Went to our annual check-up @ the Pediatric Nephrologist @ Childrens in Madison yesterday. Everything was good, but she said since Cole had protein in his urine before starting the very low dose of ace-inhibitors, they have no way of ever knowing if this is just nothing or if it could be something, and so, he will have to do bi-annual 24-hour split-urine & blood-tests FOREVER. So, great check-up, but just sad for my 16 year-old to hear it's just another unpleasant thing he'll have to do in his life because of this damn disease. I know we would all have the disease instead of our kids having it if we could. Just makes me feel so helpless.