knocked off while she was getting dressed - I set it on the counter, still active, while I put a regular site on her to hook her back up to her MM, and we got the alarm while it was on the counter - that one was on her for about 40 hours.
    I even had a friend come over who's child has had nothing but success with the OP to make sure I wasn't gooning it up. She watched me go through the entire process of filling, priming, and putting it on dd, and said she does it the exact same way.
    If it works for you it's great, but I'm VERY glad we don't have to rely on it full time. Just our experience with it, which seems to be in the minority.
  5. MomofSweetOne

    MomofSweetOne Approved members

    Aug 28, 2011
    I agree with this. We like it, but we rely on Medtronic for the main pump. We'd Cut-the-Cord again, but we wouldn't choose it for her main pump. It's nice for summer flexibility.
  6. DavidN

    DavidN Approved members

    Sep 7, 2012
    Here's my analogy for the OmniPod.

    I bought a car that performs well but has a history of breaking down a lot. I knew all of this going in. And sure enough, I've had my share of problems with my car. Last year I wanted a new car, shopped around and ended up buying a newer version of the exact same car. For me the repair hassles were well worth my enjoyment of the car.

    My son just does not want a tubed pump. The whole idea of a tube just rubs him the wrong way (figuratively and literally). He may change his mind if he demo'd one for a week or so but he doesn't want to so I'm not pushing (if he were open to it I'd give the T-slim a whirl). Yes we go through periods of inconvenience, but it's like diabetes itself ... the disease is one big inconvenience and you just roll with the punches. We've had one failed pod over the last 3 months. Prior to that we went through a stretch of a bunch more. Maybe they've mostly resolved the problems (I hope). The one failed pod was at school yesterday (he didn't even call or text me) and he changed it on his own. I think that's pretty studly for a 10-year old who is 1.5 year in to dx. My point in mentioning that is the OmniPod is easy to set-up and insert. We also spend summers at the beach. The OmniPod has served us well here. Maybe we'll try MDI over the summer at some point but I don't think a tubed option would work well for us over the summer. So is it hassle free? No. Despite the hassles is it the best option for us? Absolutely. Would I recommend it to others? Absolutely, particularly if your child has a big aversion to the tubing.
  7. hawkeyegirl

    hawkeyegirl Approved members

    Nov 15, 2007
    I'd call and find out if Insulet still has the cut the cord program. We have a tubed pump, but for $199 we got a PDM, and our insurance covers pods just like it covers infusion sets. Our experience with the pod was worse than dismal, but I'm glad we have it for a backup if our tubed pump goes south.

    As long as Insulet still has the cut the cord program, I'd never waste my pump insurance coverage on the Pod system. I'd use insurance to purchase a tubed pump, and pay OOP for the Pod.
  8. StacyMM

    StacyMM Approved members

    Oct 22, 2010
    I'm probably one of the biggest OmniPod haters on this forum...but my son is still using them and is pretty content with the choice. I'm proof that negativity and problems is not the same as giving up on a pump if the right pump for a CWD.

    For him, tubeless is a big deal. A very, very big deal. He's the one that has to deal with the squeal of death and the frequent pod failures (we seem to be the recipient of every bad lot number that ever came out. :p ) and since he is okay with it, I have to be okay with it. We get the prescription written for changes every two days. We pull insulin back out to reduce wasted insulin. We deal with the allergies (tape and adhesive allergies). We carry pods with us everywhere, just in case. We make it work because he believes it's the best pump for him. Would it be great if we had more success? Sure. But it's not always a deal-breaker. If you guys think this is the perfect pump for your lifestyle, then don't let stories like mine talk you out of it. I hate OmniPod...but I make it work because it works for my son.

    (Disclaimer in case my posts were the negative ones you read: It's not a deal-breaker for him. It was a deal-breaker for us to have two kids on them. I really think the issues we had between the PDMs was unsurmountable for us. Changing one kid was a requirement. Changing two wasn't necessary.)
  9. Melissata

    Melissata Approved members

    Feb 19, 2009
    I would never choose the Omnipod as the only pump again knowing how many problems some people are having. It seemed as if they had settled down, but for some people the issues of leaking pods and 0.05 bolus screamers are back, from what I have been reading. We have had both issues this month, but only once each. I don't have the patience for the failures and time spent on the phone calling them in and making sure that they actually send the replacements, which they don't always do. My daughter has decided she is ready for a change, I just have to try to make it happen since she is still in warranty.
  10. minniem

    minniem Approved members

    Apr 25, 2011
    We love the Omnipod. Yes, we have had failures but it seems to go in spurts. The first week we had 3 failures and then we were good for a while. Every once and a while he gets another failure, and just last December (9 months after the starting the pod) we had 3-4 failures. But the convenience of having a tubeless pump is ideal for him. We started off with Medtronic and it was a pain dealing with taking the pump on and off and going to the pool in the summer. My son also swims and it was hard for me to control his BG while we were constantly taking the pump on and off for a 5 hour swim meet. He plays baseball and basketball too and the Omnipod is great for those. We are able to rotate it better without worrying about the tubing getting caught and pulling his site out. And Omnipod will replace failed pods if they are within the first 2 days. His prescription is written for a change every 2 days too.

    The first thing my son said after switching to Omnipod from Medtronic MM was that he felt so free. He no longer had to wear his pump belt and it was liberating for him. He says he maybe wants to try Tslim but that he really likes the pods because they are tubeless. So we are sticking to the pods!

    Good luck with your decision!
  11. MissMadisonsMom

    MissMadisonsMom Approved members

    Feb 24, 2008
    Unfortunately we are looking to get away from Omnipod...after pumping with it successfully for 5 years, this new 'improved' version is anything but! On Monday, Madison has 5 pods fail!!! She had such a frustrating day at school - she was upset, I was upset for her. And to top off all the failures, we find out that the strips we've been using for the past 7 months have been recalled. I know it's not Insulet's fault, but these issues combined caused me to call the doctor to set us up with the pump specialist to show us other options. We have the meeting tomorrow. I WISH Insulet would get back to the quality they had before - we would absolutely stay if things were different.

    So my recommendation is to stay away from Omnipod until they get their pod issues straightened out.

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