The past few months have been hectic. Since diagnosis so much has gone on in our lives.... Unfortunately I still feel Joe's numbers are all over the place because they are.... In August we moved from NJ to AR. Hubby's Job. We moved at the 6 month mark and couldn't get in to our NJ endo before we left.... then we needed to see a PCP here to get them to do the referral to the endo's office..... not for insurance reasons, just because it's the way they do it. Since we are new to the office we were only able to get an appointment on the first Friday of the month and we had to go to a 9:00 am class (2.5 hours long). If we missed the class we would lose the appointment. The appointment was at 1:30 later that day. The whole process of just getting there was crazy. We arrived here in AR on 8/11 our pediatrician appointment was on 8/14, then it was up to them to make the appointment so I ended up having to call several times to get them to do it for me so I wouldn't miss this month's appointments!! It was so stressful to be in someone else's hands with no control at all! The class was useless.... We were just diagnosed in January! There wasn't much we didn't know already. They said it was so we could learn the way they handle things here..... which are different! First scare is that if we ever use the glucagon it's not an instant trip to the ER! They said once he is up and about that he is fine and there is no need to be seen. I haven't been in that situation and hopefully I won't but it's scary to think there is no safety net when things get rough. They run things a bit lower here but I knew that was coming anyway since it would have been the same in NJ. The last change is that the only access to the Nurses is during regular business hours!!!! I had my nurse?s cell phone and we would text if there was an issue!! Now I know why people come on here late at night with questions! The only change the Dr made was to his basil.... we raised it and she explained that the liver is a stupid organ and basically right now we are probably fighting it and that is why we have such swings in his numbers. We are adjusting to the heat here as well. We have seen his numbers go down but not enough.... he only dropped a fraction on his A1C. I know there are various opinions on the numbers being high but the original plan was to slowly get us lower and lower so as not to end up in the hospital treating lows.... so I am comfortable with higher numbers. (Low 200's, high 100's) I hate that my son doesn't feel anything and can't help out.... it's frustrating and scary. Now I am trying to be comfortable going back to sleep and leaving him at a 120 or lower... so far so good and he hasn't been lower than maybe 69 when we got up in the morning. I know I have to get used to seeing these low numbers. My fear is that most of the time in the past when I would catch a low it wasn't hanging out there... it was on the move in the wrong direction! Anyway, I think I strayed a bit but I have so much going on and not many places to talk about this part of my life.