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Pediatric Nephrologist

Discussion in 'Parents of Teens' started by mishcoto, Apr 20, 2011.

  1. mishcoto

    mishcoto Approved members

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    Went to our annual check-up @ the Pediatric Nephrologist @ Childrens in Madison yesterday. Everything was good, but she said since Cole had protein in his urine before starting the very low dose of ace-inhibitors, they have no way of ever knowing if this is just nothing or if it could be something, and so, he will have to do bi-annual 24-hour split-urine & blood-tests FOREVER. So, great check-up, but just sad for my 16 year-old to hear it's just another unpleasant thing he'll have to do in his life because of this damn disease. I know we would all have the disease instead of our kids having it if we could. Just makes me feel so helpless.
     
  2. Amy C.

    Amy C. Approved members

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    I don't think nephrologists or endos are of one mind with protein in the urine. I don't remember your son's story with the protein in the urine, but my son has protein in his urine only when he stands up -- not at night. The endo thinks this has nothing to do with diabetes and we shouldn't be concerned.

    The nephrologist has my son on an Ace inhibitor -- which works -- and testing periodically. We don't go and see him any longer.

    When he gets older, I will have him go to an adult nephrologist to see if he thinks the medication has to continue.
     
  3. mishcoto

    mishcoto Approved members

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    Our son has the same as your son. So it appears normal. Our ped. nephrologist said there is no way to tell with type 1 kids whether it is a problem or not. Hence the bi-annual testing. I would rather err on the side of caution. I don't understand any doctor not being concerned with something that could possibly be a problem.
     

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